Posted by: Mike on 4/18/2008 at 09:46 PM
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What is Polyarthralgia; this is from what I was told a general inflammation of the joints, or an autoimmune desease. This was my diagnosis after a year of tests could not find all the other nasties out there. The main one they looked for was Rheumatoid Arthritis, a lot of my symptoms pointed to this but nothing showed up in my blood so as it was not confirmed the diagnosis was Polyarthralgia.However looking at RA symptoms this is what I got, but i do know some people that have this and it was the same for them one friend had it for ten years before it showed up in there blood. For others it has still not shown up, not knowing I believe is worse then knowing as there is always the possibility that it may be something worse.Rheumatoid arthritis (RA) is an autoimmune condition that involves inflammation of the joints and joint pain. I take Nabumetone this works within reason although there are some nasty side effects to this drug so I don’t know what I may be in for in the future.
I was also diagnosed with Fibromyalgia yet another type of pain to deal with I've been told that this may be caused by (leaky gut syndrome) you may want to look that up. This can induce fatigue and tiredness cause legs and arms to feel like lead or that you have just done a marathon, when you have only just got up out of bed. In fact I tend to wake up more tired then I was going to bed.The pain and the fatigue are very debilitating they take the very life out of me at times and the sad thing is this is not who I am, I suppose that the strangeness that other people feel when they look in the mirror, it like one person described life they said even though I am 80 years old I still see myself as a 20 year old I still want to do the things of a 20 year old but my body just wont go with it.The biggest gripe I have while I'm at it LOL is when people say "But you look so well" boy does that grind me. As if I put this on for attention seeking, if I was look in for attention I think there are a lot better ways.One of the sad effects is my reduce activity with my family not being able to interact with them at play, my son plays golf something that I started a year or two before this happened and now I cant even get around the course on a scooter with him, Although I will try a day out with a proper golf cart in the summer as a treat more expensive but I guess its what you got to do. Another sad effect for me is not being able to work, who would employ someone who can only do 3 - 4 hours a week at intervals that are unpredictable. Any level of stress makes it worse so I can only see it being worse to try then not to. Then you got the problems of the state benefit system, and the "We don’t believe you cant work" attitude is it any wonder why people in our condition are petrified of even finding out if we could do some work. I was earning nearly £30K when this happened and now would be on between £40 and £60K as the demand for my skills has gone through the roof. I think that’s just a bit more then my benefits. LOL.Life sucks at times and looking through a window and the same four walls all the time it can suck for most of it.Sorry if your depressed even more buy now, but I am sure you to feel the weariness of illness.
I have wrote other blogs on my boat trip, art etc visit my profile and have a read, there are some funny jokes there also if you need a laugh.
Mike
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hi, I do understand what you are describing. I have lived in Chronic Pain for 40 yrs.--the best years of my life. But then I think of people born with some kind of affliction who never know anything but that. Depression seems to go hand & hand with CP (though I think there is a genetic marker as well) I have TMJ (the big detonator of a life I yearned to live)and, have been diagnosed with Fibromyalgia (when RA was thought the culprit). Always more drugs. I tried to stop all medications once about 3 yrs. ago and wound up in the hospital with a seizure that wiped my memory! So, don't anyone go into a rapid detox unless it is supervised! However, that is like me. Want to get something accomplished & don't want to wait around until somebody else gets to it. Life is filled with frustrations and sadness; but it also filled with Beauty and gladness. Family and friends can make all the difference -- or not. Depends upon how tired they are of hearing how you are doing/or not doing. I just stay to myself now, having learned to entertain myself with artistic pursuits. I do nag myself out the door for a walk or get into the pool for some exercises--best form of exercise for joint problems--no weight bearing. I don't know if we are responsible for our autoimmune diseases by the hormones they put in chickens/cows or how they handle other food stuffs. I know there were not this many types of diseases when I was growing up. It is something that is being put into the growth of animals, even our vegetables. Something changed.
I was glad to read your blog, Mike. We do need to hang tight with one another as nobody else is going to ever be able to understand what we go through, and I don't say that as a put down. It's just that if you haven't"walked in the shoes" sort of thing, you can't know. Best to talk about it with one whose treading along the same path.
Take care, Wings
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