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fibromyalgia

Fibromyalgia and Chronic Fatigue

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A group for people living with Fibromyalgia & Chronic Fatigue Syndrome to talk about issues they face on a daily basis.
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fibro and meds

Posted by: Tammy on 6/13/2008 at 09:08

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hi im tammy,

i have suffered with fibromyalgia for about 6 years. this is such a difficult disease to cope with for so many reasons. there are still so many doctors who don't believe in fibro, so if i get a really bad flare-up and can't get ahold of my doc, i take a risk going to urgent care, never knowing which doc i will get. i have kaiser and there are only so many that work at the urgent care center and i know right away if i am going to get any help or if i am going to be treated like i'm drug seeking. i really am blessed though i have a great doc. all she cares about is makeing sure that i am comfortable.we have gone round and round though trying to find the right combination of meds.i have tried,darvocette,norco,dilauded,ultram,morphine,fentynal patches,and we have finally settled on methadone, with morphine for break through pain.it is by far the best thing i have ever tried.i am so grateful to have a doctor who really cares about me and doesn't give up easily. here is to hopeing you all find the kind of doc i have

     mqy the grqce of Jesus Crist the Lord be with you always

Filed under: fibromyalgia
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  • fibro | Lasts information wrote on Jun 16, 2008 at 1:30
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    Pingback from  fibro  | Lasts information


  • fibro | Hottags wrote on Jun 16, 2008 at 1:31
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    Pingback from  fibro  | Hottags


  • peggyann wrote on Jul 18, 2008 at 5:09
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    Hi Tammy, I also suffered from fibro since 03 and for a couple of years i was ok with just being on cyclobenzaprine,celebrex until i had my knee replacement my flare-ups just wont stop now i am on norco,fentynal patches and lyrica and i am still in pain.i am hopeing on day my doctor will get me on the right drug. good luck to you and be pain free1
  • rachelle wrote on Jul 26, 2008 at 9:04
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    HI, I'M 47 AND HAVE HAD FIBRO SINCE I WAS AROUND 13-15 I WAS FINALLY DIAGNOSED WHEN I WAS 32. AFTER GOING THRU SURGERIES FOR FEMALE PROBLEMS AND HAVING THE FIBRO ON TOP OF THAT IT TOOK ALONG TIME TO ACTUALLY FIND OUT WHAT WAS GOING ON. NO DR. COULD FIGURE OUT WHAT WAS WRONG SO WE STARTED ELIMINATING THINGS ONE AT A TIME. I HAVE BEEN TO 3 DIFFERENT PAIN CLINICS. THAT WAS ACTUALLY WHAT HELPED ME TO GET THE MEDICATIONS I NEED TO DEAL WITH THE PAIN DAY TO DAY. I ALSO HAVE A VAGINAL NERVE THAT IS TIED UP WITH ADHESIONS THAT CAUSES SEVERE PAIN. I TOO HAVE BEEN THRU ALL TYPES OF PILLS. FINALLY GOT PUT ON MORHPHINE AND THAT IS WHAT KEEPS ME SAIN. IT SOUNDS REALLY BAD TO SAY THAT, AND IT IS HARD TO GET A DR. TO PRESCRIBE THAT BUT AFTER YOU FINALLY GET TO THE POINT THAT YOU HAVE TO GO TO A PAIN CLINIC THEY REALIZE THAT YOUR NOT JUST A DRUGGY. I'M ON THE METHADONE ALSO, THAT AND KADIAN BOTH ARE THE STRONG THINGS I TAKE THEN THE VICONDIN AND ULTRAM ARE THE IN BETWEEN MEDS. MY HUSBAND HAS ARTHRITIS REALLY BAD AND HE KNOWS WHAT IT IS LIKE TO BE IN PAIN SO ATLEAST HE BELIEVES ME. MY FIRST HUSBAND DIDN'T. MY DAUGHTERS ARE IN THERE 20'S AND HAVE NEVER KNOWN THERE MOM TO BE WELL. NOW I HAVE MY 1ST. GRANDCHILD ON THE WAY. I WANT TO FEEL GOOD ENOUGH TO ENJOY THIS BABY. I FIND THAT IF I TAKE A NAP DURING THE DAY, OR ATLEAST LAY DOWN AND REST THAT IT HELPS THE FATIGUE. MY BEDTIME MEDS KNOCK ME OUT, BUT I DO WAKE UP SEVERAL TIMES IN THE NIGHT MORE NOW THAN I USED TO. IT MAY BE TIME TO ADJUST THOSE MEDS. HAVING A GOOD DR. THAT WILL LISTEN TO YOU IS A MUST. MINE PRETTY MUCH DOES WHATEVER I NEED HIM TO. HE TRUST THAT I KNOW WHAT I'M DOING AND HOW I FEEL SO HE GOES ALONG WITH WHAT I ASK. I TOO HAVE HAD TO QUIT WORK AND FILE FOR DISABILITY. THAT IS A HARD THING TO WIN UNLESS YOU GO TO ALL SORTS OF SPECIALIST ALL THE TIME. I'VE HAD TO APPEAL AND REFILE SINCE I HAVE NO INSURANCE AND NO LONGER GO TO ALL THE SPECIALIST. THE SYSTEM IS REALLY MESSED UP. MY SPECIALIST TOLD ME SINCE THERE IS NOTHING ELSE THEY COULD DO FOR ME THERE WASN'T A NEED FOR ME TO CONTINUE TO COME ESPECIALLY SINCE I CAN'T AFFORD THERE FEES. MY FAMILY DR. IS THE ONE WHO FILLS MY MEDS. THE COURTS DON'T THINK YOUR SICK UNLESS YOU SEE ALL THE SPECIALIST ALL THE TIME. I SHOULD HAVE QUIT WORK YEARS AGO WHEN I WAS SEEING 5 DIFFERENT DR.S AND I WOULD HAVE WON MY CASE. BUT, I TRIED AND TRIED TO WORK AND THAT ALSO COUNTED AGAINST ME. SAY A PRAYER THAT I WIN MY CASE THIS TIME. IF I DIDN'T HAVE CHRIST IN MY LIFE, I COULDN'T HAVE MADE IT THIS FAR. YOU JUST HAVE TO DO THE BEST YOU CAN AND TRY TO ENJOY THE LIFE THAT YOUR GIVEN. DON'T LET IT PASS YOU BY, BUT DON'T OVERDUE ALL THE TIME EITHER. PACE YOURSELF THRU THE DAY AND LISTEN TO YOUR BODY, IT WILL TELL YOU WHEN YOUR OVERDOING IT. IN HIS LOVE,
  • Ree wrote on Aug 26, 2008 at 3:01
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    Fibro suffer for 15 years

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