fibromyalgia

Darn you tasty spicy chicken sandwich!

2008-08-09T18:48:00Z

I thought it might help some, and to remind myself in the future as I've made this mistake before and forgotten. Wendy's Spicy Chicken Sandwich and fries will destroy you. I felt all right last night, perhaps a bit of restlessness but not bad heartburn, then I went to sleep two hours later. This morning I had a distinctly horrid flareup, waking up on my belly, rips aching to the touch, chest and upper belly like something died within. This flareup is particular, I knew I had felt it before and usually ascribed it to alcohol, but alas, I wasn't drinking when I got the spicy chicken craving, it was all the Wendy's this time. And thus I warn all, avoid that the ginger girl's demon chicken sandwich at all costs.

fibro and meds

2008-06-14T02:08:00Z

hi im tammy,

i have suffered with fibromyalgia for about 6 years. this is such a difficult disease to cope with for so many reasons. there are still so many doctors who don't believe in fibro, so if i get a really bad flare-up and can't get ahold of my doc, i take a risk going to urgent care, never knowing which doc i will get. i have kaiser and there are only so many that work at the urgent care center and i know right away if i am going to get any help or if i am going to be treated like i'm drug seeking. i really am blessed though i have a great doc. all she cares about is makeing sure that i am comfortable.we have gone round and round though trying to find the right combination of meds.i have tried,darvocette,norco,dilauded,ultram,morphine,fentynal patches,and we have finally settled on methadone, with morphine for break through pain.it is by far the best thing i have ever tried.i am so grateful to have a doctor who really cares about me and doesn't give up easily. here is to hopeing you all find the kind of doc i have

mqy the grqce of Jesus Crist the Lord be with you always

How to lubrigate your joints from inside

2008-05-21T21:02:00Z

For the past 3 weeks I have eaten one avacado each day. A week after I started this I felt more comfortable deep down where the pain gets excrutiating. I still get my usual pains, but I have found a "smoother" feeling when I move around. It is difficult to describe. Anyway, I just wanted to share this with my fellow fibro computer buddies. Let's put it this way. I get much better results from eating the avacados than I did from taking flaxseed oil and fishoils. I had been taking these oils for quite a while. Now I feel like I don't have to buy the oils anymore. One other thing I wish to share: Effexor is one of my meds for pain and depression. I was starting to get agitated from it, so I take half the dose when I go to bed. This way, when I wake the next morning I can get up and put my coffee on so much easier. Effexor acts as a stimulent for me. So, with my slow metabolism the night time dosing helps in the morning. I hang on to this med with dear life because it gives me good relief of pain and helps me have more energy during the day. I finally don't have to be in bed most of the time because of this fabulous med for me. I consider it a miracle drug for me personally. Thankyou Disaboom for being in my life. Disaboom has been wonderful for me not to feel so terribly isolated since I don't go anywhere. Love to all of you at Disaboom and your wonderful blogs to read.. Thankyou, Grandmadeb

One Day At A Time

2008-05-14T11:18:00Z

Look, I have been looking to talk to a Rabbit Lady or a Wendi, I recieve there emails all the time....I just want to say that we have to put our heads together and find out what works best for all of us.. Sure, our pains are different, but we have the same goal.....Personnaly, I have not had a good day in around 2 weeks. I stopped counting. But most important, I will not give upp... the pain is so great somedays I just want to end it...I am frustrated like you all. I cannot do the things I use to do at all...One thing I do do. for the women...I put on a Happy Face, makeup, even a little. It makes you feel better...I do walk with my walker around the high school track at least 2 times a week. and bellieve me some days are so painful, that my husband litterally pushes me the rest of the way, I get really slow at walking beacause of the pain. My biggest fear is to end up in a scooter and not be able to walk again....I feel like I am on a roller coaster and I can't get offf.

I feel for Wendi, My kids are grown and on there own. I sometimes wish my husband would read some ot the stories, so he would n't think I am crazy with the pain....

Have a Good Day Just Believe and just take it One Day at A Time

Mary beth

Fibromyalgia, & Natural Medication

2008-04-18T20:16:00Z

I have tried a form of acupressure which helps by stimulating the hormones this in turn releases chemicals into the body which and can boost your energy levels, unfortunately for me it only worked the first 2 times. As most of your hormones are based in the pancreas and I am diabetic (my pancreas don’t work properly) it was not going to work for me, the guy I went to see was very honest and up front. But I can say it did work for me so it was worth having a go. I am trying Homeopathy at the mo that to has made a difference as I was having a lot of irritable gut problems. Pauline who I see is very nice and desperately want to help me improve. The reality of FMS is its never going to go away but it is possible to make if easier to live with. Another help has been a product I take called Ambrotose the website is https://www.mannatech.com/Country.aspx there are a lot of people with all sorts of illnesses have benefited from taking it. The reason I started taking this product is: In August 05 I was diagnosed with Diabetes and although I was treated for this my other symptoms where not happy and I just went down hill by the January of 06 I can only describe as if I was dieing, dramatic maybe but that’s how it felt. I new about this product but not working because of the illness I was put off by the cost. But out of desperation I started taking it and with in a few weeks I felt a difference. I took a few months to make a real difference but I can say it does work. They say you should give it at least four months to let it get into your system. It works by providing the body with nutrients it needs to heal or help it self. Some people have had great benefits from it, others say it made no difference but it’s worth a try.

mike

Polyarthralgia & Fibromyalgia

2008-04-18T18:43:00Z

What is Polyarthralgia; this is from what I was told a general inflammation of the joints. This was my diagnosis after a year of tests could not find all the other nasties out there. The main one they looked for was Rheumatoid Arthritis, a lot of my symptoms pointed to this but nothing showed up in my blood so as it was not confirmed the diagnosis was Polyarthralgia.However looking at RA symptoms this is what I got, but i do know some people that have this and it was the same for them one friend had it for ten years before it showed up in there blood. For others it has still not shown up, not knowing I believe is worse then knowing as there is always the possibility that it may be something worse.Rheumatoid arthritis (RA) is an autoimmune condition that involves inflammation of the joints and joint pain. I take Nabumetone this works within reason although there are some nasty side effects to this drug so I don’t know what I may be in for in the future.I was also diagnosed with Fibromyalgia yet another type of pain to deal with I been told that this may be caused by (leaky gut syndrome) you may want to look that up. This can induce fatigue and tiredness cause legs and arms to feel like lead or that you have just done a marathon, when you have only just got up out of bed. In fact I tend to wake up more tired then I was going to bed.The pain and the fatigue are very debilitating they take the very life out of me at times and the sad thing is this is not who I am, I suppose that the strangeness that other people feel when they look in the mirror, it like one person described life they said even though I am 80 years old I still see myself as a 20 year old I still want to do the things of a 20 year old but my body just wont go with it.The biggest gripe I have while I'm at it LOL is when people say "But you look so well" boy does that grind me. As if I put this on for attention seeking, if I was look in for attention I think there are a lot better ways.One of the sad effects is my reduce activity with my family not being able to interact with them at play, my son plays golf something that I started a year or two before this happened and now I cant even get around the course on a scooter with him, Although I will try a day out with a proper golf cart in the summer as a treat more expensive but I guess its what you got to do. Another sad effect for me is not being able to work, who would employ someone who can only do 3 - 4 hours a week at intervals that are unpredictable. Any level of stress makes it worse so I can only see it being worse to try then not to. Then you got the problems of the state benefit system, and the "We don’t believe you cant work" attitude is it any wonder why people in our condition are petrified of even finding out if we could do some work. I was earning nearly £30K when this happened and now would be on between £40 and £60K as the demand for my skills has gone through the roof. I think that’s just a bit more then my benefits. LOL.Life sucks at times and looking through a window and the same four walls all the time it can suck for most of it.Sorry if your depressed even more buy now, but I am sure you to feel the weariness of illness. I am going to write another blog on my boat trip last year, It was just a day out with friends but the sun was up the sky was blue it was a hot day and it was great and the fact that I'm still talking about it says something about how good it was. I even wrote a song about the boat going along the canal for my friends who own the boat.

Mike

Hi I'm New to this group

2008-04-18T18:39:00Z

Hi My Name is mike I,m new to this group, I'm 41 with FMS and RA symptoms and Diabetes

I generally have pain in one joint or another. Around the house I don’t use a stick unless I'm in real trouble, or if I am only going a short distance, depending on terrain or how bad i am that day. But If I am out for longer periods then I take it as the pain just gets worse. The other side of this is my hands, my hands are always in pain and some inflammation, so using my sticks can make this a lot worse. I wish I could say my disability is not going to stop me but it already has, just how much though well that depends on where I am going. I tend to look at where I am going or being invited to by analyzing it, this is more of a subconscious thing. If its just keeping some one company then if I not to bad that day I will probably go along, if not then I will stay and reserve my self for some thing else. a show or a day out. That way when I suffer afterwards for the activity I don’t mind so much.Not always using my stick or sticks seems to cause a lot of confusion to people, they can look puzzled,
Oh your feeling better NO its just that I am only going a short distance to and from my car. Or We missed you last week where were you, I was laid up in the house because I was in such pain and feeling sick either because of the illness or the meds.People don’t see the times when I crawl up the stairs or shuffle down because my hips or knees or feet are inflames and pain. Or when I cant eat a meal because my jaw is inflamed and I struggle to even drink, or when I cant even hold a cup. That’s just the way life is I didn't ask for it but I have it, I except it why cant you. I know other disabled people that are in a bad way worse then me in ways and they have suffered for longer, there family have been a strength to them as mine have to me and at the end of the day that’s what counts. So from me a big thank you to all the carers and families who give of them selves to help there loved ones in there hour of need, for giving encouragement, for holding a hand or shedding a tear.As for those with the negative waves I say Bye bye. It was nice knowing you.

Mike

Member Introductions

2008-03-24T22:40:00Z

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Fibromyalgia and CFS Patients Connection

2008-03-24T22:39:00Z

Are you diagnosed with fibromyalgia or chronic fatigue syndrome?

If you are looking to connect with other patients, share a little about yourself here!

Partners & Caregivers Connection

2008-03-24T22:37:00Z

Are you the partner or caregiver of a person with fibromyalgia or chronic fatigue syndrome?

Let us know here if you are looking to connect with other partners or caregivers!