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girlwhocanfly
girlwhocanfly
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first time i'm using this

Posted: 5/10/2008 at 12:01 AM

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This is my first time Iam using this feature of disaboom.com. Arthritis has plauged me for all of my life. Iam 27 years old and it sucks to be taken care of by people. My parents are my primary care givers but ever since they left for Florida a couple of days ago I had to rely on other people for help. See, I can't do many things like a normal person can do, the simplest things like putting on socks and shoes to putting pants on. I need help with every aspect of my physical care. My mind is just fine; I'm smart, and witty beyond what people think I am. Its funny the stigma ppl have on you when you are stuck in a wheelchair. Like they look at you and not even comprehend that you have a mind and that you can speak for yourself which I find to be unnerving. I know in time that people will see people in wheelchairs to be normal people of society. If only that time was now. Brooke from Hawaii.
Filed under: caregiving, arthritis
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  • Vicki wrote on May 9, 2008 at 5:41 PM
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    The time will come, but probably not too soon.  It is irritating to have someone ask your caregiver "Does she like to read?" as if you are not even in the room.  People do it for kids, too.  Sad.


  • Tim wrote on May 9, 2008 at 6:22 PM
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    hey, thanks for checking out blogging, hope you like it!


  • SteveSki wrote on May 10, 2008 at 1:37 AM
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    "Like they look at you and not even comprehend that you have a mind and that you can speak for yourself which I find to be unnerving."


    Yep, I left a Value City furniture store because the salesman couldn't comprehend that I was the one buying a couch instead of my buddy.  Wouldn't even look at me.


    And I hate to say it, but I'll bet medical technology advances to the point where wheelchairs and such are no longer necessary before we truly achieve society-wide acceptance.  There is so much aversion to difference embedded in human nature that some level of rejection will undoubtedly survive - just look at how persistent racial and religious strife is, just to name two.


    Hmm, I think I may have my next blog post here...


  • girlwhocanfly wrote on May 10, 2008 at 3:37 AM
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    LOL, commenting on my own blog. Anyhow, Iam slowly seeing how the human condition can work together for the good of people. I tend to look at the negative side of almost every aspect of life without even attempting it.


  • bonniethesurvivor wrote on May 10, 2008 at 5:43 AM
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    I have experienced this reaction more times than I can count.  "The would she like a coke" syndrome is so pervasive, and beyond annoying.  It is also really annoying to have to rely on a caregiver.


    The problem is, if you will allow me to share my over two decades of disability experience with you, is that if you let the irritation get to you, you miss the fun you do have left in life.  Sad but true.  Better to try to make some peace with the sitution, and get on with what you do want to do than dwelling on the negatives.  You can also become a strong disability advocate, and work (as a volunteer if necessary) to promote public awareness. We need all the articulate, motivated people around to sound the bell for that awareness so that the day will finally come


  • bonniethesurvivor wrote on May 10, 2008 at 5:43 AM
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    I have experienced this reaction more times than I can count.  "The would she like a coke" syndrome is so pervasive, and beyond annoying.  It is also really annoying to have to rely on a caregiver.


    The problem is, if you will allow me to share my over two decades of disability experience with you, is that if you let the irritation get to you, you miss the fun you do have left in life.  Sad but true.  Better to try to make some peace with the sitution, and get on with what you do want to do than dwelling on the negatives.  You can also become a strong disability advocate, and work (as a volunteer if necessary) to promote public awareness. We need all the articulate, motivated people around to sound the bell for that awareness so that the day will finally come


  • bonniethesurvivor wrote on May 10, 2008 at 6:13 AM
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    (sorry, obviously having trouble getting this comment posted!) . . .day will finally come when we will all be just regular members of society.  My very best wishes in your struggles.  It seems, from your own comment, that you are well on your own way to realizing what I am trying (twice now!) to say.  Bonnie


  • SteveSki wrote on May 10, 2008 at 1:03 PM
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    girlwhocanfly, it's a good thing to comment on your own post.  It helps to further the discussion.


    And your post did, in fact, inspire me to write a bit myself here:  <a href="www.disaboom.com/.../social-acceptance-and-tribalism.aspx">Social Acceptance & Tribalism</a>.  (I hope that link works. *fingers crossed)


    I'd love to hear your thoughts on, uh, my thoughts.  Cheers!


  • SteveSki wrote on May 10, 2008 at 1:46 PM
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    Ah, crud.  That didn't work.  Well, it's on here titled "Social Acceptance & Tribalism".


    Any chance an admin can clean up that link mess I made?


  • Tim wrote on May 10, 2008 at 8:57 PM
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    here's your link steve:


    www.disaboom.com/.../social-acceptance-and-tribalism.aspx


    doesn't look pretty but it'll work.


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