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Vicki
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The Big I - Incontinence

Posted: 11/2/2007 at 08:00 PM

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  Many people are incontinent, but very few blog posts are written about it. Hmmm. I wonder why not.

Incontinence - Disaboom drafts

As indicated in the comic strip above, a child or a weirdo may be curious about bathroom practices, but a wheeler probably knows.

Our society has strict, culture-specific rules and traditions about bathroom etiquette. Society tells us not to talk about it. It's not polite; it's taboo. We are often embarrassed to the point that common bathroom references are veiled in euphemisms. We see references in adolescent films and the occasional comic routines where toilet humor reigns supreme. But in polite society, we do not talk about it. The whole subject is a minefield, exploding in giggles and blushes or shock at the slightest reference.

Let's tread that minefield. Careful now.

There are at least four levels of bladder problems:
  • urinary urgency when you just have to go, and you have to go NOW. No time to think. NOW!
  • urinary hesitancy when you can't go at all.
  • nocturia which means you go at night -- frequently.
  • incontinence which is simply loss of control; you can't hold it, you can't stop it, you just go...whenever...wherever.

diabled humor IncontinenceIncontinence is a symptom that affects 80% of MSers, and it is a symptom common across many types of disabilities. There are 20 - 25 million people in America with urinary Incontinence, and 6.5 million with bowel incontinence.

When confronted with the reality of incontinence, only 1 out of 12 overcome their embarrassment to even seek medical help. The trouble is that incontinence is not only embarrassing, but it can cause serious medical problems. If it is not treated, it can lead to urinary or bladder infections, or even kidney damage. In addition, not surprisingly, it can cause hygiene problems. And because it interferes with regular daily activities, it often leads to isolation. Yes, it is very serious.

So what do you do about it? Each of us manages according to personal preference, ability, and convenience.There's always surgery, but that is a last resort and works only for some causes. There are devices such as catheters or urethral inserts, and medications such as Ditropan or Detrol.

Dietary changes and reducing liquids and caffeinated drinks ease concerns about going out. Also helpful is physical exercise to increase control, or monitoring the time to ensure a bathroom is near at the right time. Diapers and adult undergarments are also options.

This little post made me think about how we as a society handle the taboo of bathroom practices. I think this taboo can be broken down with a bit more education. Incontinence is expensive, inconvenient and embarrassing. Bathroom etiquette may be a minefield, but I think of it as merely another speed bump along the disability path.


For more incontinence information, see WebMD.
Or check the experts' columns and forums at the Depends site.


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Filed under: multiplesclerosis, disability, disaboom, multiple_sclerosis, vickismspath, health, multiple+sclerosis, healthcare, disabled, ms, multiple sclerosis, disabled humor, incontinence, bathroom
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  • Debbie wrote on Nov 3, 2007 at 1:57 AM
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    hi vicki, yes you watch your intake of fluids if you are going someplace where theres no bathroom. cute cartoon, funny post!have a great day sweetie xoxo

  • Debbie wrote on Nov 3, 2007 at 1:57 AM
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    hi vicki, yes you watch your intake of fluids if you are going someplace where theres no bathroom. cute cartoon, funny post!have a great day sweetie xoxo

  • Vicki wrote on Nov 5, 2007 at 12:14 AM
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    Yes, Debbie, fewer fluids.  Garry does well with the cartoons, doesn't he?  They'll show up every once in awhile.

    Nice picture.  It's nice to put a face to a name. Keep smiling. I liked your thumb, too.

  • anewname4s wrote on Jan 3, 2008 at 12:49 PM
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    Ihave a neurogenic and I cath 4-5 times a day  go through Dpend style full underpants at a rate of 5-6 a day.  i sit on towels have several changes of clothes and know all about embarrassment.  it doesn't bother me now as much, as it is just MY life with progressive MS, and recently I went to a indwelling (foley) cath for the holidays and long travel, what a blessing!!!!!!!

    Lets get MS known by ALL the lack of awareness is amazing.

  • anewname4s wrote on Jan 3, 2008 at 12:51 PM
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    ps      a bump in thew road it is!!!!!

    Hugs

  • Vicki wrote on Jan 12, 2008 at 2:27 PM
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    anewname4s - What a drag.  I sometimes feel I am managing my daily life around my awkward feet and bathroom issues.  Not quite what I had planned.

    I am surprised how little people know about MS, but then, I knew almost nothing when first diagnosed.  Now, I am often surprised how little I still know.

    Good luck.

  • cindyx wrote on Jan 17, 2008 at 5:47 PM
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    I'm dehydrated when going out,

    inside, I frequently toilet.

    I have noticed, when days are high estrogen,

    I have more control.

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