HARD TIMES

I've been paralyzed for 24 years. I already went through the rebellious stage many years ago. Therefore, I have no problems with my disability. The problem that I'm trying to cope with is living with family! I lived independently, on my own for 20 years. Last year, I got a bad infection in my elbow and required 4 different surgeries. While spending a great deal of time in the hospital, my family packed up all my belongings and memories and put them in storage. I didn't get one word in, regarding what I choosed to have boxed up or not. Heck, I don't really know what worldly possessions I still own. Then, I got some serious pressure sores on my butt and back in the hospital I went. I accept the fact that I'm getting old and can use a helping hand, but this living with family is ruff. I rarely get to make any of my own decisions. My sister is constantly doing so. And, if and when I should speak out for myself and disagree, then all hell breaks lose. Either, I get told I'm being impossible and feeling sorry for myself or I am expected to explain how or why my decision is more beneficial or not to my life and disability. Why does life have to be so difficult? My family knows my brain works right and that I spoke for myself all these years gone by. Now, it feels so smothering as if I'm suffocating. Don't get me wrong, I love my family. It is the having to give up my independence and living with them that's driving me freaking nuts! The big problem is that they don't think from the mind set of adisabled person. I know perfectly well what fits my wants and desires. As I've previously said, when I point this stuff out either I get occused of being impossible or feeling sorry for myself (because of my disability). These are hard times! Anyone have any answers or suggestions?