Living Forward - All Comments

Re: Andrew Shelley Documents His Treks in an Off-Road Wheelchair

Anonymous — Fri, 29 Aug 2008 17:24:48 GMT

This is simply Awesome. I went to Drew's site btcmovie.com and watched the videos...very very inspiring..

Re: Consider All That You Can Do with MS

Anonymous — Thu, 28 Aug 2008 18:59:31 GMT

Really commend you for all you've done with your life. Primary progressive ms doesn't give me many choices ib my life. I can be mobile with a cane for short distances, like a once a month trip to wal-mart. lol My dream job would be to critic commercials that are on tv. Wondering if you could point me in the right direction. Any advice will be greatly appreciated. Thank-You Paula Mieczkowski 720 Third Ave. Apt. 703 New Cumberland, WV 26047 304-564-4255

Re: Footwear is Still Important, Even if You Can’t Walk

nonajudy — Thu, 14 Aug 2008 21:40:08 GMT

I so wish I could wear nice shoes.

I had major surgery on my toes due to strokes. (bones removed ect.) so I have to wear these super wide big "honken" shoes.

But I keep them clean & make everything else as nice as I can.

I can stand for a few minutes,but mostly sit!!

Nona Judy

Re: Life Rolls On for Tara Llanes

Anonymous — Thu, 07 Aug 2008 15:51:07 GMT

In almost of the articles, etc. that I see in the media - online and otherwise - the language used to refer to people and spinal cord injuries is that we have "suffered from SCI". And yes, I say WE because I do speak from very personal experience.

www.JaehnClare.net

I'd like to encourage us all to consider the value of shifting our language, our writing and our perspectives to emphasize that we have SURVIVED spinal cord injury - and gotten on with living our human lives. After almost twenty-nine of surviving, I am oh-so-very-weary of the "suffering" language writers (with and without disabilities) use to speak and write about life with a disability.

ALL human beings "suffer" from or with something.

How are we ever going to take the "dis" out of disability if we continue to focus on SUFFERING from it?

I prefer to celebrate our survival.

Re: Time for a Career Change? What to Consider

Monica — Sat, 26 Jul 2008 02:53:32 GMT

I am a woman with a disability since birth and a life coach-in-training in Charlotte, N.C. I will be certified in a couple short months as a coach and am very excited to see this article to encourage me as I develop my service, BUTTERFLYWHEEL Life Transition Coaching Etc. It confirms for me a niche to coach people with disabilities, whether by birth or acquired later in life, through life and career obstacles to realize our best potential. Thank you!!

www.butterflywheel.com

Re: Ladies Who Launch

AnnieSibley — Sat, 26 Jul 2008 00:56:34 GMT

After reading this, i became highly encouraged. Before my stroke, I was working on my masters degree. Once I was able tocome home following a briefrehabilitation stintat a rehab hospital, I decided to finish my MBA. I completed the rest of my requirements and graduated in 20007from LaVerneUniversity in CA. Since then, I've been wondering what to do and how to take advantage of this degree. Now, after reading about Ladies Who Launch, I feelveryencouraged about being able to put my education to good use.Cansomeone please contact me regarding this group. I'm very interested in joining it. Thanks so much!

Re: Ladies Who Launch

AnnieSibley — Sat, 26 Jul 2008 00:56:33 GMT

Re: The Gift that Stroke Gave

AnnieSibley — Sat, 26 Jul 2008 00:42:26 GMT

You are truly amazing, Katie!I've been told after my stroke that I was one of the younger ones to have had this happen to me , but little did I realize or even imagine that there are even younger people like yourself who have gone through the same experience as I have. I'd love to hear from you.I had my stroke in 20004 when I was 44. In my case, my left side got paralyzed and, to this day, my left arm hangs lifelessly on my side. I thank God everyday that I am right-handedl otherwise, I'm not sure what my life would have been like. Please email meso we can chat and compare notes. about our experiences. On another note, with the help of tons of therapt, I am now able to walk with the aid of a cane. How about you?

Re: The Gift that Stroke Gave

AnnieSibley — Sat, 26 Jul 2008 00:42:03 GMT

Re: Unseen Bean: The Blind Coffee Entrepreneur

Anonymous — Sat, 19 Jul 2008 10:49:11 GMT

A wonderful story. I'm newly bllind, and this encourages me to realize that I can still be who I've always been and do anything I set my mind to. I hope to meet him someday.

Denise

Re: Staying Motivated

Anonymous — Tue, 15 Jul 2008 12:50:27 GMT

IIam aSrilankan medical officer who has worked in a neuro surgical unit in my country for four years.I have seen amazing will power and stamina in these patients after they become differently abled.Some times it made me feel a shamed for not having appreciated simple things in life.

Re: Frida Kahlo’s Colorful Life

m_a_s_a — Fri, 11 Jul 2008 02:53:52 GMT

Kahlo was a crip that attempted to live independently way ahead of her time. She has been a pioneer and definitely a role model for latina women in many different areas of life - sexuality, relationships, disability, and self-expression through art. She is my heroine!!

re: Taking Life One Day at a Time: Living with Rheumatoid Arthritis

MotherofConfusion — Sat, 05 Jul 2008 05:48:16 GMT

I was just dx with RA. I'm on medicine now to try and put it into remission. I'm 35 with two boys. I appreciate this story being published.

re: How to Find a New Doctor

malloryk — Thu, 03 Jul 2008 04:07:53 GMT

I found this article somewhat useful, giving some ideas I have yet to try. But it really doesn't seem to make the task any less daunting. I've been without a primary for almost 6 months now; I have everything but a primary, which is just strange if you ask me. Being all these other factors are new as well but ended up easier to find. I want a doctor that has worked with disabled persons, knows a thing or two about it and doesn't leave me to coming up with the idea that I think my back is really getting curved, do you think we should do something about that? I am just sick of being my own best advocate and would like to deal with someone who knows more then I do. Why isn't there a search engine for disabled persons seeking doctors? Would this be a good idea, does it already exist and I'm just in the dark again, as usual.

I would love to hear the thoughts of others,

Thanks

Mallory

re: Mother and Son Bike Cross-Country to Raise Funds and Awareness for Rehabilitation

Bob Wassom — Tue, 01 Jul 2008 23:57:36 GMT

I just want to say congratulations to Aaron and Laquita for following through on a great idea. I'm also a mobile quad from a broken neck many years ago. I just completed a two day bike ride for the MS Society. Many years ago, I too shared the frustration of a big void upon being discharged from a hospital rehab center. I was left to my own devices and many times wondered about the viability of a rehab gym for people with SCI and other disabilities. If you're interested in expanding your idea into Utah, let me know. I live in Salt Lake City. I think there's a need for more rehabilitation focused gyms. Way to go!

Bob Wassom

Disaboom member