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ALS
ALS Association
www.alsa.org
Advocates, researches, and provides support and services to people with ALS and the people affected by them. The ALSA’s newsletter, A Reason for Hope, has a readership of 360,000.

Amputations
Amputee Coalition of America (ACA)
www.amputee-coalition.org
The ACA reaches out to amputees through education, advocacy, and support. Their publication, inMotion, discusses issues and concerns of those with amputations. Also publishes a youth e-zine for younger amputees.

National Amputation Foundation
www.nationalamputation.org
Founded in 1919, the NAF was first developed by and for amputee veterans. Since establishment, the NAF has come to serve civilian amputees as well. One of their programs offers peer support from independent amputees to recent amputees.

Arthritis
Arthritis Society of Canada
www.arthritis.ca
Provides information for those affected by arthritis. Content-rich website includes discussions of types of arthritis, tips for living well, programs and resources including ‘Ask the Expert’ and publications, resources for advocates, and local Canadian programs. Also provides an open forum and a section for kids.

National Institute of Arthritis and Musculoskeletal and Skin Diseases
www.niams.nih.gov/
NIAMS is focused on researching arthritis and musculoskeletal and skin diseases for cures, treatments, and causes. NIAMS shares its research with other scientists, doctors, and the public.

Cerebral Palsy
American Academy of Cerebral Palsy
www.aacpdm.org
AACPDM was originally focused on researching cerebral palsy and has since expanded to include research on other common childhood-onset diseases. Through research and education, they seek to discover treatments, preventions, and overall improved quality of life for people with cerebral palsy and related diseases.

United Cerebral Palsy
www.ucp.org
UCP disseminates information regarding lifestyles for people with or affected by cerebral palsy, including: education, employment, health and wellness, housing, parenting and families, products and services, sports, transportation, and travel.

US Cerebral Palsy Athletic Association (USCPAA)
www.uscpaa.org/
The National Disability Sports Alliance is the main association for information on competitive sports for people with cerebral palsy. This association has now added traumatic brain injury, multiple sclerosis, stroke victims, and others with physical disabilities. They support international, national, and local organizations.

Fibromyalgia
National Fibromyalgia Association
www.fmaware.org
Founded in 1997 by two women with fibromyalgia who felt that others with the disease weren’t getting needed information and support. Offers resources and community information, such as finding a support group, membership, advocacy, awareness, and patient stories.

Multiple Sclerosis
Multiple Sclerosis Association of America
www.msassociation.org/
MSAA’s mission is to enhance the quality of life for people with or affected by MS. They offer supports and services (finding support groups, networking, finding therapeutic classes), plus multiple publications about and for people with MS.

National Multiple Sclerosis Society
www.nationalmssociety.org/
The MS society serves those with MS by funding research and offering services and supports in all 50 states, including information for the newly diagnosed to those who have been living with it for much of their lives. Website has section on healthy living with MS, personal stories, treatments, and a library of information.

Muscular Dystrophy
Muscular Dystrophy Association
www.mdausa.org
Started in 1950 by concerned parents of children with Muscular Dystrophy, the MDA provides funding to research treatment for Muscular Dystrophy. Puts out multiple publications, including Quest Magazine.

Muscular Dystrophy Family Foundation: No Boundaries
www.mdff.org
The MDFF supports those with and affected by muscular dystrophy by providing supports and services on MD, including donation of adaptive equipment to families.

Pain
American Academy of Pain Management
www.aapainmanage.org
The AAPM has a membership of 6,000 and serves clinicians who help patients with pain issues through education, diagnosis, and treatment.

American Pain Foundation
www.painfoundation.org
Founded in 1997 to increase the quality of life for people who live with chronic pain through awareness and advocacy. APF provides several publications to provide simple, straightforward information about pain and pain management.

National Pain Foundation
www.nationalpainfoundation.org
This online community provides support and services through education and connections to patients, professionals, and family members of someone with chronic pain.

Parkinson’s Disease
Parkinson’s Action Network
www.parkinsonsaction.org
National grassroots advocacy group speaking on behalf of public policy issues. Also works with several government agencies to ensure continued research and funding support and passage of key legislation.

Parkinson’s Disease Foundation
www.pdf.org
”A leading national presence in Parkinson’s disease research, education, and public advocacy,” PDF has an especially content-rich website that includes hundreds of questions and answers, latest research findings, and a highly useful fact sheet.

Spina Bifida
Spina Bifida Association
www.sbaa.org
Founded in 1973, the Spina Bifida Association offers programs and services to increase the quality of life for those with or affected by Spina Bifida. This includes preventative treatments for expectant mothers. Website includes a marketplace and “Ask the Doctor” section.

Spinal Cord Injury
National Spinal Cord Injury Association
www.spinalcord.org
Established in 1948, seeks to improve the quality of life for people with Spinal Cord Injuries and their families. They provide a resource center which answers calls and emails and their peer network connects the newly injured with a positive peer who has been through a spinal cord injury as well.

National Spinal Cord Injury Information Network
www.spinalcord.uab.edu
Gives a multitude of information on spinal cord injury in the form of newsletters, pamphlets, fact sheets, magazines, and more. Also provides information on access and equipment reviews.

Stroke
American Stroke Association
www.strokeassociation.org
A division of the American Heart Association, the American Stroke Association increases awareness through education and promotes preventative health. Website has section for family and caregivers of stroke victims. Publishes Stroke Connection magazine.

National Stroke Association
www.stroke.org
Created in 1984, the National Stroke Association is a nonprofit organization with a mission to decrease the incidence of stroke through community outreach and education of victims and healthcare professionals. Publishes Stroke Smart magazine, a publication dedicated to the lives of those who have suffered a stroke.

Traumatic Brain Injury
Brain Injury Association
www.biausa.org
The BIA, founded in 1980, advocates for those who have sustained a traumatic brain injury (TBI) by raising awareness with the government and the public. The BIA has www.birf.info. The BIRF serves those with or affected by brain injuries in four areas: prevention, education, advocacy, and support. They provide support groups, a directory, camps, and various other services, including an extensive library that provides information to the public.

Visual Rehabilitation
American Council of the Blind
www.acb.org
Founded in 1961 to provide increased quality of life for people with visual impairment. Publishes the Braille Forum, which has a readership of about 26,000. Services include: scholarships to visually impaired, consulting, government monitoring, public education, and more.

National Federation of the Blind
www.nfb.org
At 50,000 members, the National Federation of the Blind offers vast services including several youth programs. Website provides description of products and technology, information geared toward multiple demographics including: employers, diabetics, seniors, students, professionals, family members, etc. Includes the National Organization of Parents of Blind Children.

Women’s Health
National Women’s Health Resource Center
healthywomen.org
This nonprofit organization provides health information for women based on up-to-date research. They partner with health care professionals and offer resources on a national, regional, and local level. Publish multiple condition-specific newsletters.

Orchid: Health and Wellness for Women with Disabilities
http://www.fpg.unc.edu/~ncodh/orchid/pages/index.cfm
Online magazine for women with disabilities. Orchid discusses the multiple ways to live a healthy lifestyle and how to have that lifestyle while living with a disability.

Womens Health.gov
www.womenshealth.gov
Government entity within the US Department of Health and Human Services. Offers multiple resources and information on women’s health such as how to talk to your doctor, domestic violence resources, eating disorder guide, and fliers on general healthy life practices.