Muscular Dystrophy: theFacts by Alan Emery is a comprehensive guidebook written specifically for people with muscular dystrophy and their families, or those facing the likelihood of a diagnosis. It answers the most frequent questions about how and why muscular dystrophy occurs, and how it will affect the life of a recently diagnosed child: exercise, physiotherapy, surgery, and the emotional effects of the diseases.
Professor Emery draws on his many years of experience treating patients to provide authoritative, yet compassionate advice for people living with muscular dystrophy. He describes different types of muscular dystrophy, its complexities, and its treatment options in comprehensible language, with minimum technical jargon. Its chapter layout makes it highly useful as a reference.
This book will answer your questions and prepare you for everything from visiting a genetic counselor onward; it even gives advice on schooling and career choice. Some may find the author's tone patronizing and strangely distant, or even arrogant.
Nevertheless, Muscular Dystrophy: theFacts is a valuable first book for individuals and families faced with the likelihood or reality of a muscular dystrophy diagnosis. Contains a full glossary, further information on societies and support groups around the world, and reliable internet resources. Highly recommended to patients, families, physicians, counselors, and researchers—no medical training unit should be without it.
Part of The Facts series of books summarizing mental and physical disabilities and the issues surrounding them.
Also recommended: Muscular Dystrophy in Children: A Guide for Families by Irwin M. Siegel and Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals by Dr. Charlotte Thompson.
Publisher: Oxford University Press, USA
Publish date: June 15, 2000
166 pages
ISBN-10: 0192632175
ISBN-13: 978-0192632173
