Founded in 1992, the National Fibromyalgia Research Association (NFRA) focuses on “education, treatment and finding a cure for fibromyalgia,” as well as raising government, medical and public awareness.
What is the National Fibromyalgia Research Association?
The NFRA provides funding for fibromyalgia research, offers physicians education and seminars about fibromyalgia studies, raises public awareness through fundraising events and products, and educates patients and the government about the effects of the disease.
Resources Available through the NFRA
Although a lot of the information available through NFRA is intended for medical professionals, the organization also provides a substantial amount of helpful material and resources for patients and their loved ones. For example:
What’s New – Covers new fibromyalgia treatment and medication findings, along with new research studies, events and conferences, publications, and medical professional and scientist biographies of interest to patients.
Fibromyalgia Awareness – Describes the fibromyalgia fundraising and awareness events NFRA sponsors,
Diagnostic Criteria – Provides a detailed description of fibromyalgia and a diagram of tender spots on the body affected by this disease, as well as an overview of side effects and the percent of patients who experience them. A great starting point for those newly diagnosed with fibromyalgia.
Central Nervous System – Offers reader-friendly information on topics such as “Neurological Connection to FM,” “Compare Symptoms,” “Cervical Spinal Stenosis,” and MRI Requirements. The detailed information provided in each of these sections is designed to help you manage the stress of living with fibromyalgia.
Treatment Options – Provides fibromyalgia patients and their families with additional information about treatment options, including medications, information regarding neurological exams, vitamins, and sleep among other topics.
Science – Describes information for those with fibromyalgia on current fibromyalgia research as well as opportunities to participate in medical studies. You can search here for information on specific topics related to fibromyalgia and browse the glossary of fibro terms.
Patient Resources – Links to fibromyalgia medical organizations, newsletters, videos, publications and more.
Fibromyalgia is a complex and complicated condition, and the more information you have, the easier it is to navigate. For more support, medical news, research, diagnosis or treatment options for Fibromyalgia, check out the wealth of resources available through the National Fibromyalgia Research Association.
National Fibromyalgia Research Association: Searching for a Cure