Posted on: Mon, Feb 18 2008 6:16 PM
Posted by: Barb1949 Posts: 130
i was wondering how many of you have artitus or osterpersoisis with your cp? i have both but so far haven't had any problems with either. i just had a bone density test done last one was done in 2000 and it came back that it was worse then the 2000 one was . i wasn't surprized because the foot doctor told me i had osterperosis when i fractured my foot a couple of years ago.
Curious Barb lol
Posted on: Tue, Feb 19 2008 10:53 AM
Posted by: Nightengale Posts: 687
I have osteopenia which is the mild step before osteoporosis. Not too seroius but I'm 31 and my bones aren't getting any younger. I'm on extra calcium and vitamin D, and my endocrinologist is chasing me around the hospital trying to get me to take medication for it. And she runs faster than I do.
Not sure if it's related to my CP though, since I have been walking and generally pretty mobile. It may be related to my thyroid condition. Or it just may be my luck.
I don't have arthritis. Yet. But I know there's still time.
Posted on: Wed, Feb 20 2008 11:09 PM
Posted by: Sarah77 Posts: 15
I have osteoporosis and have been told it's a direct link to the seizure medication I've been on since I was an infant. Being that I'm now 30, it kind of gives you an idea just how bad its getting. I've had 3 bone densities done over the last 3 1/2 years, and it seems its getting worse before its getting better. There are several medications out there - Actonel & Fosomax are pretty popular. Unfortunately for me, both made me violently ill. I'm now on 2 medications that I'm hoping will help. The first is Fortical, which is a nose spray. The second is called Forteo, which gets injected (using a pen needle - similar to what diabetics use). I'm also trying to take Calcium & Vitamin D as well.
Hope this helps!
Sarah
Posted on: Wed, Feb 20 2008 11:52 PM
Hi Sarah,
Thanks for the email. i can't take calcium because i have kidney stones. Right now i am on Evista. i've been bad about haveing bone density tests done so last one was in 2000 then one a few weeks ago is the only ones i've had. i have another question do you have any pain ? Are you stooped over? So far i can't really tell much of a difference in me. But then i am so used to looking at me others probably see a big difference where i don't. i am so sorry you started having problems so early in life.
Barb
Posted on: Sat, Feb 23 2008 1:30 AM
Barb-
I have to be honest - I'm always in pain. Whether that's from the osteoporosis or just CP related issues, I don't know. I have a feeling it's more from the CP itself though. I can tell you I tend to break bones much more easily. I just took a spill last month that left me with 2 broken ribs! Ouch!! To answer your other question, no. I'm not stooped over. I really can't see much a difference in my physical well being - I live with it every day, and I think if you were to ask my family & certain friends, they'd scratch their heads too. It has been a little difficult for my friends here in San Diego though. I moved back last July after living in AZ for 9 years. It's been a shock to some of them.
Anyway, I'm sorry it took me a couple of days, but again - I hope this helps.
Take care,
Posted on: Sat, Feb 23 2008 1:35 PM
Hi Sarah ,
thank you for your note. Do you take any calicum for the osterperosis? So far i haven't had any pain but i am starting to have some in my hands but i think its artitus i think from crocheting. i am crocheting afghans right now.
barb
Posted on: Sun, Mar 16 2008 6:02 PM
Posted by: xstitcher Posts: 1
Hello, I just turned 50 in Feb. I have CP and now the bone density showed I have osteoporsis. I was put on Actonel, so far have had no side effects from it. I am however, in constant back pain. The doctors say they can't find anything wrong with my back but my husband noticed I have a vertebra out of place on x-ray..and my hip did not appear to have any cushon between the bone..I have muscle spasms when I go to bed. I ocassionly take a muscle relaxer for the spasms and sometimes they help. I have always been told that CP doesn't get worse as you age, I was wondering if any of you feel that it does indeed wrosen with age.Since I use crutches, I believe through the years I have developed arthritis in my shoulders..but the doctors say no..but to me the pain is real. Thanks for listening. Replies are welcome
Posted on: Sun, Mar 16 2008 6:08 PM
What doesn't worsen with age is the damage to the brain. That is set before age 3.
However it is not uncommon for people with CP to develop new pain, mobility problems or arthritis as we age. Partly this is because we use our bodies to move in different ways than non-disabled people. Most of the research on CP and aging is from Japan and Candada.
As far as if you have arthritis in your shoulder, have they done x-rays of your shoulders?
Most Active Users
These are the users who are most active on our forums.
rainey826
sandyfreytag
squabwithfibro
Lynn
TriDog