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Disaboom » Health » Traumatic Brain Injury » looking for advice

looking for advice

Last post Tue, Aug 12 2008 8:41 AM by kim. 31 replies.


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  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink looking for advice

    • Posted: Sun, Feb 24 2008 4:59 AM

    • My 25 year old daughter  was rushed into hospital with a fractured skull on Thursday night

       

      she was transferred to a neuroloigal ICU some hours later and the next morning had a craniology,

      which we are told has saved her life in the short term

      after another crisis with her lungs she is now classed as severe rather than critical and we are told the long term prognosis may be very bad

       

      it is the right side of her head that is afftected and she is being kept in PTA till the brain swelling goes down

       

      what I'd like to know - we are braced for the worst -

      is if it is not the worst - if my daughter pulls through this - what we are to expect and what can we do to help her?

       

       

       

       


    • Filed under: understanding, Traumatic Brain Injury
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  • Jessie Jessie
    Posts: 127
    • permalink Re: looking for advice

    • Posted: Sun, Feb 24 2008 8:25 AM

    • I have no information that would help with your situation, Sumbossdodger.  I just wanted to let you know that my thoughts are with you and yours.

       

      Ms. Jessie 


    • I'm not dysfunctional, my legs are.
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  • Deacon Patrick Jones Deacon Patrick Jones
    Posts: 58
    • permalink Re: looking for advice

    • Posted: Sun, Feb 24 2008 8:28 AM

    • Dear Sumbossdodger, Aye, Docs are notorious for giving the worst case scenario and not giving the range of possibilities. I run an email support group for TBIers and caregivers (that would be you), which you are welcome to join. It has a number of caregivers who have been in much eht same situation as you are now -- and many of their TBIers are up and about and doing amazing things. We'd love to have you join us: http://health.groups.yahoo.com/group/TBI-Together/ In the meantime, you, your daughter, your family and her doctors are in my prayers. Blessings, Patrick

    • Reply Contact
  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Tue, Feb 26 2008 9:47 AM

    • Thanks for the replies and I'm applying to join the group

       

      they tried to reduce the meds yesterday to see if she would 'wake'

      she did but was very agitated - so they resedated her and have added another drug because she may have alcholohl / nicotine and other withdrawals kicking in

      but before she went out I'm convinced and so was the ICU nurse that she knew my voice and her brothers

      she also nipped me and it was deliberate lol

       

      we have a little hope - it was awful to see her in the agitated state though


    • Reply Contact
  • mcjane mcjane
    Posts: 232
    • permalink Re: looking for advice

    • Posted: Tue, Feb 26 2008 10:35 AM

    •  

        When I was in the hospital it was the psychiatrist who gave me the best medical advice..he said "Nobody can tell you anything because they don't know."  The body is a wonderful and  mysterious thing...it also has a self-healing mechanism.  Doctors predict the worst so they can't be held to blame, and they hesitate to offer hope for the same reason.  My thoughts and prayers are with you as you go thru this most difficult time.  I'm sure you will find much comfort and solace and fellowship here at Disaboom.  I know I have.  Shalom


    • Reply Contact
  • Jessie Jessie
    Posts: 127
    • permalink Re: looking for advice

    • Posted: Tue, Feb 26 2008 10:56 AM

    • Wishing you and yours well, Sumbossdodger! :)

       

      Bless you,

      Ms. Jessie 


    • I'm not dysfunctional, my legs are.
    • Reply Contact
  • robinr robinr
    Posts: 6
    • permalink Re: looking for advice

    • Posted: Tue, Feb 26 2008 1:11 PM

    • I WILL KEEP YOU IN THOUGHTS AND PRAYERS


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  • Celeste Celeste
    Posts: 18
    • permalink Re: looking for advice

    • Posted: Tue, Feb 26 2008 1:48 PM

    •  

       Your Daughter and her loved ones are in my prayers.


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  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Wed, Feb 27 2008 5:01 PM

    • Bit of progress - well a lot really

      she's off the breathing machine and on HDU ... she's opening one eye slightly

      and I'm getting the impression that there's someone at home

       

      I asked her to squeeze my hand this afternoon and she did

       

      her lips are terribly chapped and her eye matted - and she keeps putting her head (injury side) on the bed rails

      I keep wondering if there's anything practical I can do to help her be more comfy

       

      gentle massage of her hands / feet maybe ?

       

       


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  • mcjane mcjane
    Posts: 232
    • permalink Re: looking for advice

    • Posted: Thu, Feb 28 2008 8:08 AM

    •  

        SO GLAD to hear your daughter has made progress.  A bit of honey on her lips would help with the chapping.  Tell her gently where she is and what happened to her.  Hand holding is always a comfort.  Be thankful she is young and resilient!  What is HDU?


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  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Thu, Feb 28 2008 9:52 AM

    • It seems to be a comfort to her

      HDU is High Dependency Unit

      it's a step down from Intensive Care Unit

      and the visiting is now restricted to 2 sets of 2 hours daily

       

      I've been told to pace myself as it will be a long haul they say and so i'm here at work today

      instead of the hospital, it feels weird and selfish but then I have to get the pennies in, I'm self-employed so if I dont work we're in trouble

      My husband is disabled and waiting on more knee surgery and my son's getting married end of April - they need me too

      My son had a very well paid job in the army but not so much wages now he's back in civilian life - he's a salesman

      his fiancee is lovely and has been a total rock so far to me with transport and other little kindnesses

       

      so am still on auto pilot _ I didnt sleep - laid awake thinking REALLY stupid things like will Jenn need a single bed or a double

      and what colour curtains should I get her room and will we need a stannah stairlift

      for crying out loud ...


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  • Ralf Ralf
    Posts: 2
    • permalink looking for advice

    • Posted: Sat, Mar 08 2008 1:57 PM

    • Hi, I'm sorry to hear you and your family are going through this situation with your daughter. Back in Dec 1989 I had a motorcycle accident. I had a head injury among other injuries. I was transferred to a rehab center. In my case, it took 3 months for the doctors to release me, going through speech therapy, vocational therapy an physical therapy. My family went through a lot not knowing what was going to happen to me or my outcome at the end. But All I can tell you is to give her all your support and your love. And just be understanding. I don't know the degree of brain damage that she has, but the therapy works. Nowadays they have computers systems that make different parts of the brain work. They know what they are doing. Let me know if I can answer some of your questions from a patient point of view. I wish all of you a prompt recovery.

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  • Ralf Ralf
    Posts: 2
    • permalink looking for advice

    • Posted: Sat, Mar 08 2008 2:18 PM

    • Oh, and I forgot to tell you I squeezed my dad's hand as well while i was in a coma. so that's a good sign. he said to me "if you can hear me, squeeze my hand". And he said I did, of course I do not remember. I had just turn 21 a month ago. Best of luck. She is young and strong. she will be ok.

    • Reply Contact
  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Sat, Mar 08 2008 3:01 PM

    • Bless you for that

      She's had pneumonia and has MRSA in the left knee and is coming round very agitated

      but hey ho she's alive and on the mend ...

       


    • Reply Contact
  • shellGVchick shellGVchick
    Posts: 1,236
    • permalink Re: looking for advice

    • Posted: Sat, Mar 08 2008 3:15 PM

    • Sumbossdodger, I'm so sorry to hear about your daughter, and my thoughts and prayers are with you all.

      I'm sorry I don't have any first hand experience with any of what your going through. Here you are seeking advice and help and it sucks for me, I wish I had some magic advice etc.  You are doing what any great mother would though, your right by her side, she knows she isn't alone there.  I wish you and your daughter the very best!

       

       


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