Disaboom.com Connecting the millions touched by disability
Sign in | Sign up
Search
  • health
  • living
  • community
  • jobs
  • marketplace
  • Blogs  |
  • Groups  |
  • Galleries  |
  • Chat Rooms & Discussions
Text Size
A
A
A
 
Disaboom » Health » Traumatic Brain Injury » looking for advice

looking for advice

Last post Tue, Jun 10 2008 9:09 AM by sumbossdodger. 27 replies.


Page 2 of 2 (28 items) < Previous 1 2
Sort Posts:
  • madmike madmike
    Posts: 21
    • permalink Re: looking for advice

    • Posted: Sat, Mar 08 2008 4:44 PM

    • Sorry to here about your daughter! I will not give you any advice except to pray. My son fell fourty feet and was in a coma for 45 days. All the time the doctors told us he is young and that was it. That was four years ago. Today would not know he ever got hurt. So pray and be there for her god bless.


    • Reply Contact
  • hollie hollie
    Posts: 7
    • permalink Re: looking for advice

    • Posted: Wed, Mar 26 2008 2:51 PM

    •  

      I can only suggest to ask as many questions as you can to the doctors. Also take notes & keep a journal.   My brother was in an accident Thanksgiving of 2006 he was 27 at the time and the doctors said that age is on his side.

      Before you leave the hospital find out about Therapy you need to know up front & get as much information front the Neurolist (sp) you can. 

      I dont know what type of insurance you have.  My brother didn't have any so he is now on the state funded. (medicar) they will only pay for 1 - 2 sessions a week for 6 weeks and then they have to reevaluate him. (theropy is for physical therapy only no speech or occupational.

      He is unable to use the left side of his body right now but is getting better.  Sunday we put a brace on his left leg and he is able to walk with assistance.

      Remember all cases are different.

      Be patient, pray & I wish you the best.

       

      It is a long road and I hope yours has less curves and bumps then ours did.

       

      Hollie


    • Hollie
    • Reply Contact
  • Bevhornby Bevhornby
    Posts: 4
    • permalink Re: looking for advice

    • Posted: Wed, Mar 26 2008 4:13 PM

    • hope things are improving, try stroking her ear gently around the perimeter rythmically.. very relaxing and reflexes can it is said be stimulated here..nothing to lose everything to gain and a gentle excercise for you both love bev X


    • Reply Contact
  • Sweetpssweeterlife Sweetpssweeterlife
    Posts: 5
    • permalink Re: looking for advice

    • Posted: Wed, Mar 26 2008 7:57 PM

    • My heart breaks hearing about your daughter. I have a traumatic brain injury from an accident almost eight years ago. First, family support is so important. Don't ever think you are not doing enough by being there for her, praying for her and taking care of yourself so you will be able to continue to help her throughout her recovery. Don't measure her recovery in days. It will drive you crazy. Time and medical support that specializes in TBI are vital. She is still the daughter you love, even if you notice significant changes in her. I have found that different is not always bad. One thing I have learned is that every single TBI is different and doctors don't know as much as you hope they do when faced with TBI. But, that being said, Ythere is so much help out there now that increases every day through research. Keep informed, but most of all, keep the faith. our family is in my prayers. Pam sweetpssweeterlife

    • Reach out. You never know who might grab on!
    • Reply Contact
  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Thu, Mar 27 2008 12:00 PM

    • Thak you all so much

      she's making a very good recovery but has Post Traumatic Amnesia so ever yday is like that film where they start all over agin from the beginning

      she's not much movement down the left side and has had real aggression problems but she's alive and getting there

      we're in the Uk so NHs is paying medical bills - dunno about the future and rehab though as yet


    • Reply Contact
  • hollie hollie
    Posts: 7
    • permalink Re: looking for advice

    • Posted: Thu, Mar 27 2008 2:18 PM

    • The aggression will get better. My brother did alot of thrashing/ throwing him self around. Once they found the right medication for the trama it subsided.

       

       


    • Hollie
    • Reply Contact
  • Daniel502 Daniel502
    Posts: 423
    • permalink Re: looking for advice

    • Posted: Thu, Mar 27 2008 3:00 PM

    • Best wishes for a full and speedy recovery for your daughter. 


    • Reply Contact
  • debbylou debbylou
    Posts: 45
    • permalink Re: looking for advice

    • Posted: Thu, Mar 27 2008 3:15 PM

    • Hi from Grandmadeb. Only the doctors can answer your questions. But, the anxiety you are feelng must be uncomfortable to deal with. I hope you have someone to talk to and give you emotional support.

      My parents went through this when I was smashed in an auto accident. So I can imagine how you are feeling. It's one day at a time. I'm sure you are talking to her and rubbing her arm or holding her hand. Your touch will help her heal.

    • deborah roedemeister
    • Reply Contact
  • LeiahDrake LeiahDrake
    Posts: 36
    • permalink Re: looking for advice

    • Posted: Thu, Mar 27 2008 3:45 PM

    •  

      I am really sorry to hear about your daughter. I have a friend that ended up with seizures from something simular. Other than that, there were no other effects that showed up. Keep praying and having faith. The things that I have seen my husband go through and some other of my family members, I have come to really believe that everything happens for a reason.  We may not understand why at first, however, in the years to come, it will become quite evident. 

    • Reply Contact
  • jimmyb jimmyb
    Posts: 4
    • permalink Re: looking for advice

    • Posted: Sun, Mar 30 2008 4:28 PM

    • Here are a couple things to keep in mind: 1) Your daughter may not seem like the same person she was before the injury. She will act differently and have different LIKES and DISLIKES. 2) Your daughter will (and this comes from a man who incurred a SEVERE TBI) need to discover who she is INDEPENDENTLY. She will have what appears to be a "checklist" in her head. After I came home from the hospital, I HAD TO GO THROUGH THIS CHECKIST. It is basically a matter of "learning who the heck is IN THIS BODY OF MINE" type thing. My advice to you....LET HER GO THROUGH THIS CHECKLIST. Just make sure that NONE OF THE THINGS on it will lead to PROBLEMS, mentally-physically-LEGALLY! My name is  jimmyb, and if ANYONE has any additional questions, Email me at    jimmyandjazzy@yahoo.com.     AND READ THE BLOG THAT I STARTED TODAY!


    • jimmyb
    • Reply Contact
  • briandropkin1972 briandropkin1972
    Posts: 1
    • permalink Re: looking for advice

    • Posted: Mon, Jun 09 2008 11:06 PM

    •    hello my name is brian dropkin, i suffered a severe head injury in 1989. i was playing football at highschool and in a practice was hit and suffered a subdurral hemmatoma. i was in coma for 6 1/2 weeks and suffered a stroke, i lost half of my vision in both of my eyes to the left.when i came out of my coma i was parilized on my whole right side. thanks to my mom and dad i had 7 years of thearapy 8 to 9 hours a day. intense thearapy. my dad is a court reporter and knows the law pretty well. every 4 to 5 months during thearapy the insurance would say no more thearapy. well my dad had a lawyer write a mean letter saying if you dont pay, we will sue. get her as much thearapy as you can for your daughter. please be there when she gets depressed and asks why me. its going to happen i guarentee it. i still get thearapy every 6 months for my right side. my whole family has been supportive of me and i am doing great because of them.expect to make many sacrifices for your daughter, my parents did. because of them i am doing great. i now live in my own house with two other male adults with dissabilities and i am working with dissabled adults, and love it. please email me at dropkinb@yahoo.com. i live in phoenix arizona. dont hesatate to email. your new friend brian dropkin


    • Reply Contact
  • slappy slappy
    Posts: 29
    • permalink Re: looking for advice

    • Posted: Tue, Jun 10 2008 7:59 AM

    • Yes what u can do when she survives...is to be there for her..let her know that u r there n that u love her very much,that will mean a lot to her...hold her hand,talk to her,hug her,LOVE HER,just like you would with any other child of yours.

      my and my wifes prayers r forever with you...please keep us informed ok.....if u need a place to vent come to general chat,u will find a bunch of very understanding ppl n there including myself,(slappy) n my wife,(connie50),as well as a whole lot of others.

      hope to c u soon


    • Rev.Dr.sam frodge
    • Reply Contact
  • sumbossdodger sumbossdodger
    Posts: 9
    • permalink Re: looking for advice

    • Posted: Tue, Jun 10 2008 9:09 AM

    • Big Smile I'm typing this with my daugher at my side - she's just been discharged from hospital

      she's going to be in an assisted flat - waiting to go back into hospital for a metal plate to replace her skull

      they can't put the skull back in as it was too badly damaged ...

      She's slurring her speech and her head's a fright to look at but she's walking well and reading all the posts I put about how she was ...

       

      thank you all for your prayers


    • Reply Contact
Page 2 of 2 (28 items) < Previous 1 2
rss feed

 



 

Home | About Us | Terms of Use | Privacy Policy | Contact | Advertise With Us
left footer image
right footer image