Back Pain

Posted on: Tue, Feb 26 2008 12:24 PM

Posted by: robinr Posts: 6

I CAN DEFINATELY UNDERSTAND HOW YOU FEEL ABOUT THE BABY/

I HAVE A BEAUTIFUL 5 YR OLD GRANDSON

 A BEAUTIFUL 20 MONTH OLD GRANDDAUGHTER THAT I CAN NOT  LIFT OR GET IN THE FLOOR AND PLAY WITH/

I HAVE ALWAYS BEEN AN ACTIVE HANDS ON GRANDMA AND I LIVE FOR THAT

IT DOES FEEL LIKE IT HAS ALL BEEN STRIPPED AWAY

CHRONIC PAIN AND OR FATIGUE WHAT EVER THE CAUSE IS LIKE NOTHING I HAVE EVER EXPERIENCED

ALONE AND HELPLESS IS THE ONLY FEELINGS I HAVE RIGHT NOW

ANGER IS AN UNDERSTATEMENT/IF THE DOCTORS HAD OF LISTENED TO ME MONTHS AGO I BELEIVE THINGS WOULD BE DIFFEENT.

YOU ARE NOT ALONE/WE ARE ALL HERE/NO ONE BUT US KNOW HOW WE FEEL

Posted on: Wed, Feb 27 2008 2:28 PM

Posted by: pegster08 Posts: 6

Thanks for the reply. My youngest grandson is 4 months old and already he is too heavy for me to pick up and carry. I understand completely the feelings you are having. I am pass the anger stage, but I am fighting depression. I have to spend most of my time in bed and just at the time in our lives when I thought my husband and I would be able to travel, etc. I have to go straight to bed after an outing to the grocery store. (That's on a good week when I feel like doing that.) I am trying to hold on to my faith.

Posted on: Wed, Feb 27 2008 7:18 PM

Posted by: shellGVchick Posts: 1,261

Hi Pegster and Robin,

Hang in there you two.  I know it's so frustrating having to give into pain and have it ruin your plans.  It stinks. I used to plan everything, and if I didn't and I wanted to do something I did.  Now to plan the most important tasks around the amount of pain your in stinks. Pegster I've been there. I'll have a giant grocery list, and go up and down 2-3 aisles and it hits you out of no where to the only thing registering in my brain is get out of the store and get home. It's hard not to be so down on yourself and kick yourself for not being able to do more.  Pushing yourself some times through horrible pain can do even more damage.  Just be gentle on yourself, and pamper yourself when those horrible moments come up. If you can't get things done, that's okay, they can wait a day or two. Some times for myself just doing absolutely nothing is what it takes for me to get stronger. That means no cooking, doing dishes, laundry, running all over town doing errands, etc. For me some times I don't even bother getting dressed, showered, clothed, the entire make up and hair thing. There are days when that 2 hours is too much. So it's okay to just stay in your pajama's and take care of yourself.  Cuddle up with a blanket, and a cup of tea or what ever it is you do and watch a movie or something.  Some times for me I'll find the comedy channel when my spirits are down, and I have to tell you even on closed captioning the jokes comes through lol.  It sounds to me like your both stronger then you give yourself credit for.  Hang in there. Just take things one day at a time as they say. Some times for me it's an hour at a time.
God Bless you both!

Posted on: Wed, Feb 27 2008 7:30 PM

Posted by: shellGVchick Posts: 1,261

PEGSTER  I'VE HAD SYSTEMIC LUPUS (SLE) FOR ALMOST 5 YEARS NOW.  IT TOOK DUMPING 4 DOCTORS TO FIND THE PERFECT ONE I HAVE NOW.  I KNOW IM IN PAIN FROM THE MINUTE I WAKE UP IN THE MORNING, UNTIL I GO TO BED AT NIGHT. WINTER IS THE ROUGHEST FOR ME WITH IT.  IN THE MORNINGS MY HANDS WON'T OPEN, RUNNING WATER OVER THEM DOESN'T EVEN HELP ANY MORE. I HAVE TO TELL MY HUSBAND TO GRAB A HOLD AND JUST BASICALLY PRY THEM OPEN.  HE ALWAYS SAYS HE DOESN'T WANT TO HURT ME, BUT THEM STAYING CLOSED HURTS WORSE.  MY MUSCLES AND JOINTS ACHE ALL THE TIME, I CRACK ALL THE TIME WHEN I NEVER USED TO.  EXCEPT FOR MY KIDNEYS, THE REST OF MY ORGANS ARE STILL HOLDING THEIR OWN.  I HAVE THE ISSUES OF GETTING OUT OF BED, AND IT'S HARD TO ACCEPT SOME TIMES I HAVE TO JUST DO NOTHING.

IF YOU EVER WANT TO TALK ONE ON ONE FEEL FREE TO EMAIL ME ANY TIME.  MY EMAIL ADDRESS IS   SHELLGVCHICK@YAHOO.COM  I'M THE ONLY ONE IN MY PERSONAL LIFE WHO HAS LUPUS, I'VE GOTTEN A LOT OF SUPPORT FROM PEOPLE ON DISABOOM WHO ARE GOING THROUGH IT AS WELL.  IT'S TOUGH TRYING TO TALK TO SOMEONE WHEN THEY CAN'T EVEN GRASP WHAT IT'S LIKE.  ANY TIME YOU WANT TO TALK IS OKAY WITH ME.

HANG IN THERE.

Posted on: Wed, Feb 27 2008 7:50 PM

Posted by: Anne Lowry Posts: 9

I know what it means to feel alone in your pain.  It's so frustrating when others don't "get it".  I have MS, live alone, have no family nearby, and most of my pr-MS friends have moved on in life.  It's easy to get down and feel alone out there.  Sometimes, I wish others could just live one day with the pain and limitations I have, just to see how hard it is to get up in the morning, shower, dress, and have some kind of meaningful life.  Well, that just isn't going to happen.  Others just don't "get it" and bably never will.  I found to set my own pace, my own expectations of myself, to let go of what my life used to be and to just accept that people aren't going to "get it".  It's so hard to accept these things, but you are not alone.  There are other out here who understand.  I'dlove to have a daughter to tell that Mommy can't play!  While your little girl might not understantd what's going on with you, she knows you love her and will grow to know that you are there for her in other ways.  If you ar't seeing a pain management physician, I'd strongly suggest you look into finding one.  Through trial and error, my doc and and I have found a suitable combination of medications that work to keep me moving.

Posted on: Fri, Mar 7 2008 2:21 AM

Posted by: soupy Posts: 1

HEY JEEPERS,

  I HOPE THINGS ARE GETTING BETTER FOR YOU. I AGREE WITH YOU ABOUT THE DRUG STORES NOT TO MENTION THE ANAL DOCTORS OUT HERE THAT ARE IN FEAR OF WRITING WHAT YOU NEED TO LIVE EVEN A HALF WAY DECENT LIFE. IT IS AN UPHILL BATTLE, OR THAT HAS BEEN MY EXPERIENCE ANYWAY, I HAVE TO TAKE SOME REALLY STRONG PAIN MEDS JUST TO BE ABLE TO WALK, WITHOUT IT I WOULD HAVE ALREADY DONE SOMETHING THAT ALOT OF FOLKS WOULD NOT UNDERSTAND. BUT THE PAIN IS SO GREAT THAT THERE IS NOWAY I COULD SURVIVE IT, NO WAY. I TRY TO KEEP MY MIND OCCUPIED WITH SOMETHING SO I DO NOT THINK ABOUT THE PAIN SOULY, AS THAT ALWAYS LEADS TO SEVERE DEPRESSION TOO. NOW AS FAR AS YOUR CHILD GOES, TRY EXPLAINING IT TO HER IN A MANNER THAT SHE WILL UNDERSTAND, I HAVE FOUND THAT KIDS ARE VERY ADAPTABLE AND ONCE THEY UNDESTAND THAT YOU ARE LIMITED IN WHAT YOU CAN DO WITH THEM PHYSICALLY, THEY WILL APPROACH YOU WITH THINGS TO DO WITH THEM THAT IS FUN FOR THEM AND VERY SATISFYING AND FUN FOR YOU TOO! THERE IS ALOT OF THINGS YA'LL CAN DO TOGETHER, JUST USE YOUR IMAGINATION AND YOU WILL FIND A HAPPY MEDIUM. BEST OF LUCK WITH WHAT YOU ARE DEALING WITH AND I HOPE IT HELPS SOME.

SOUPY   

Posted on: Fri, Mar 7 2008 9:39 AM

Posted by: CartenCasey Posts: 2

Hi,

 It gets better, you just have to get used to some things.  Its really hard, its taken me 7 years to finally get it in my head.  I cant do things like I used to, I have to ask for help. 

Its hard, but when you get the right medications, doctors and physcial thearpy, it gets easier.  I found this site and its great, you are not alone .  Sometimes just talking to someone that know how you feel and understands makes it alittle bit better.  Everyone gets down, but with us, its a little bit different.  It harder to deal with the pain and trying to live a normal life.  Ok, in our cases as normal as we make them. 

 I personally wouldnt worry about people or the pharmacy.  Your in chronic pain you need them to have a normal life.  There is no reason for you to be in such pain that you have no life.  I have to use crutches and it never fails, some one always ask if I been in an accident or some thing.  I just smile and sometimes say yes or tell them I have O.A., depends on my mood.  Dont worry about other people, you take care of yourself first, and little by little you find what you can do with out over doing it.  There are days I dont hurt so I dont have to take the pain killers but I take my other meds, and those are the days that I clean the whole house.  I may cook several meals for the freezer and do things that I wanted to do but was in too much pain.  Then there are days like today, that the painkillers arent working, and I know I have to be taken it easy.

Just have to learn what your body can cope with, I understand with a 2 yr old its even worse.  Try to do things with her that makes it comfy for you.  My husband is constantly overprotective.  Its drives me crazy!!  You will cope, and you will find out about your new body.  It just takes time.  My goodness, I think I wrote a novel.  I have to say, I was feeling pretty down myself and I feel a little bit better hoping I helped you even just a little

Good Luck

Posted on: Fri, Mar 7 2008 10:43 AM

Posted by: zgailgoodman Posts: 81

HI by now you see how much support you can get from the people at disaboom.  People just like yourself.I encouraga you to come to the disaboom chat room.  Just click on community then chatrooms and its at the bottom of the page.  Most times people are in main chat but sometimes tha chat gets full so you go to chat #2.  Tonite Friday we are having a special chat presentation at 7 pm in the health chat.  two members will start it off.  One is a nurse and the other is a dr.  Both with disabilities.  Come to the chat rooms and you can even make friends.  Many of us come on a regular basis.  Its busy between 6-9 est.  But you will also find people there during other hours as long as you can type you;ll have people waiting for you.  I go by Z and I hope to see you in the chat room!!