Last post Mon, Apr 14 2008 10:37 PM by Bernadette. 6 replies.
I was diagnosed with Limb-Girdle MD at age 14, even though I was born with it.
I met my hubby at age 22 and we married a little over a year later in 1988. I Thank God every day for giving him to me. The fact that he looked past my disability and accepted me for who I am shows what kind of a person he is. We have a healthy 18 year old daughter.
And if I didn't realize how much he cared for me before, 2007 - now has definitely shown me. I was diagnosed with Ovarian cancer in Feb.'07. Went through 6 chemo treatments, found out that I was cancer-free Aug. 15,'07, and have been cancer-free ever since.
I always said my MD wasn't going to get me and I definitely wasn't going to let cancer get me either.
I just try to keep a positive attitude on things even though I may get frustrated at times.
Hi Dodie,
My name is Jackie, I'm 43 and was diagnosed with LGMD when I was 20, but I knew I had it before being diagnosed. Out of 6 kids, 5 of us have LGMD. Coincidently my mom's name is Dody (short for Dorothy). Your message was very inspiring. I'm happy that you have been cancer free, I can't imagine having to deal with that with the limitations of the LGMD.
I wish you all the best. I't so nice to hear a positive person discussing their blessings. YOU GO GIRL!
Thanks for the welcome!
That is a coincidence. My name is pronounced the same as your mom's. Some people think it's pronounced Dottie, but nope.
My sister & I are the only kids in my family. She's healthy. I don't know of anyone in my family history with MD. Guess I was supposed to be the unique one.
Being dealt cancer on top of having MD wasn't an easy thing to live with, but I just kept my positive attitude and stayed strong "mentally" and I believe that's what helped me survive.
Hope you're health is good.
Thanks for inquiring about my health. So far, I can't complain. I've had a few stumbles along the way but nothing serious (Thank GOD). I too have been blessed with a great husband, no kids but I do have a yellow lab who is like our child.
Staying mentally strong is what I strive for daily. It's not easy, but like I try to do - take one day at a time-. I wish you continued success with your health.
Take care & God Bless,
Jackie
Congrats on having a great husband too.
There aren't many out there that would accept us with our disabilities.
A pet is a good child to have.
We had to have our 16yr. old dog put down a month ago because of cancer and arthritis. It was so hard to do. Now we have 1 cat inside and 2 cats and a dog outside.
Thanks for the wish for continued success with my health. I'm just hoping the cancer never comes back. I know that my MD will keep getting worse over time though and I have to accept it.
Take care & Have a nice day!
Thanks for sharing your story. I find it helpful and inspiring to hear about other people's situations and their will to fight. I'm 25, and just diagnosed with a mitochondrial disease. It makes me have muscle symptoms similiar to lgmd. My symptoms also started several years ago, although I just never mentioned it until recently. I'm in med school to become a doctor and have made the resolve to remain positive and strong, as well. We are all in this together, fighting side by side!
hugs,
Louann
What a nice way to reach out to others, my name is Bernadette I am 34 and have had LGMD since birth. I am the youngest of 7, 3 of us have this. I consider my disease a blessing, I feel It has made me stronger, I have had to prove myself a little more, and never felt sorry for myself. Dodie, I think It Is wonderful that you have beat the cancer, and that you have a wonderful husband by your side.
