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Disaboom » Community » For Caregivers » Carers/Caregivers message board/forum

Carers/Caregivers message board/forum

Last post Sat, May 03 2008 5:52 AM by TonyRhodes. 14 replies.


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  • TonyRhodes TonyRhodes
    Posts: 6
    • permalink Carers/Caregivers message board...

    • Posted: Tue, Mar 11 2008 11:07 AM

    • My name is Tony and have had over twenty years experience as a carer, since my role as a carer ended in 2006 i have gone through many phases in my life, deppression, physical illness, debt, lots of things.

      During my role as a carer i realised that carers/caregivers were not given the recognition that they deserve by society or the government, i wanted to try and change that.

      I joined many groups, some were ok, some were not, i decided to start my own group, The National Carers Forum www.nationalcarersforum.co.uk  i run this with my wonderful fiancee who is a carer and has been for twenty odd years also, i met her through a carers group, we have not been going that long but we have a good membership that is growing all the time, we even have a few Honary Celebrity members.Our place is a place to make friends, find out about thins such as benefits, equipment, campaigns, hobbies, basically a place to just make friends who are in a similar position.

      Anyone who wants to make new friends etc will be made more than welcome, we understand the problems that carers/caregivers have to go through, we hope to see you soon.

       

      All the best to Everyone Tony  www.nationalcarersforum.co.uk


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  • shellGVchick shellGVchick
    Posts: 1,261
    • permalink Re: Carers/Caregivers message board...

    • Posted: Tue, Mar 11 2008 1:52 PM

    • Welcome Tony! Your right care givers do not get the recognition that they deserve.  I work with disabled kids and adults and some can't live on their own without a care giver or two.  They do mostly every thing for the client and I know it's for very little pay. Even those who are just caring for a loved one on their own it's a lot of work and very stressful.  I think it's great to start something like you have. Yes

      This site has a wide variety of disabilities and illnesses, every one is so friendly and supportive.  Glad you found us. Smile


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  • TonyRhodes TonyRhodes
    Posts: 6
    • permalink Re: Carers/Caregivers message board...

    • Posted: Tue, Mar 11 2008 2:48 PM

    • Thanks for the warm welcome, yes this site looks very good indeed, our site is very small in comparison but it is growing, we have many people who care for loved ones with many ailments/disabilities on our site and they find the place a safe haven where they can express their concerns, i shall look forward to looking more closely at this site when i have time, thanks again for replying to my post.

       

      All the best Tony  www.nationalcarersforum.co.uk


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  • clive clive
    Posts: 3
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 10:26 AM

    •  

      As a Carer I do not want someone that is not a Carer speaking on my behalf, kindly tell me why I should take you seriously.

      Also tell me why your forum shares peoples personal details with OTHER forums please

       

       


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  • PaulaH PaulaH
    Posts: 2
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 3:48 PM

    • As usual Mr  Arnold is using serious forums to air his personal grievances and disrupt a reputable forum.

       His strange habit is to join our forum www.nationalcarersforum.co.uk under false names, he then removes 'copyrighted' articles to put on his own messageboard and then post vile insinuations about other carers.  We have removed him on several occasions, however to 'flush him out' we set a little trap - this is the screen capture you see above.  He then proceded to waste the whole of the Easter holidays trying to discred it us despite the fact that we actually posted another thread admitting it was a set up to catch him out (of course he won't post that on here)

      His own board has been closed down on several occasions due to complaints from numerous other carers, he has no regard for former carers - when the person you care for dies then you're dumped as knowing 'nothing about caring', he's prone to banning members who disagree with him or who support genuine Carer charities and he has no respect for the elderly - our malnutrition petiton has been rubbished all over the internet even though ours is a genuine No. 10 petition not some US petition where half the names are anonymous - neither myself or Tony have 'sabbotaged his petition' - I wouldn't waste my time or electricity doing so.

      I'm sorry to see that this person has dragged this forum into his personal war - I have reported his post to the moderators and hope they see fit to remove him with immediate effect. 

       


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  • TonyRhodes TonyRhodes
    Posts: 6
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 3:49 PM

    • Again Mr.Arnold you seem to have nothing better to do than stalk me around the internet, can you please tell me what personal information i have supposed to have passed to other people?

      You have not been a member of my message board as far as i know? You have a history of stalking people, bullying people, harrassing people, and threatening myself with violence and inciting others to attack me, this is for all people to see as i am sure you are aware off, your continual harrassment of me will prove once and for all what a nasty person you are.

      I have broken no laws Mr.Arnold, whereas you continue to do so even after you have had an official warning, your bullying tactics will not work on me whatsoever.

      If you want to know where i got information regarding you Mr.Arnold and Mr.Ian Sandeman, then i think that you should be careful when you register a DOMAIN NAME, instead of hiding your personal details you made them available to the general public, that is how i got that information that i handed to the authorities/police.

      As for you stating that i am not a carer, i am an ex-carer with over twenty years experience of caring for my disabled mother, she sadly died in 2006, you knew all that anyway didnt you Mr.Arnold? i think that makes my twenty odd years of caring experience more than yours, are you saying that only present day carers can campaign or know what carers go through? if that is what you are saying then you are more delusional than i first thought.

       

      I find it quite amusing you accusing me off giving away personal details of people as we all know you harrasse people at their work places, the evidence is available as you know well it is dont you Mr.Arnold.

      You continue to carry this on because you have nothing better to do, i thought that you were a 24/7 carer??, i dont know of any 24/7 carer that could spend as much time as you stalking people, causing trouble, threatening people, go away leave people alone, you run your board and keep to yourself and others will not have to make complaints when you threaten them.

       

      Anyone that wishes to see evidence of the threats and abuse this man has made to me and others is more than welcome to come along and see it on my board at www.nationalcarersforum.co.uk you will be made very welcome indeed and none of your personal information will be given to others.

       

       


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  • shellGVchick shellGVchick
    Posts: 1,261
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 4:26 PM

    • Tony just of the few posts I have seen from you and the post I originally responded to you seem like an upfront, nice, responsible guy.  I didn't know there were such laws about if you were "ex" something or had "past" experience you could never mention that.  Feel free to share what you wish, and just consider the source about people like Mr. Arnold.  I think I know who will be standing at the end of it all.  Your right personal info should be respected and not shared.  If you give some one permission that's one thing, and even then it should be done privately and in good taste.  But some just think they are beyond needing to take responsibility. The can tear you apart just for fun then cry victim (GRRR).  It's Monday please try not to let this start your week off on a bad note. Remember he's a name on a computer, and you can turn your computer off any time you want and he stays on your computer.

      Hang in There!


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  • TonyRhodes TonyRhodes
    Posts: 6
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 4:34 PM

    • shellGVchick:

      Tony just of the few posts I have seen from you and the post I originally responded to you seem like an upfront, nice, responsible guy.  I didn't know there were such laws about if you were "ex" something or had "past" experience you could never mention that.  Feel free to share what you wish, and just consider the source about people like Mr. Arnold.  I think I know who will be standing at the end of it all.  Your right personal info should be respected and not shared.  If you give some one permission that's one thing, and even then it should be done privately and in good taste.  But some just think they are beyond needing to take responsibility. The can tear you apart just for fun then cry victim (GRRR).  It's Monday please try not to let this start your week off on a bad note. Remember he's a name on a computer, and you can turn your computer off any time you want and he stays on your computer.

      Hang in There!

      Thanks very much for your support, this individual is just another bully who gets off on hurting people, he has made a fulltime occupation of it.

      Hope you are ok shellGVchick, thanks again,

       

      TonySad


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  • shellGVchick shellGVchick
    Posts: 1,261
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 7:10 PM

    •  

      I'm doing really good thanks for asking. I'm happy and just enjoying life. I'll smile for the both of us right now okay!  Smile  Wink  Yes


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  • clive clive
    Posts: 3
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 7:31 PM

    • Hmm, nice upfront guy, well if you class passing his forums members names and email addresses as 'nice' then you would be correct. To believe that I was booted from the NCF (misnomer) would also be incorrect, closed forums are 'viewable' if you have a small knowledge of how the internet works, though Tony Rhodes has been booted from forums for the very behaviour he and Paula state.

       A bully? Can we recall the bullying tactics Mr Rhodes used against a women on Carers UK's message board? How about Paula's intimidation of another lady who had the temerity to have an opinion that didn't go along with Paula's?

      You see, to accept one persons view of things is a little naive, you have to consider them to be honest and as I have actual proof of the information sharing (which I am chasing up with Mr Rhodes's hosting company) then you have to reassess your standpoint.

      Our forum was closed because of copyright infringement, sounds nasty doesn't it? Until you realise that it was for copying threads from a Carer forum so that Carers that were banned by a national charity could have some input into said posts WHICH I may ALSO add I would now be able to contest under the 'FAIR  USE' policy that I wasn't aware of when this happened.

       

      shellGVchick, you made 2 important comments there " Your right personal info should be respected and not shared Tony Rhodes is actively doing this, he is sharing personal details of people that sign up to his forum and passing them to a DIFFERENT forum so they can collate information, care to say if you do that here? Would you find that ethical? I doubt it, I know that is one thing I would NEVER DO.

      Second "The can tear you apart just for fun then cry victim (GRRR)" This is how Tony Rhodes operates, you can go around many Carer forums to see examples of this behaviour, I am NEVER the victim, not even when Tony Rhodes sends the police to my home for having a view on how erratic his behaviour is, the police apologised for the waste of time BTW.

       

      Don't accept people at face value, his claim that I follow him around the internet is farcical if you check my user name (mostly clivegsd) in fact the opposite was true till this person decided to start name calling, then I merely returned the favour.

       

      You may also view the petition I have running that Tony and his friend, a former director of Carers UK, try to wreck on  a regular basis http://www.thepetitionsite.com/1/uk-carers-are-seeking-a-realistic-income-for-carers

       

      recognise post 396 Tony? You replied using both names to a person that signed up for your forum and Cares United though you shouldn't have had access to one of those names, unless you were sharing information, there are at least 3 other cases like this that have gotten back to me, all of which will be passed to your forum hosts.

       

      It's wise to question statements before accepting them at face value as I say, I'm big enough and ugly enough not to play the victim, but I feel it only right that people joining a forum should know that there personal details are NOT SAFE if they join Mr Rhodes place, apperances can be deceptive


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  • clive clive
    Posts: 3
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 7:32 PM

    •  

      Opps, I was booted once, just to clarify that, other times I used knowledge to read what was being posted

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  • IamwhatIam IamwhatIam
    Posts: 70
    • permalink Re: Carers/Caregivers message board...

    • Posted: Mon, Mar 24 2008 9:47 PM

    • I do not think this sort of crap should be allowed here.  If you two have a personal beef, take it outside.  I have taken leave of 2 disability boards where lack of respect has become rampant.  Bullies and trouble makers are not welcome in my opinion.  I dont need to waste my time reading of conflicts that happened elsewhere.  I'm glad none of you are my caregivers.


    • Show up, suit up, shut up.
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  • PaulaH PaulaH
    Posts: 2
    • permalink Re: Carers/Caregivers message board...

    • Posted: Tue, Mar 25 2008 3:06 AM

    • Post 310 of the petition Clive - that is clearly not Rob's wife as well you know, are you so sad you post on your own petition to boost numbers.

       


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  • kbarton kbarton
    Posts: 6
    • permalink Re: Carers/Caregivers message board...

    • Posted: Wed, Apr 30 2008 4:25 PM

    • Hi Tony,

      I think you and you're fiance should be proud for all the help you have given people and obviously are still trying to do. I have been in caregiving situation of family members, most recently my birthfather. But with the recent death of my only son, I could not handle it for very long with my dad. About 6 months into it I am ashamed to say I gave him the option of an Assisted Living Facility or moving to his brothers ( and his brother wanted him there) So he moved to his brothers. I can not allow myself to feel quilty I had not even had time to deal with the grief of losing my son. Now that my life has turned around I am much more aware of Health& Wellness, please check out my site also www.livetotalwellness.com/kbarton003 Thank you Tony for all that you and people like you do, and "No" they are not rewarded enough. I think it takes special people like you!!

      Kimberly Barton


    • Kimberly Barton
    • Reply Contact
  • TonyRhodes TonyRhodes
    Posts: 6
    • permalink Re: Carers/Caregivers message board...

    • Posted: Sat, May 03 2008 5:52 AM

    • Kimberly, first i would like to thank you for all your kind words, my fiance and i try our hardest to help people as much as we can, the success of our board only encourages us to continue, there will always be people who want to attack you in life but i feel these people must not be allowed to win, we have suffered abuse, threats, harrassment, i did call the police in to try to sort this out, they were very helpful indeed, they never said sorry to Mr.Arnold for wasting police time, they take these things very seriously, never mind, lets get back to you.

      Kimberly i am so impressed with your courage and your strength, you have suffered so much yet you dont come across a bitter person, many people would be having suffered such a loss, there is no need for any guilt either, i am so happy that your life has turned around and that maybe you can start to try and enjoy the little things in life, as for being a special person, that i am not, i am just a ordinary bloke, the reward i get is when i have been able to help someone, my fiance is the one who gives me that strength, without her i would not be able to do what i do.

      I would like to put your website details on my links page on my message board? i shall only do that with your consent, i shall wait for you to get back to me with the answer, keep well and make sure you look after yourself.

       

      All the best TonyBig Smile 


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