Last post Sat, Mar 22 2008 2:27 AM by lefthand30. 2 replies.
My husband had a severe ischemic stroke just short of his 50th birthday last June. It's been a very slow recovery, but we continue to see improvement every day, 9 months after the fact. It's a little, no, very sad, that friends who were there in the beginning started to wane away from us. This is not a contagious disease and it hurts me to have these so-called friends just abandon us the way they have. I know everyone has got their own thing to do, but a phone call once a week or a visit once a month would make a lot of difference. I feel alone. My family, with the exception of my son, doesn't offer any support or even visit unless it's a holiday (which I am expected to prepare dinner for!)
His recovery has been accomplished through therapy, which has now ended, and the home care I have provided. Did I mention that this is done while I work a full-time job? I'm not looking for sympathy. I'm not doing this for any other reason but that I love him and I know he would do it for me. I'm just curious if anyone else out there is experiencing the same behavior from others. I would really like your input.
DebZ
It's so hard to understand why this happens I have 2 children my husband has progressive MS no one comes to visit or even tries to help my children In anyway I thought I could handle this by myself but i'm loseing myself, along with my sanity and I am so mad at everyone and everything, we had so many plans to make life better for our children, I'm can't even have a normal conversation with my husband/bf because this disease has taken him away from me, it's like nobody understands I feel like my husband is gone and all that's left is a shell of what he used to be.nobody visit's anymore not even the members of his church!
I read both posts and I'm where both of you are. My husband was born with CP. Three years ago, from his spinal cord being pinched in his neck area, he ended up in a wheelchair. We have an eleven year old son. All kinds of people were there in the beginning of this process. They have sinced faded away. Part of it may be my fault, I have the worst time asking people for help. When people did ask how they could help, a response didn't come very easy. There is a home health care agency that comes in and helps with his daily cares. I work fulltime on second shift. People will tell me I need to take time for myself. In my mind I'm thinking, how can I, I feel so responsible for both my husband and my son. I don't always think I do enough for both of them. How can I take time for myself. Okay, I'm rambling. I tend to do that. I would say people are right there in the beginning, but they gradually pull away. It's not as easy to communicate with my husband as it once was. His speech is affected by the CP and now with his weaker muscles, it's diffucult for him to get his words out. A one-on-one conversation is next to impossible. I have to be there to interpret what he's saying. I get lost in caring for them.
