Last post Wed, Aug 20 2008 4:11 PM by darylynn. 70 replies.
I am a polio survivor & suffer from post polio syndrome. I would like to meet others with PPS and share thoughts & ideas(perhaps form a support group?)
I acquired the polio virus in 1958, which nearly killed me, and was diagnosed with PPS in 2005.
Yep, count me in. That's all I do these days -- survive. Well, Gloria Gaynor sang it well, huh?
Hi Justin!
If you don't mind me asking..is PPS the source for your disability?
My sister & I both contracted the virus in 1960. My sister was affected more than myself,spending most of her life on crutches. I was luckier than others recovering very quickly. Now that we both have PPS, we are both in wheelchairs. The effects of PPS are painful and crippling with no known treatment.
And as the song goes..." we get by with a little help from our friends".
Nonniebee: I am a polio survivor & suffer from post polio syndrome. I would like to meet others with PPS and share thoughts & ideas(perhaps form a support group?)
hi nonnie,
there are people with PPS at this message board www.powerquad.net and also www.newmobility.com . you might want to check those out!
hugs, lola
Yes, I got polio in 1955-missed the Salk shots coming to our rural town by a mere 3 weeks. Began having symptoms of PPS in 1991, and now am in a wheelchair and on a ventilator full time.
I got the virus after the shot. No place to hide is there?
I'm new to this type of discussion. It seems to me there are lots of areas of common interest, such as neat little tricks we've discovered to make life easier/less painful, how to get around barriers (mental and physical), things we've accomplished in spite of hardships, etc. I have spent a large part of my life apart from other disabled people. I'm not proud of that, it just is the way it is. So, where do we take this from here?
I see there's a few more folks w/ PPS here than the last time I checked. I don't know whether that's good or bad. I welcome the chance to meet people like me who may teach me something but wish no one had the problem in the first place. I had Polio in 1948 at age 3. Total paralysis at first but recovered to the point of vertical life w/ braces and crutches after a few years. I've always lived alone but find that, as PPS progresses, there are new challenges every day or two. I'm not as brave as I once was. In fact, ...... Well, let's just say I'm concerned. Ken
Hi everyone:
I made it through from the year of 1958. I have polio in my left leg, smaller, weaker and I wear a leg brace to help with walking and all. I'll be reading the discussion when ever the time permits.
hello, it's nice to meet the people i haven't already met. i have heard of polio, but i never really knew what it was and what it did. i am sorry that you all have to go through this , and ken is there anything i can do? i hope that you have friends close to you that can visit and talk with you. if not you can email me ok? hope you don't mind i just wanted to send my best wishes to you all. have a good day
IF you are really worried it will effect you. Why not take some time to look at alternatives for the future. For example assisted living set up. Doing this will put you in control and you'll feel you can play a part in your future and the problems you say are coming up wont have to be so scary. Just a thought. I do know how hard it can be so I make this suggestion.
I have post polio and post polio syndrome what does your blog have to do with polio? I didn't see anything about polio.
I'm do not have post polio syndrome but a friend of mine does. I was giving you support,atleast that was my intent. Let me change the topic now. I recently was told of a liquid vit. mineral supplement which also has 9 other categories. I took it and two weeks later I noticed that all my dizzy spells are gone and after three weeks all my leg twitching at nite stopped. Obviously I had been deficient in something maybe even one of the 63 trace minerals in the supplement. But doctors including a neologist had never found the cause of the daily 1 second dizzy spells I suffered with for the past three years. Like most people I always took vitamins but this liquid supplement far surpasses my vitamin cocktail. Well I assume that the leg twitching and dizzy spells were nerve related and isn't your condition nerve related. I don't know but what I will do is give you the website for the supplement and what you do is up to you. My friend Bruce used to have painful knees and now is pain free all from taking this supplement. Who knows how it could help you. It can't hurt and they even have a 60 day empty bottle guarantee if you look it over and decide to sign up. You would get the wholesale price of $19.95. Yes a company that is providing real health value at a price we can afford. Its worth a try. It also has a 16 page Phsicians desk reference you can see on the supplement. I am sharing this with anyone who could possibly benefit. My intentions are good. www.shopgbg.com/317532 and there is a video there,too. Wishing you the best.
hi my name is bily I have polio and post polio syn. how are you I'm fine I work at the state parks in florida
hi I have polio and post polio syn. Would like to chat. billy
