Last post Thu, May 08 2008 4:28 AM by Debbie. 11 replies.
Talon was born missing both his tibias. He is scheduled to have amputation surgery in June 08. Anybody got some advice or went through something similiar?
I lost both of my legs below the knees when I was 17 and have had a pretty normal life with prosthetic limbs.What did the doctors say they were going to do? As in amputate above the knees or reconstruct and do below the knees? It makes a big difference. Bill
They told my husband & I that they would amputate through the knees. There is no way they could correct his deformity or that he could ever walk if they did. No tibia is present at all for reconstruction. Any other ideas would really help alot.
I think he will still do fine with the long lever arm of the femur he will be able to manipulate the prosthesis well and end bear some weight which will help him adapt quicker. Kids pic up on things naturally fast. How old is he?
Why amputete? Is that the only option or can you use a donor in that situation?
Tagoo, welcome to Disaboom. I am sorry about your plght, but this community is a great resource to get some answers to your difficult questions. Best wishes.
i appreciate your response. he is seven months old. they want to do the surgery before he starts to walk so he will have a little adjustment period.
Hello,
My husband is a double above the knee amputee. He had that done in his done 4 yrs ago. They said it is much harder for a grown person to walk and told my husband not to even try. Well, he walked right off the bat. He did great and we were so proud of him. He is now in a chair and never uses his legs because of pressure sores...and now his hips are locked so his risidual stumps stay in a sitting position even when he is laying down.
My advice is to keep you son limber, never go a day, never....without stretch him etc. He will walk great and even play in sports. I am really sure of this. He is so young that he will adjust just fine.
I would never get him a wheel chair. A friend of ours said that his parents got him one and it just became too easy on those lazy sat days....now, grown, he cant walk.
God be with you all.
thanks for your response. I feel the same way about the wheelchair. We are a very active family(soccer, baseball, jogging). Plus he has an older brother he has to keep up with. Again thanks for the advice.
Hello I am sure that your son will do fine. Just stay strong for him. I am a right AKA since sept. 08 and was very active until then. I worked as a paramedic and I was also an Instructor. I am walking with a cane now and hope to put that down soon. Have a blessed day. Any thing that I can do please feel free to contact me. mmays911@comcast.net
Hey Marc911
Keep strong. My name is Cynthia but I go by the name Cynhomi at this site. Here's hoping the following information is a blessing to you and your loved one.
Amputee Coalition of America • 900 East Hill Avenue, Suite 205 • Knoxville, Tennessee 37915-2566 Toll-Free: 1-888/AMP-KNOW • Knoxville: 865/524-8772 • Fax: 865/525-7917www.amputee-coalition.org (Speak to the Rep that answers and ask them about an available Support Group in your loved ones area as well as anyone who is or has experienced what your son is going through.
When you have the opportunity, stop by my profile and learn of me. Maybe we could become friends.
GREATNESS ALWAYS
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