Welcome to Discussions

Hi i'm mjbees nick name given to me from my bloke. I've never been in a chat forum before and suppose i'm just looking for strength in people like me. I have 2a LGMD and i'm 27 on the upside i've got a fab bloke and two perfect little girls. I don't know anyone with an illness like this and often feel isolated because of it. a problem shared is a problem halved so hello to anyone who's reading this.

 Hi Mjbees

Welcome aboard! I have no idea what you have...get lost in the acynoms. I have neuropathy in my lower legs...but still manage to scuba dive!

Joe 

that must be amazing! I have 2a lgmd. Was training to be a nurse but my illness stopped that training to be a counsellor now, I love it makes me feel better knowing i'm doing something with my life. not quite scubadiving tho lol. Where are you from?

Hello mjbees,

welcome to Disaboom.

 

Daisies

mjbees1,

 

Welcome to Disaboom! I have MELAS which is also covered in the MDAs grants for research. Looking forward to seeing you around here.

 

Dave

Hi mjbees

Welcome to Disaboom

Stay Strong

Vinny

 

Hi everyone thanks for replying. I'm finally chilling out after a busy day with the kids. Should be doing my college assignment but dont want to be up to late been sore lately. Any ideas on good pain relief for muscles

Five years ago I was diagnosed with a non-specific form of LGMD and fully understand your feelings of isolation. I am surrounded by friends who care, but they have no "real" clue what I go through on a daily basis, and I hope and pray that they never fully understand it the way I do. Do you experience a great deal of fatigue?