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Bone cancer survivors

Last post Mon, May 19 2008 12:26 PM by Misin1. 2 replies.

• ShelleyF

  Posts: 41

  • Bone cancer survivors
  • Posted: Sun, Apr 13 2008 2:05 PM

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  • Come on I know you're out there come out come out where ever you are. I'm an osteogenic sarcoma / Osteosarcoma survivor from childhood came out of it a leg short but all was well. I know myself being a cancer survivor and an amputee made my experience different from other amputee kids. When I went to summer camps for children who had or survived cancer things were different too. it's also a little amusing when people ask how you lost your leg and you tell them it was cancer. And then there is a pause mumbling of apoligies. I don't understand why people feel the need to say sorry for your cancer or amputation. They didn't take my leg away after all. Does anyone else find they don't really fit in with most amputees or other cancer survivors? Where was your cancer and what amputation did you have? Mine was just below the knee but they decided to to a van ness rotation....that didn't work and 15 years later I had to get the remaining tibia removed. So where are all my fellow bone cancer survivors. let share.

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• Randall

  Posts: 9

  • Re: Bone cancer survivors
  • Posted: Fri, Apr 18 2008 12:56 AM

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  • Hi Shelley,  I am not quite whom your looking for.  I did not have bone cancer, but I did have a soft tissue sarcoma of my lower leg.  I know what you mean about telling people that you lost your leg because of cancer.  When I tell people that, they seem disappointed.  I think they are hoping to hear an exciting story, like I was in a motorcycle accident or stepped on a land mine or something.  It's like they are disappointed that I just had cancer.

    But, we know that we have not just survived an amputation, but cancer also.  I do not consider my condition a disability, it is certainly not as convienent to get around as it used to be, but I still live my life very well.  Maybe even better than before,  I have learned to be a better person through all of the trials.

    Well, better run, hope you find some of those bone cancer folks your lookin for.

     

     

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• Misin1

  Posts: 12

  • Re: Bone cancer survivors
  • Posted: Mon, May 19 2008 12:26 PM

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  • I am new to Disaboom and I could not agree more!  I was 17 when I was diagnosed with Osteosarcoma.  Amputation Left AKA then chemo.  What fun being a senior in high school with no hair no leg and being sick as a dog.  But 20 years later and I'm still kickin.  I also did the camp thing but as a counselor not a camper. 

     

    Nice to meet you! 

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  • Misin 1
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