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Posted on: Wed, Apr 23 2008 1:13 AM

Posted by: Becky Posts: 1,551

Three years of being cancer-free on April 26, 2008, last day of chemo and my two sons. I went to my oldest son's National Honor Society Dinner today and I will see him graduate from high school on June 6, 2008. Hang in there. Hope you can unblock those thoughts!

Posted on: Wed, Apr 23 2008 10:36 PM

Posted by: shycoyote Posts: 6

Go to your search engine and find Elizabeth McClung- her blog Screw Bronze-   She just got back from 18 days in Japan.   She is a must read blog!   She is an author and former ranked fencer who lives in Victoria Canada.   She has MSA(multiple system atrophy) which is terminal.   She did 18 days in Japan in a chair.   Great read and wonderful pics. 

Posted on: Thu, Apr 24 2008 7:35 AM

Posted by: TriDog Posts: 1,789

ArizonaSherry:

Success story?  Do my attempts count?

Of course they do!  Without attempts, they'd be no success.

Posted on: Fri, Apr 25 2008 4:06 PM

Posted by: beyondmywheelchair Posts: 2

i am totally physically disabled and nonverbal.  I too am an artist.  I paint with the use of a splint and my caregiver's hand to stabilize my arm and to get the paints on the palette.  together we just opened our own business to market my art - Beyond my Wheelchair.  I have sold several paintings and really enjoy being able to create and do something regular people do.

Posted on: Fri, Apr 25 2008 4:46 PM

Posted by: TriDog Posts: 1,789

beyondmywheelchair:

i am totally physically disabled and nonverbal.  I too am an artist.  I paint with the use of a splint and my caregiver's hand to stabilize my arm and to get the paints on the palette.  together we just opened our own business to market my art - Beyond my Wheelchair.  I have sold several paintings and really enjoy being able to create and do something regular people do.

That rocks.  Do you have a website?  I love seeing other people's work.

Posted on: Thu, May 1 2008 12:02 AM

Posted by: Lieslmcq Posts: 2,303

TriDog:

beyondmywheelchair:

i am totally physically disabled and nonverbal.  I too am an artist.  I paint with the use of a splint and my caregiver's hand to stabilize my arm and to get the paints on the palette.  together we just opened our own business to market my art - Beyond my Wheelchair.  I have sold several paintings and really enjoy being able to create and do something regular people do.

 

That rocks.  Do you have a website?  I love seeing other people's work.

I want to see that art, too! 

Posted on: Thu, May 1 2008 12:08 PM

Posted by: TriDog Posts: 1,789

Anymore success stories?

Posted on: Thu, May 1 2008 9:32 PM

Posted by: MaggieRay Posts: 429

Hi Everyone! 

 Well, after four long years of looking for a doctor who would even discuss something for relief for me, I have finally been to see a Fibromyalgia Specialist in Toronto who is a wonderful man and who has said that we will keep trying different therapies until we find the one that works for me!  Hallelujah! 

 I consider this a major success!  LOL

 This dr is starting me on a drug for Parkinson's Disease, but is sometimes used with Fibromyalgia patients.  It is called Pramipexole and I am taking 0.25mg pills.  Actually, I start on half a pill for a week and then one pill for a week, and then two pills for a week, until I'm finally up to 3 pills/day and I will stay on that....if I can tolerate it and not have horrible side effects like extreme nausea from it.  So, wish me luck that it will agree with me, first of all, and that it will help somehow also.

I'm willing to try anything at this point, and this dr will consider pain medication if that's what we need to look at.  He just wants to try this first, so I'm willing.  At least now I feel like there is hope where I had lost that, and I am just ecstatic about it.  I go to see him in six months again, but he will fax prescriptions to my pharmacy if we need to change to something else in the meantime.  It was a long trip, as we left at 5am and returned at 5:30pm, but well worth it.  I was so tired from travelling that much in one day, I slept for 12 hours!  LOL

 I just hope that this helps to give hope to others who are still trying to find that doctor that will help them.  They do exist, and although I am in Canada, I"m sure there are others in the U.S. by now.  Don't lose hope and don't give up, just keep trying to find that network of information that will lead you to the right one.  I do hope others are finding their way and finding relief as my heart goes out to all of us who are suffering. 

Just wanted to share that and hope that my success can give others hope as well.

Gentle Hugs,

Maggie