Last post Fri, Jun 13 2008 4:39 PM by Becks. 40 replies.
I was diagnosed with MS at age 23, so I understand how frustrating and scary it can be to have a chronic disease at such a young age. I wish you the best and know that this is a great community for support
berkley...Hallelujah and Amen! I will pray a hedge around you since you will no doubt be victimized for daring to espouse such a philosophy. If HEALTH building is the object of vehement derision, I can only imagine what the vipers will say about FAITH healing. Don't take it personal. Without a preacher, how will they hear? Those who have ears, hear. Those who have eyes, see. Let the blind lead the blind. No offense intended to the unsighted, this is a spiritual metaphor. Shalom.
No worries here McJane, i know what my wonderful Lord Jesus can do and has done in my life and in countless others, He truly is in control and is a wonderful God. I can certainly say to anyone, that if you read just the New Testament alone, i recommend the New Living Translation, the book of Matthew and so on, you will learn the truth and know that there is a God, and He wants to Bless us all , but we have to be obedient to His Word, do this and He will Bless You with more than you can handle, and He promises this in Malachi. GOD BLESS YOU AND HAVE AN AWESOME DAY!!
Hi! Peacecorpse:
My sister and I were both diagnosed young, she is 5 years older than I , I am 52, I was 13 when I was diagnosed, but suffered for a year before someone got around to me.
Myself, I have pain, but I am unable to take any meds, of any kind, because of other complication. So, There is little they can do for me, but I struggle no matter how painful to stay active. This is the number one ingredent for staying on your feet and going. Do not give in to this at all.
Keep stress far away, that includes people or circuimstances that will stress you out, " Stress" will bring on an attack.
Walking and stretching are some of the things I have to do.
Keeping your joint warn, and not exposing them to direct cold, gloves in the winter, that kind of thing is well worth the effort.
My sister has been on Predisone for years, at one time, I could take it, and it made a world of differents, but there are always side effects with any drug.
So, try searching on the internet to find perhaps a good diet free of known additives that trigger onset and remember to keep moving.
I have a sister who got it later in life, but we all have the same belief, if you don't use it, you will lose it. The pain is mean, I know this first hand, but the other alertative is more pain, and barely a life. So, fear not , if you keep moving and follow your doctors instructions, you will do fine. Never worry to far in advance, life could be in a totally new direct with cures by the time you are in your twenties, and you would have caused more on sets with worry and stress. God has your back, so enjoy life as much as possible.
There are support groups at many of the major hospitals, try asking your doctor.
Best to you and God Bless
Star
mcjane: As I said, Whitey was BRAVE to espouse the Health Philosophy since it opens him to the scorn of naysayers, and worse, Pharisees who stand at the gate and won't go in and prevent others from entering. A young person pleaded for help and information about diet and exercise, and a voice of experience gave her hope that you could, in DEED, combat the disease. To deny that he has achieved victory over RA is like calling him a liar, which is very rude and very wrong. Most people either romance their sickness or want to cling to their coffee & cigarettes, their dead food, and then rail against Nature for persecuting them with illness. Just as an automobile needs certain components to run properly, and you can't put oil in the gas tank or water in the engine or gas in the radiator, so the human mechanism needs vitamins, minerals, and ENZYMES which are woefully lacking in our modern diet. While the medical COMMUNITY will agree that diet plays an important role in Health, the medical INDUSTRY would not benefit from this approach. Unless doctors become farmers and charge exorbitant prices like they do for pharmaceuticals. Some people believe their opinion to be worthy of public proclamation, but unless you are speaking with a voice of EXPERIENCE, not only do you not help...you hinder.
As I said, Whitey was BRAVE to espouse the Health Philosophy since it opens him to the scorn of naysayers, and worse, Pharisees who stand at the gate and won't go in and prevent others from entering. A young person pleaded for help and information about diet and exercise, and a voice of experience gave her hope that you could, in DEED, combat the disease. To deny that he has achieved victory over RA is like calling him a liar, which is very rude and very wrong. Most people either romance their sickness or want to cling to their coffee & cigarettes, their dead food, and then rail against Nature for persecuting them with illness. Just as an automobile needs certain components to run properly, and you can't put oil in the gas tank or water in the engine or gas in the radiator, so the human mechanism needs vitamins, minerals, and ENZYMES which are woefully lacking in our modern diet. While the medical COMMUNITY will agree that diet plays an important role in Health, the medical INDUSTRY would not benefit from this approach. Unless doctors become farmers and charge exorbitant prices like they do for pharmaceuticals. Some people believe their opinion to be worthy of public proclamation, but unless you are speaking with a voice of EXPERIENCE, not only do you not help...you hinder.
Diet will only help some conditions. It is certainly no cure. Enzymes did not cure my cancer, chemotherapy did. To suggest that diet can cure RA or any other disease or condition is ridiculous and reckless thinking. Get real. Liesl was right.
Becky
I can't help but wonder why the naysayers target ME instead of Whitey who actually professed his victory and stated there was a CURE for RA thru diet and exercise. It was interesting that Whitey's ayurvedic doctor told him to stay on Methotrexate which took my sister out of a wheelchair. So I checked it out...a doctor was studying the effect of folic acid (a B vitamin) on cancer and had it synthesized. It was the beginning of chemotherapy.
mcjane:I can't help but wonder why the naysayers target ME instead of Whitey who actually professed his victory and stated there was a CURE for RA thru diet and exercise. It was interesting that Whitey's ayurvedic doctor told him to stay on Methotrexate which took my sister out of a wheelchair. So I checked it out...a doctor was studying the effect of folic acid (a B vitamin) on cancer and had it synthesized. It was the beginning of chemotherapy.
I can't speak for others, but I skimmed his post. I don't usually read overly long posts. I just went back and read it and wish I had read it before. If I had, I would have noticed that he recommended something that is HIGHLY dangerous in chelation.
The first use of chemotherapy was discovered from mustard gas. You're talking about the discovery of antimetabolite drugs.
"People who think rape is about sex confuse the weapon with the motivation."Alice Vachss
Chelating agents were introduced into medicine as a result of the use of poison gas in World War I. The first widely used chelating agent—the organic dithiol compound dimercaprol, also named British Anti-Lewisite or BAL—was used as an antidote to the arsenic-based poison gas, Lewisite. The sulphur atoms in BAL's mercaptan groups strongly bond to the arsenic in Lewisite, forming a water-soluble compound that entered the bloodstream, allowing it to be removed from the body by the kidneys and liver. BAL had severe side-effects.
After World War II, a large number of navy personnel suffered from lead poisoning as a result of their jobs repainting the hulls of ships. The medical use of EDTA as a lead chelating agent was introduced. Unlike BAL, it is a synthetic amino acid and contains no mercaptans. While EDTA had some uncomfortable side effects, they were not as severe as BAL.
In the 1960s, BAL was modified into DMSA, a related dithiol with far fewer side effects. DMSA quickly replaced both BAL and EDTA, becoming the US standard of care for the treatment of lead, arsenic, and mercury poisoning, which it remains today.
Research in the former Soviet Union led to the introduction of DMPS, another dithiol, as a mercury-chelating agent. The Soviets also introduced ALA, which is transformed by the body into the dithiol dihydrolipoic acid, a mercury- and arsenic-chelating agent. DMPS has experimental status in the US FDA, while ALA is a common nutritional supplement.
Since the 1970s, iron chelation therapy has been used as an alternative to regular phlebotomy to treat excess iron stores in people with haemochromatosis.[1]
Other chelating agents have been discovered. They all function by making several chemical bonds with metal ions, thus rendering them much less chemically reactive. The resulting complex is water-soluble, allowing it to enter the bloodstream and be excreted harmlessly.
EDTA chelation is approved by the U.S. Food and Drug Administration (FDA) for treating lead poisoning and heavy metal toxicity.[2]
Methotrexate originated in the 1940s when Dr. Sidney Farber at Children's Hospital Boston was testing the effects of folic acid on acute leukemic children (severe blood cancer). Inspired, he asked Dr. Y. SubbaRow, then Director of the Research Division of Lederle Labs (part of American Cyanamid), to synthesize the anti-folate (methotrexate). Dr. Row, who also happened to be the head of the team which had earlier synthesized folic acid (1946) readily synthesized this anti-folate and handed it over to Dr. Farber, who in turn administered it to a small group of very ill leukemic children. The remarkable clinical improvement that was observed in these patients heralded the era of cancer chemotherapy in modern medicine. This was reported by Dr. S. Farber in the June 3rd, 1948 issue of NEJM. In 1950 Dr. Farber founded in Boston the world's first Cancer Research Center. Methotrexate gained Food and Drug Administration (FDA) approval as an oncology drug in 1953.
First of all, you really need to site a source when you cut and paste. Maybe you forgot it? Also? Chelation has its place, but not for anything OTHER THAN metal toxicity. Which means, it is not for rheumatoid arthritis and can be highly dangerous if used improperly.
Either way, the antimetabolite drugs were discovered second, though only a short time after the original mustard gas/cancer discovery. Which really? doesn't matter. What matters it the accuracy of how chemotherapy was discoverd and the implications therein.
Hello
I hope you dont mind me emailing you. i am an OT and at present have just started a new post in a hospital setting (england) and am looking into setting up services for people with conditions such as RA. I was so glad to read your message in that you are finding occupational therapy useful. You are right it is hard to explain what an OT does but it does help. What i would be looking at is hopefully setting up some sort of education group for people and evaluating how people find this type of intervention in other words feedback from patients on how OT has helped them with their activities of daily living.
Hope you wouldnt mind telling me what specific interventions have helped you as one of the things i want to look at is getting people back into the working environment (you mentioned vocational rehab). We need to prove OT does work and one of the ways of doing this is by feedback from patients who use OT services.
Have you had for examples advice re carrying out activities around the home or in the workplace or relaxation techniques/coping strategy education etc. and if so how have you found this. Has there been anything (In particular) you have had difficulty with.
Once again hope you dont mind as this will help me in my job to tailor the service to meet patient needs.
Thanks again.
Jackie Smith
