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Posted on: Mon, Apr 28 2008 6:42 PM

Posted by: Fran Posts: 1

Well, services are terrible where we live just 25 miles north of Philly. My son is now 21 and having pain/discomfort problems. The pediatric specialists have not been able to address the problem. Does anyone know of a physical medicine/rehab doctor or orthopod specializing in adults with CP in the Philly/Trenton/Princeton area? 

Posted on: Mon, Apr 28 2008 7:06 PM

Posted by: Nightengale Posts: 672

I did my medical training in Philadelphia. . . knowledge about adults with CP is not great there although it's not great anywhere.  Here's who I know

My cerebral palsy was actually diagnosed (as an adult, long story) by Dr. Stephen Gollomp at Lankenau.  He's a neurologist who specializes in movement disorders. 

If you can travel a bit north, Dr. Thomas Strax is a PM+R at UMDNJ who has CP himself.  I have met him professionally.   He may not see outpatients - the department there would know if someone does however.

The adult PM+R docs I know in Philly are at Magee Rehab and the Rothman and are excellent but there aren't any adult CP specilaists at either place.

There was someone in the Philly suburbs we were sending teens to when they got too old for the DuPont for rehab but I can't remember the name.   You could call the DuPont rehab department and ask where they are sending the kids with baclofen pumps when they aged out.

Posted on: Tue, Apr 29 2008 12:29 AM

Posted by: Kara Posts: 2,287

I don't have any specific suggestions but wanted to add my support and solidarity in the frustrating search for care as an adult with a "pediatric" disability (OI)..I still haven't found a specialist (at 28). I hope you find one in your area soon. 

Disaboom moderator


My personal blog: If the World Had Wheels

Posted on: Tue, Apr 29 2008 8:42 PM

Posted by: cherylberyl Posts: 269

 I'm 23 and I have CP. I've been seeing the same docs since I was a teen. I got lucky, I'll age out when they retire. While technically they are ped specialists, they actually understand the concerns of adults. Unfortunately for you, they both have offices in DC suburbs and balto city. Baltimore isn't all that far. My PMR is Dr Katherine Alter (www.mwph.org) and my ortho is Dr Andrew Abramowitz (www.mdpedortho.com

Posted on: Wed, Apr 30 2008 5:49 PM

Posted by: hadley Posts: 27

Hey, I'm from Philly.....

I was a DuPont kid, but I aged out. I'm now 22 and started having some pain/discomfort problems in my feet after being active in college. If your son is having issues in his feet/ankles, then I would highly recommend a Dr. Keith Wapner at UPenn. He's a genius...and he has two boys with CP so he really knows his stuff.

He's not a CP Specialist per se, he's a foot & ankle specialist....I would only call him if your son is having problems in his feet/ankles. When I called DuPont in a panic (I was a patient of Dr. Miller), he told me to go see him.

You'll have to wait a bit for an appointment, because he's usually booked. 

There's a female doctor at UPenn who specializes in CP.....I think her first name is Marjorie or Maggie and her last name begins with a K (sorry). 

Posted on: Sat, May 3 2008 4:33 AM

Posted by: BMWgirl Posts: 188

I was also a Dupont kid:)  I thought dr. Miller was great.  It was hard to turn 21 cause I knew that they couldn't treat me anymore.   Although I still keep in touch with several people from there.  My PT gave me the name of Dr Maryann Keenan (orthopedist) who is at HUP. 

Also Hadley I think your T-shifts are so cute.  If I were you I'd try to get Dupont's gift shop to carry them.  I think you'd  sell tons of them if you could get them in there.

Also I know for adults the Kessler institute in West Orange is suppopsed to be ranked nationally.  I went there for a  driving eval and the OT was great  in accomadating my situation.  

Posted on: Sat, May 3 2008 11:11 AM

Posted by: hadley Posts: 27

Maryann Keenan!

That's it! That's the name I was trying to get off the tip of my tongue!!!!! Yay! This is what Group Discussion Boards are for!!!!

That's a good idea with the DuPont gift shop! I'll have to keep that in mind! Right now it's just me and a friend doing this, and we're swamped getting more designs completed to expand to a place that can encompass a wide range of disabilities.

I loved Dupont, and miss it so much. I loved the color "modules", and for the LONGEST time I wanted to grow up to be one of the people who did the casts for all the kids----- those guys were ARTISTS! 

Posted on: Sat, May 3 2008 7:29 PM

Posted by: BMWgirl Posts: 188

Nice to talk to a ex-dopunter..  Whenever I start talking about missing a hospital most people think I am nuts..I try to tell people it was cool with a boweling alley and a pool and when I was in rehahb I could pretty much do whatever I wanted as long as I showed up for therapy when I was schelduled...  It was the only time I could really roam around and go get candy and soda whenever I wanted.  Since at home I couldn't just get on my bike and ride to 711 like all the other kids in my town, 

For the longest time I wanted to be head of child life when I grew up...

Hey you don't have to take up on this but if you want help with the business side of your T-shirt  business we shouldd talk, I have a BS in Business admin and some contacts that could help you.