Last post Tue, May 06 2008 8:19 PM by living. 5 replies.
Minor question why do you not have a pr5ofile and well no image here? Like this sounds like anything I'd ever have a thing to do with/
Hello Living,
Welcome to Disaboom. Have any of the pilot shows been filmed yet? If any are available on YouTube, maybe members could check out the flavor of what you're looking for. Sounds like a good opportunity to educate the public on LIFE with a disability but we're all a little way about the way these stories are told...would love to hear more.
Hello!
This show sounds like a great idea to me and one whose time is long overdue. I am so happy to hear that someone is finally going to show what living with this, Fibromyalgia, and other diseases is really about on a daily basis. I have written to Oprah and Dr. Phil twice now requesting that they do a show on Fibromyalgia, but never got any response. It is only through this kind of information and education that we will finally help to dispel the myths surrounding so many illnesses, but especially the "hidden" diseases like Fibromyalgia.
I watched a show a few weeks ago on the Documentary Channel called "Morphine on Trial" and it was an eye-opener for me. I am in Canada, Ontario specifically, and was trying to deal with the rage and anger one feels at hopelessly dealing with doctors who will not prescribe pain medication for this, nor will they even listen to us describe our pain or talk about it at any length. This program educated me on what doctors are up against with the law on the "war on drugs". The doctor who was portrayed on the program, got arrested and thrown in jail for prescribing pain medication to his chronic pain patients, who were all doing well for the first time in many years thanks to his insight into the need for pain relief for these poor suffering people. As a result of the legal harassment this dr had to go through, he finally closed up his practice here in Ontario and moved back to Texas. After hearing the story, I couldn't say I blamed him. I also understood a lot better why doctors won't even discuss pain medication as an option here in Ontario and it has helped me dissipate the anger I felt towards them directly. I am still very upset with the police and legal system that is preventing this course of treatment for so many people who so desperately need it. It is such a shame that the "powers that be" have to be so damned narrow-minded! People who are in chronic pain are not addicts and should not be treated as such, but in this province they definitely are. It is so wrong, I can't even begin to describe how "criminal" this whole way of thinking is. In my mind, as a chronic pain sufferer, they are the criminals, for denying people who are suffering a way of being able to get their lives back again to some degree and not suffer needlessly.
I would never normally wish this illness and the constant pain on anyone, but I think these people who control our doctors and the medical system from doing their jobs would only learn what they are really affecting if they had to live just one day in this kind of constant pain. I am sure they would find a way, legal or not, to get what they needed! Not to mention that denying patients what they need for relief is doing nothing towards the "war on drugs" as these people are not "drug-seeking" or abusing their medications. It is absolutely ridiculous and defies all logic to me, but nevertheless, it is the way it is.
I hope your show will be aired with the full honesty of what people go through trying to get the medical help they need, as it is quite an educating journey to have to spend years working through the medical B.S. of our system, here in Canada and the States, just to get the help we so desperately need, or even to get a doctor to listen. I thank you for bringing these issues to the forefront of our consciousness where it can hopefully affect some positive change, or at least if nothing else, educate the average person on what it is like to try and live with our limitations. People don't really know or understand, and they need to. We have buried our heads in the sand over this issue long enough! God Bless You!
Gentle Hugs,Maggie
