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Introduce yourself to the rest of the community
Posted on: Sat, May 10 2008 2:17 AM
Posted by: sam1980 Posts: 5
As you can see from my profile, I am a 27 year old female with stage III heart failure. My official diagnosis is dialated ischemic cardiomyopathy and CHF. Last summer I had two TIA's (mini-strokes) so have now added coumadin to my entourage of medications. Don't ever let anybody tell you orange pill bottles are anything but sexy! I am at top medical capaciity at this point (on seven medications, but seven is the new five you know), and not responding very well. Currently I am investigating the numerous stem-cell research projects going on around the world, and looking into getting a Ventricular Assist Device (VAD). I already have an ICD (internal cardiac defibrillator), so I am thinking, hey, what's another large metal object implanted inside my body?
Primary I am here, I hope, to help. I am well versed in cardiac problems, and would love to help anyone with any questions on the topic. I am also a pro at navigating the Social Security system, and would love to offer advice to anyone that is attempting to swim those icy cold waters.
Besides all that bad news, I lead a really lovely life. I have the most precious small dog, wonderful friends, and a loving and supportive family. I am really missing being able to do the things I used to do, but have tried to replace every lost activity with a new one. Dancing was the hardest to give up, but since I replaced it with clothes shopping, it is not so bad (although my bank account would argue with that).
I look forward to hearing from the community, and don't hesitate to ask any questions.
Most Sincerely,
Sam
Posted on: Sat, May 10 2008 4:41 AM
Posted by: ears Posts: 11
Hello Sam Welcome You have come to the right place to help an be helped , your awesome way of looking at life is great thank you an wish you the best hugsss
Posted on: Sat, May 10 2008 5:24 AM
Posted by: Daisies1 Posts: 0
Hello Sam,
welcome to Disaboom.
Daisies
Posted on: Sat, May 10 2008 6:09 AM
Posted by: rainey826 Posts: 2,619
welcome to a great a great site ! rainey
Posted on: Sat, May 10 2008 6:21 AM
Posted by: bonniethesurvivor Posts: 1,117
I am not into the "Welcome to Disaboom" comment thing, but I have to say that your introduction is one of the finest statements of optimism and self worth that I have seen. Thank you for joining, thank you for your offers of support, and thank you for sharing that sunny outlook that so many need to find. Best wishes. Bonnie
Posted on: Sat, May 10 2008 6:45 AM
Posted by: Debbie Posts: 3,829
Posted on: Sat, May 10 2008 11:35 AM
bonniethesurvivor:I am not into the "Welcome to Disaboom" comment thing
You say it like there is something wrong with that.
Posted on: Mon, May 12 2008 11:27 AM
Posted by: ecrowley Posts: 1,698
Welcome to Disaboom, Sam! It's great to have you here.
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