Last post Tue, May 13 2008 11:13 AM by ecrowley. 11 replies.
As you can see from my profile, I am a 27 year old female with stage III heart failure. My official diagnosis is dialated ischemic cardiomyopathy and CHF. Last summer I had two TIA's (mini-strokes) so have now added coumadin to my entourage of medications. Don't ever let anybody tell you orange pill bottles are anything but sexy! I am at top medical capaciity at this point (on seven medications, but seven is the new five you know), and not responding very well. Currently I am investigating the numerous stem-cell research projects going on around the world, and looking into getting a Ventricular Assist Device (VAD). I already have an ICD (internal cardiac defibrillator), so I am thinking, hey, what's another large metal object implanted inside my body?
Primary I am here, I hope, to help. I am well versed in cardiac problems, and would love to help anyone with any questions on the topic. I am also a pro at navigating the Social Security system, and would love to offer advice to anyone that is attempting to swim those icy cold waters.
Besides all that bad news, I lead a really lovely life. I have the most precious small dog, wonderful friends, and a loving and supportive family. I am really missing being able to do the things I used to do, but have tried to replace every lost activity with a new one. Dancing was the hardest to give up, but since I replaced it with clothes shopping, it is not so bad (although my bank account would argue with that).
I look forward to hearing from the community, and don't hesitate to ask any questions.
Most Sincerely,
Sam
Hello Sam Welcome You have come to the right place to help an be helped , your awesome way of looking at life is great thank you an wish you the best hugsss
Hello Sam,
welcome to Disaboom.
Daisies
welcome to a great a great site ! rainey
I am not into the "Welcome to Disaboom" comment thing, but I have to say that your introduction is one of the finest statements of optimism and self worth that I have seen. Thank you for joining, thank you for your offers of support, and thank you for sharing that sunny outlook that so many need to find. Best wishes. Bonnie
bonniethesurvivor:I am not into the "Welcome to Disaboom" comment thing
You say it like there is something wrong with that.
Welcome to Disaboom, Sam! It's great to have you here.
Hi from NJ Sam I hope you like this site
Thank you so much for the warm welcome! Unfortunately I am in the middle of finals, so it is going to be a week or so until I can start a thread of my own, but I look forward to it. In the meantime, it is off to present a paper on Frankenstein and the rhetorical "masculine science", viewed through the lense of women and illness - a topic a bit close to home! Enjoy your week everyone, and I look forward to reading your threads and some good, healthy debaucherous fun on the internet .
Best,
Thank you for the compliment! I try - sarcasm always helps boost my morale. Nothing like a good sarcastic comment to help me get over myself.
Good luck on your finals! I'll have those in a couple of weeks myself...They're always a fun time. :P
