Last post Sun, May 11 2008 9:19 PM by Pegasus. 2 replies.
Did youknow fms has been around since the 1800,at that time it was called muscular rheumatism,
then in 1820 a dactor from Scotland called it fibrosits which descibed the chronic and crppling pain,
in 1976 is when the called fibromyalgia and it wasn't untill 1981 that they had a format to dignos,
You would think after 100 yrs they would understand a little more about it.
the NFA wasn't founded untill 1997, now 200 years later they are finaly trying to understand what people
have been saying for years,In 2005 is the first time they set up guide lines for treatment of FMS,which is
published by the American Pain Society. They say gentle exercise like walking and water aerobics and stationary bikes are the best exercise for helpping with FMS, they say part of the cause is changes in the nerve and brain cells,that cause even more sensitived to touch, that the volume contrl is turned up. But they are still working to understand what causes fibromyalgia,all of this gets posted and we're all told something different about why or how
we have FMS but now one really understands it yet they want us to understand what's going on with our on bodies,we tell how and we're feeling yet alot of doctors still want to give us antidepressents and send us on our way it's not that we start out depressed we get depessed over time because no one will hear us when we first complanit usally takes years of testing before we get digosed and treatment begines.By then we've fairly resided that things will never be the same, then we're told it's going to get even worse, We're left to figure out how how to move on with our lifes, Hopefully You have support while you learn what you can't and can do. I'm very happy I've found disadoom it's been really helpfull to read and write about things,I just want to say thanks to everyone for thier sapport,
HOPE EVERYONE IS HAVEING A GOOD DAY GOD BLESS;
I've been working on my family tree for almost 30 years, and in reading morality censuses and death records, I'm discovering at LOT of diseases we recognize now actually were around centuries ago. Another one other than FMS is Fibro Cystic Disease, as well as other afflictions that had pet names back then. "Consuption" was a catch-all term for any lung problem.... even in children. Now we'd probably say it was FCD. It's no wonder why these problems seem "recent discoveries". I've also discovered many persons who had been confined to insane asylums back then had mental issues such as Autism, Down's Syndrome, CP and simple mental retardation, deemed "insane" because thy communicated in a different way. Many such places were filled with deaf children as well. One record I read stated the person was "infested with demons" as a medical problem.
Beck, I'm with you. Disaboom has brought me much here, especially people who understand what I've gone through, and am still going through. I draw strength and courage from those who came before me, so I can share it with people who come after me. Just yesterday I noticed what an incredible artist Daisies is, and how much courage Scuba-something (sorry bud, I forgot your full screen name.... I know there's a reference to a barraccuda in it too!) because he still scuba diving. Becky's cheerful attitude.... the list goes on. You all are a great bunch, you know that? My hugs to all.
Yes, I knew this and it is probably as old as the hills. Though I am getting from my Portuguese Grandmother's side of the family. I'm Irish but not Scottish as far as I know. I just know my Parents were a bad genetic mixture.
It has just been difficult to pinpoint for Doctors so research has been spotty at best. I am grateful now more attention is being brought to this. I believe if do helpful things when we are young, especially avoiding serious injuries, we will suffer less. I got hurt a lot and living around smokers didn't help my immune system any. I will never, it seems, build up an immunity to German Measles. I have had so many vaccination and Hospitals kept forcing them on me. If I am having any bad side effects from that I'm going to get upset. They refused to let me leave the Hospital without the show everytime I delivered a child. I would protest but they just insisted. I was tired so I gave in. I knew it wouldn't work but they shouldn't be able to put those demands on me. Especially since I had already had several of these vaccinations over the years.
Ha,ha, I got my Father's immunity to Poison Oak so something to be happy about. My brothers weren't so lucky. Of course, I'm allergic to a lot of flowers and lanolin. I noticed we all have odd allegies because of our worn out immune systems.
I have been lucky that really no one doubted my systems. I just suffered some from that bad book saying we had, "unfit muscles". What a hoax. That Dr. should have to donate all of his proceeds to FM research. I wonder how many times I got bursitis taking dumb Kaiser's advice? I had to become permanantly disabled and sent to a County Hospital to get the right diagnosis. Later, I finally got Kaiser to see the errors of their ways but they kept trying to give me other illness and that did me no help whatsoever.
I just know, my grandmother and father would have benefitted if they were diagnosed earlier with FM. My father lost his intestines thanks to IBS. He called me two years before he died prematurely on an operating table at 58, to tell me he has FM! I answered, "really? I have been telling him that for ten years". Very sad. He wouldn't change his diet so he was doomed but I try very hard not to let this ruin my whole life.
Right now, it is dieting that is my enemy. I'm working on it but losing weight is getting harder and harder to do. I will prevail. My heart is going out to those of you who are suffering and I hope you can find a place of peace.
