Tetrabenazine

Last post Mon, May 19 2008 1:07 PM by Daniel502. 4 replies.

• katesmum

  Posts: 4

  • Tetrabenazine
  • Posted: Mon, May 12 2008 6:21 PM

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  • My daughter has just seen a new doctor about her Dystonia. One of the options suggested was Tetrabenazine which is not yet FDA approved. If anyone has used this drug or knows anything about it, would you please give us some information? Thank you.

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• Marlene

  Posts: 9

  • Re: Tetrabenazine
  • Posted: Tue, May 13 2008 12:19 PM

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  • Hi, I'm Marlene, and this is my first day here at Disaboom.  I am a Registered Nurse, and now retired on disability from a SCI.  I read your post, and thought I would try to see what info was out there for you.  I cannot be more specific on your particular question, as Dystonia is a symptom, and treatment would most likely depend on the underlying disease process, or severity of the symptoms, as well as age of your daughter.  Here are a couple of links you might find helpful:

     

    http://www.google.com/search?q=Tetrabenazine+&hl=en&rls=com.microsoft:en-us:IE-SearchBox&rlz=1I7ADBR&start=20&sa=N

     http://www.mdvu.org/library/pediatric/treatments/tre_med_tetrabenazine.asp

    http://hddrugworks.org/index.php?option=com_content&task=view&id=195

    http://www.nature.com/ncpneuro/journal/v2/n10/full/ncpneuro0299.html

     

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• Becky

  Posts: 1,547

  • Re: Tetrabenazine
  • Posted: Tue, May 13 2008 1:31 PM

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  • Mpumpky, how nice of you to find those links for her! Way to go.

     

    Becky

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  • Always laugh when you can. It's cheaper than medicine.....
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• katesmum

  Posts: 4

  • Re: Tetrabenazine
  • Posted: Sun, May 18 2008 6:28 PM

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  • Thank you for your help.

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• Daniel502

  Posts: 431

  • Re: Tetrabenazine
  • Posted: Mon, May 19 2008 1:07 PM

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  • katesmum,

    Welcome to the Disaboom community! I hope you find the support you are looking for 

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