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Disaboom » Health » Muscular Dystrophy » Any advice?

Any advice?

Last post Sun, May 18 2008 2:06 AM by Becky. 3 replies.


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  • afritz afritz
    Posts: 1
    • permalink Any advice?

    • Posted: Fri, May 16 2008 9:01 PM

    • Hi, name is Andrea and my neighbor's three year old son was just dignosed with muscular dystrophy (not sure which type yet?) and I am very upset because he's the sweetest boy you would ever meet.  She feels like her world has just come crashing down on her and I was wondering if anyone had any advice for me of ways I can possible help her deal with this.  I would really appreciate anything anyone has to offer.  Thanks.


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  • dosha dosha
    Posts: 8
    • permalink Re: Any advice?

    • Posted: Fri, May 16 2008 10:37 PM

    • HI! I AM NEW BUT I HAVE HAD SOME EXPERIENCE WITH A SIMIILAR SITUATION. THE VERY BEST THING YOU CAN DO IS BE A FRIEND.  JUST BE THERE TO LISTEN TO OFFER A SHOULDER TO CRY ON.  ASK WHAT YOU CAN DO TO HELP.  GIVE A HUG TO YOUR NEIGHBOR AND THE LITTLE ONE.  LET HER KNOW SHE ISN'T ALONE AND YOU REALLY CARE.  MY FRIENDS HAVE A DAUGHTER NOW 30 WHO HAS C.P. THEY WERE DEVASTED.  I JUST STAYED CLOSE LISTENED RESEARCHED THE CONDITION AND CONTINUED TO BE JUST A FRIEND.  I OFFERED TO  SIT WITH HER SO THEY GOT A BREAK ONCE IN A WHILE.  THESE CHILDERN ARE SPECIAL AND TEACH US SO MUCH.  GOOD LUCK TO YOUR FRIEND AND SON. YOU ARE A GOOD FRIEND FOR ASKING HOW TO HELP.Wink


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  • Irish Tornado Irish Tornado
    Posts: 1
    • permalink Re: Any advice?

    • Posted: Fri, May 16 2008 10:53 PM

    • Hi Andrea,

       Sorry to hear about your neighbor's son. If he hasn't been to an MDA clinic they need to find one in there area. Their're great to work with and they can give them all the help there is possible.

      Robert


    • It ain't over till it's over.
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  • Becky Becky
    Posts: 819
    • permalink Re: Any advice?

    • Posted: Sun, May 18 2008 2:06 AM

    • Hey Andrea. I'm so sorry to hear about this. His parents must be so upset about this. Besides the MDA, you could also refer them to Disaboom. They should be able to find some helpful information here and also the support they need right now. You are very kind and thoughtful to help your neighbors in this way. You all are in my thoughts and prayers. Godspeed.

       

      Becky


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