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Disaboom » Health » Cerebral Palsy » CAN YOU HELP ANWER THIS SURVEY

CAN YOU HELP ANWER THIS SURVEY

Last post Sun, Jun 01 2008 6:49 PM by Shygirlwithtats. 16 replies.


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  • violeta240 violeta240
    Posts: 10
    • permalink CAN YOU HELP ANWER THIS SURVEY

    • Posted: Sat, May 17 2008 5:25 PM

    • HI GUYS

       I AM TRYING TO ANSWER SOME QUESTIONS OF DISABILITY. IT'S AN ARTICLE FOR MY  PSYCHOLOGY CLASS PEASE HELP.....

       

      Age

      Gender

      Disability

       

      Is your disability acquired? If so when?

       

      What type of barrier bothers you most?

       

      Lowest  1   2   3   4  5  Highest

      Physical

      Self imposed

      Social

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice

      b. stare back without speaking

      c. try to talk to them

       

      Who do you find has a more difficult time dealing with disabled people?

      a. children

      b. parents

      c. both

       

      Do you think other's expectations shape your performance in school or the workplace?

      Yes/No

       Positive/ Negative

      Do you find the term handicap derogatory?

       

      Have you ever been given money by a stranger who assumed you were asking for money

      0 

      1-2

      3-4

      5 or more times?

       

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Always

      Almost always

      Sometimes

      Rarely

      Never

       

      If your disability could disappear would you do it?

       

      Most of your relationships have been with disabled/non disabled partners?

       

      What is your opinion about having children?

       

      You are a parent

      Some day

      Undecided

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive?

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less?

       

      If you use a mobility aid do you decorate it or choose the best looking style?

       

      THANX


    • Reply Contact
  • lollipop lollipop
    Posts: 3
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Sat, May 17 2008 7:00 PM

    • female

      47

      stroke

      amputee

      strokes 1997 and 2004

      amputee 2007

      5

      5

      4

      NO

      IM A PARENT

      NO

      NO

      YES

      A

      C

      YES

      5

      SOMETIMES

      YES

       

       


    • Reply Contact
  • TriDog TriDog
    Posts: 937
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Sat, May 17 2008 8:02 PM

    • violeta240:

      Age  46 

      Gender Male

      Disability CP

       

      Is your disability acquired? If so when?  Ya, picked it up at Target,  It was on sale.  Actually, it was from birth.

       

      What type of barrier bothers you most?

       

      Lowest  1   2   3   4  5  Highest

      Physical 2

      Self imposed 5, Can I use 10?

      Social 2

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice

       

      Who do you find has a more difficult time dealing with disabled people?

      d. None

       

      Do you think other's expectations shape your performance in school or the workplace?

      Yes

      Positive/ Negative

      Do you find the term handicap derogatory?

      Neither, I don't really put that much thought into it.

       

      Have you ever been given money by a stranger who assumed you were asking for money

      0   Never and wouldn't accept it.

       

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Sometimes, but  I just will usually think them and move on.

       

      If your disability could disappear would you do it? When I was younger I'd say Yes, Now, I think it's made me a better person.

       

      Most of your relationships have been with disabled/non disabled partners? None

       

      What is our opinion about having children?

      Making them is fun.  But if you cannot physically and financially care for them yourself, you shouldn't have them.

       

      You are a parent  Foster parent

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive? Nope. 

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less? No

       

      If you use a mobility aid do you decorate it or choose the best looking style?   Just the cleanest best looking crutches.  But it's not a deal breaker. As long as they work.

       


    • Don't bitch about the cards ya got, just play the hand you were dealt.
    • Reply Contact
  • BMWgirl BMWgirl
    Posts: 54
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Sun, May 18 2008 4:44 AM

    • violeta240:

      HI GUYS

       I AM TRYING TO ANSWER SOME QUESTIONS OF DISABILITY. IT'S AN ARTICLE FOR MY  PSYCHOLOGY CLASS PEASE HELP.....

       

      Age 28

      Gender F

      Disability CP

       

      Is your disability acquired? If so when?

      Birth or pre-birth

      What type of barrier bothers you most?

       

      Lowest  1   2   3   4  5  Highest

      Physical 5 ++++

      Self imposed 2

      Social  3

       The physical limits are by far the worst thing about my disability!!!  Next is social and accessibility is a distant third

      If you encounter someone looking at you do you...

      a. pretend you didn't notice

      b. stare back without speaking

      c. try to talk to them

       

      Who do you find has a more difficult time dealing with disabled people?

      a. children

      b. parents

      c. both

      d, Elderly, people of my grandparents generation

      Do you think other's expectations shape your performance in school or the workplace?

      Yes/No-I don't let em.

       Positive/ Negative

      Do you find the term handicap derogatory?

      Nope-I have WAY bigger things to worry about

      Have you ever been given money by a stranger who assumed you were asking for money

      0 

      1-2-I was just wheeling down the sidewalk and this guy gives me a 20, tried to refuse but he just drove off, who said there's no such thng as a free lunch.

      3-4

      5 or more times?

       

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Always

      Almost always-usally I just want to be left the hell alone!!  Now if I am bleeding AND un-conscience OR screaming rape-yea please step in but other then that LEAVE ME ALONE!  (Unless you're a cute guy and I am trying to wheel up a hill in 100 + degrees)

      Sometimes

      Rarely

      Never

       

      If your disability could disappear would you do it? Hell yes!!!!!!!!

      You know it baffles my mind that ANY one would say no to this one...It's like asking a 25 y.o. do you want to get cancer at 50 spend the next decade of your life either kinda sick or really sick and worried about money, family, then die.  OR Do you want to be 95, pay 18 holes, go out to eat with freinds, go home and go to sleep and not wake up?  What's there to debate?????

      Who would you want raising your kid-Jose & Kitty Menendez OR the most loving, kind couple you know- What's there to debate?????

      Most of your relationships have been with disabled/non disabled partners?

      Both

      What is your opinion about having children? 

       If you cannot care for a child finacially, physically and emontionally care for a child-you should not have em.  I cannot physically care for a small child, so I would not have one.

      You are a parent

      Some day

      Undecided

      My goal is to be a foster parent for older teens but I am a long way from that. 

      If you have a physical disability...

      Do you find the part(s) of your body affected by your disability less attractive? 

      Umm-Hate that I have a hard time makeing my hair look good, hard time doing mackup, my cloths alwys get stained, shoes always get scuffed

      When dating, do you find that you focus on that physical aspect of your partner more/ less?

      N/A

      If you use a mobility aid do you decorate it or choose the best looking style?

      Hell no to the first, yes of course to the second.

       


    • Reply Contact
  • GACatmandu GACatmandu
    Posts: 125
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 1:48 PM

    • Age 42

      Gender Male

      Disability Cerebral Palsy

       

      Is your disability acquired? If so when? No I was born this way

       

      What type of barrier bothers you most? hieghts

       

      Lowest  1   2   3   4  5  Highest 

      Physical

      Self imposed

      Social

       

      If you encounter someone looking at you do you... try to talk to them

      a. pretend you didn't notice

      b. stare back without speaking

      c. try to talk to them

       

      Who do you find has a more difficult time dealing with disabled people? Adults

      a. children

      b. parents

      c. both

       

      Do you think other's expectations shape your performance in school or the workplace? No

      Yes/No

       Positive/ Negative

      Do you find the term handicap derogatory?

      In a way, I like the term cripple I can take it as a joke more often

      Have you ever been given money by a stranger who assumed you were asking for money NO

      0 

      1-2

      3-4

      5 or more times?

       

      When strangers try to help you do you find it hinders or makes you uncomfortable? it hinders me from doing what I need to do  when I fall to get myself up..

      Always

      Almost always

      Sometimes

      Rarely

      Never

       

      If your disability could disappear would you do it?

      HELL NO, it's part of who I am

      Most of your relationships have been with disabled/non disabled partners?

      No havent had a disabled in my life since the mid 1980's

      What is your opinion about having children?

      I have 3 of the best girls I could ever wish for

      You are a parent

      Some day

      Undecided

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive?

      No

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less?

      My wife is Hotter than Hot!!

       

      If you use a mobility aid do you decorate it or choose the best looking style? Don't use any really

       


    • KISS freak for life, husband of the most beautiful woman in the universe, father of the greatest girls ever, and stepfather of one nut,and Grand Dad to one BEAUTIFUL Baby Girl forever.. I love them all with all my heart and always will !!!








    • Reply Contact
  • Cudachaser Cudachaser
    Posts: 1,403
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 5:35 PM

    • violeta240:

      Age   58

      Gender M

      Disability Neuropathy

       

      Is your disability acquired? If so when?  It's acquired and progressive due cervical deterioration

       

      What type of barrier bothers you most?  Stairs, climbing & uneven surfaces

       

      Lowest  1   2   3   4  5  Highest

      Physical    5

      Self imposed   1

      Social  2

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice

      b. stare back without speaking

      c. try to talk to them

       

      Who do you find has a more difficult time dealing with disabled people?

      a. children

      b. parents

      c. both

       

      Do you think other's expectations shape your performance in school or the workplace?

      Yes

       Positive/ Negative

      Do you find the term handicap derogatory?  No

       

      Have you ever been given money by a stranger who assumed you were asking for money

      0 

      1-2

      3-4

      5 or more times?

       

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Always

      Almost always

      Sometimes

      Rarely

      Never

       

      If your disability could disappear would you do it?   No

       

      Most of your relationships have been with disabled/non disabled partners?

       

      What is your opinion about having children?

       

      You are a parent

      Some day

      Undecided

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive?   NO

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less?

       

      If you use a mobility aid do you decorate it or choose the best looking style?  Yes

       

       

    • Joe
    • Reply Contact
  • Aimee Aimee
    Posts: 5
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 6:50 PM

    • 35 years old / female/ myotonic muscular dystrophy/ adolescent onset / physical barriers/a/c/ retire/somtimes yes/ non disabled/ have one son   I hope answering this has helped you but disabilities covers a wide range of people with hundreds of different problems mine has not changed my looks much my eyes droop some you cansee that on my profile (eeyoreaim) I have recently started see somebody with a similiar disability and it seems to work better because we undestand the others limitations and i have been looking at prettier canes but am too cheap to buy one at this tim. I do not focas on my partners disability and he doesnt mine i just eanted to write thid to let you know your survey is cut & dry disabilities atren't


    • Reply Contact
  • Becky Becky
    Posts: 1,451
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 7:00 PM

    • violeta240:

      HI GUYS

       I AM TRYING TO ANSWER SOME QUESTIONS OF DISABILITY. IT'S AN ARTICLE FOR MY  PSYCHOLOGY CLASS PEASE HELP.....

       

      Age 48

      Gender Female

      Disability Right below-the-knee amputee

       

      Is your disability acquired? If so when? Yes, after cancer surgery on January 3, 2005.

       

      What type of barrier bothers you most? 

       

      Lowest  1   2   3   4  5  Highest

      Physical  5

      Self imposed 1

      Social  1

       

      If you encounter someone looking at you do you... a. pretend you didn't notice

       

      Who do you find has a more difficult time dealing with disabled people?  b. parents

       

      Do you think other's expectations shape your performance in school or the workplace? Don't work or go to school.

      Do you find the term handicap derogatory? No

       

      Have you ever been given money by a stranger who assumed you were asking for money   0 

       

      When strangers try to help you do you find it hinders or makes you uncomfortable? Rarely

       

      If your disability could disappear would you do it?  If I could grow a leg back, you bet.

       

      Most of your relationships have been with disabled/non disabled partners? No

       

      What is your opinion about having children? Already had them, they are 16 and 18.

       

      You are a parent    See above.

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive? Yes

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less? I'm already married.

       

      If you use a mobility aid do you decorate it or choose the best looking style? I have a bright blue cane that I picked for it's color. I put a sticker on it with my name and a flower on it, because I left it at the hospital one day when visiting my mother there. I also have a cane made of Tennessee grape vine that a man gave to me one day after I had commented on how cool it was. He just gave it to me and walked away. Really cool. I love that cane. It has a whorled or twisted part near the bottom, that looks like a spiral staircase. I use this cane the most.

       

       

      THANX


    • Always laugh when you can. It's cheaper than medicine.....
      ________________________________________________________________________________

      Say ya to da UP, eh?
      __________________________________________________________________________________
    • Reply Contact
  • SteveSki SteveSki
    Posts: 46
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 7:34 PM

    • OK, but you have to show us the article!

      Age 32
      Gender M
      Disability T-6 para

      Is your disability acquired? If so when?
      Yep, Dec, 1993
       
      What type of barrier bothers you most?
      Lowest  1   2   3   4  5  Highest
      Physical 4
      Self imposed 5
      Social 1
      I have the most actual trouble with physical barriers.  But whenever I find myself artificially limiting myself in some way - and it doesn't happen often - it really, really pisses me off.

      If you encounter someone looking at you do you...
      a. pretend you didn't notice
      b. stare back without speaking
      c. try to talk to them
      This question/answer structure is flawed for this question.  Multiple choice imposes a mutual exclusivity that does not exist in the real world in this particular scenario.  The answer is d. any of the above or something else entirely depending on the situation and the people involved.  Sorry, but this is a badly posed question that probably won't help you gain any relevant knowledge.
       
      Who do you find has a more difficult time dealing with disabled people?
      a. children
      b. parents
      c. both
      Parents/adults - the kids are more free of preconceptions and notions of what might or might not be appropriate.  Their responses are genuine representations of their perceptions.
       
      Do you think other's expectations shape your performance in school or the workplace?
      Yes/No
      Positive/ Negative
      Yes, but no more than before I was paralyzed.
      +/- Mostly positive.  If their expectations are high, I aim to validate them.  If they're low, I aim to make them think twice about underestimating me.


      Do you find the term handicap derogatory?
      No.  Here watch this:  Handicapped, disabled, person with a disability, crippled, differently abled, handicapable - never once did my condition change.  I've heard people say "handicap" with respect just as I've heard "person with a disability" spoken with derision.  It's the person providing the term's intent, not the term itself I find derogatory or not.

      Have you ever been given money by a stranger who assumed you were asking for money
      Haha, no.  They would've gotten slapped.
       
      When strangers try to help you do you find it hinders or makes you uncomfortable?
      Sometimes.  When people try to help me transferring in or out of my chair it can actually be dangerous for me.  Again, it depends on the situation and the person's approach.  If I clearly need a hand and someone offers it, I'm grateful and say so.

      If your disability could disappear would you do it?
      In a heartbeat.
       
      Most of your relationships have been with disabled/non disabled partners?
      Assuming you mean romantic relationships, non-disabled, other than their mental psychoses.

      What is your opinion about having children?
      You are a parent
      Some day
      Undecided
      Aren't your provided answers statements of fact rather than opinions?  My opinion about having children is it's generally a good thing as it serves to perpetuate our species, though it does contribute to crime.  The fact of my circumstance regarding children is I do not currently have children, and am undecided as to whether or not I someday will.
       
      If you have a physical disability...
      Do you find the part(s) of your body affected by your disability less attractive?
      Yes.  Subjectively and objectively.

      When dating, do you find that you focus on that physical aspect of your partner more/ less?
      On which physical aspect?  Do you mean just in general?  If so, then I focus on the physical aspect less now, though I think that's more a function of my maturing than a response to my disability.
       
      If you use a mobility aid do you decorate it or choose the best looking style?
      Well, I certainly didn't go through the catalog and say, "Hey that one's frickin' ugly!  That's the one for me!"  My priorities when purchasing a new wheelchair are balanced between functionality, cost & style.


    • Reply Contact
  • Brooke Laynie Brooke Laynie
    Posts: 45
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 8:36 PM

    • Age  34

      Gender   Female

      Disability   Cerebral Palsy

       

      Is your disability acquired? If so when?    Birth.  Got worse in my late 20's and worse again in my early 30's.

       

      What type of barrier bothers you most?

       

      Lowest  1   2   3   4  5  Highest

      Physical          3

      Self imposed    1

      Social              4  

       

      If you encounter someone looking at you do you...  A

      a. pretend you didn't notice

       

      Who do you find has a more difficult time dealing with disabled people?  B

      b. parents

       

      Do you think other's expectations shape your performance in school or the workplace?

      No.  I decide my own expectations. 

       

      Do you find the term handicap derogatory?  No.

       

      Have you ever been given money by a stranger who assumed you were asking for money?

      No.

       

       

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Always hinders and makes me uncomfortable.  But I try to be polite anyway, since they don't know they're making me uncomfortable. 

       

       

      If your disability could disappear would you do it? 

      No. I've always been this way, I'm used to it.  I wouldn't want to have to adjust to a new way.

       

      Most of your relationships have been with disabled/non disabled partners?  Non Disabled.

       

      What is your opinion about having children? 

      Love it.  I have 2 boys, ages 6 and 8.  We want to have more kids once I get used to my recently lowered level of mobility.

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive?   Yes.  I wear pants whenever possible to cover up my legs.

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less?   More.  My lower legs have always been my weakest part, and I learned I could tell a lot about a man by looking at his calves and ankles.

       

      If you use a mobility aid do you decorate it or choose the best looking style?  

      Yes.  I don't decorate it, but I did shop around until I found one that both looked good and had good function.   Instead of a normal forearm crutch, I use a Strongarm that I found on this site:  http://www.strongarmmobility.com/.  I picked the copper-brown one, and I like how it matches a lot of my outfits.  I also get a lot of comments on how cool-looking it is.

       

       


    • Brooke Laynie

    • Reply Contact
  • ShondaMc ShondaMc
    Posts: 73
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Mon, May 19 2008 8:54 PM

    • HI GUYS

       I AM TRYING TO ANSWER SOME QUESTIONS OF DISABILITY. IT'S AN ARTICLE FOR MY  PSYCHOLOGY CLASS PEASE HELP.....

       

      Age 37

      Gender Female

      Disability

       Juvenile Rheumatoid Arthritis

      Is your disability acquired? No

      They think I was born with it...but it manifestet at age 6

      What type of barrier bothers you most? Attitudinal, physical, mobility

       

      Lowest  1   2   3   4  5  Highest

      Physical 3

      Self imposed 1

      Social 2

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice

      b. stare back without speaking B...at times

      c. try to talk to them, if they approach me

       

      Who do you find has a more difficult time dealing with disabled people? (people with disabilities) Adults

      a. children

      b. parents

      c. both

       

      Do you think other's expectations shape your performance in school or the workplace? NO (thank God)

      Yes/No

       Positive/ Negative

      Do you find the term handicap derogatory? I see it as the obstacle one has due to disability...but, at times...depending on context

      Have you ever been given money by a stranger who assumed you were asking for money? NO

      0 

      1-2

      3-4

      5 or more times?

       

      When strangers try to help you do you find it hinders or makes you uncomfortable? At times, it hinders me.

      Always

      Almost always

      Sometimes

      Rarely

      Never

       

      If your disability could disappear would you do it? No...For me, it would be like me undoing being Black. It's who I am, apart of me...

       

      Most of your relationships have been with disabled/non disabled partners? partners without disabilities

      What is your opinion about having children? Some day

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive? It's affected by it. some of my scars aren't cute, but i can live with them. :)

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less? I don't focus on them.

       

      If you use a mobility aid do you decorate it or choose the best looking style? No

      I hope this helps....what's the premise of your research? 

      THANX


    • Shon
    • Reply Contact
  • Anonymous
    Posts: 2,344
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Fri, May 23 2008 12:46 AM

    • violeta240:

      Age 54

      Gender Male

      Disability Polio, age 4, now arthritis, PPS

       

      Is your disability acquired? If so when? Yes, 1958

       

      What type of barrier bothers you most?

       

      Lowest  1   2   3   4  5  Highest

      Physical  3

      Self imposed  5

      Social  4

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice -- usually.

       

      Who do you find has a more difficult time dealing with disabled people?

      b. parents -- Kids often ask me to give them rides on my wheelchair. Only one adult has ever done that.

       

      Do you think other's expectations shape your performance in school or the workplace?

      Yes Depends on situation/setting. Positive at work, negatively when I encounter a real jack-ass.

       

       

      Do you find the term handicap derogatory? No

       

      Have you ever been given money by a stranger who assumed you were asking for money

      Yes. I often like to talk about things I want to do to improve my home, my castle. I constantly think about ways to improve things, yet when I talk about them people tend to want to "fix it" for me. That is absolutely NOT my intent. I just like to discuss my ideas, yet I have to be careful what I say and to whom I say it. For example, I was talking with a friend about things I could do to help me get up a hill into my backyard. I had a simple plan for a relatively inexpensive project. Next thing I knew, this friend had gone around to lots of our friends and (without my knowledge or consent) asked for donations of time and money. While I appreciated the help and the kindness, the finished project was far more than I needed to get the job done, and if he had only asked me first, I could have pointed out several things I needed much more than that expensive walkway.

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Almost always

       

      If your disability could disappear would you do it? No way. I don't like my handicap, but it has given me insight into myself and life in general that would be impossible to get any other way. I would refuse it if the choice is to have my current life, vs. never having had the disability in the first place. (Only if I could keep my life and loose the handicap today would my answer be YES)

       

      Most of your relationships have been with disabled/non disabled partners? Non disabled

       

      What is your opinion about having children? I am a parent. I was fortunate enough to have a good job and with my wife was able to provide physical, emotional, spiritual support for our children.

       

      If you have a physical disability...

       

      Do you find the part(s) of your body affected by your disability less attractive? For many years, yes. For the past 10 years or so, no. I wear shorts at every opportunity now, I wouldn't have been caught dead in them when I was 30.

       

      When dating, do you find that you focus on that physical aspect of your partner more/ less?  N/A

       

      If you use a mobility aid do you decorate it or choose the best looking style? Both. All my equipment is heavily modified to suit me. Some call me the "red-neck roller-boy"

       

      THANX


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  • Handicapable Handicapable
    Posts: 30
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Fri, May 23 2008 1:20 AM

    • 34, Female, Spina Bifida

      Spina Bifida is a birth defect, thus acquired at birth

      Bothersome barriers:  Self-imposed (1), Physical (3), Social (5)

      If a child is staring, I try to talk to them.  If an adult is staring, I stare back, (if looks could kill...)

      Parents definitely have the hardest time, children, like God, are differ-blind!

      Depending on a person's outlook that you are associated with, can definitely hurt or heal your effectiveness.  We tend to give people just exactly what we think they expect.  And, as for the term "handicap", I am never handicapped unless my surroundings require me to be.

      Growing up singing in church, I have been given lots of money because I allowed God to use me and it blessed others, but I don't think anyone has ever thought I was looking for them to give me money.

      A stranger's "help" almost always makes me uncomfortable, and doesn't usually prove to be that helpful at all due to the fact that they usually do not know how to help.  They usually have a good heart about it though!

      I would not trade my disability for able-bodied life in the least.  It has taught me many hard life-lessons and has made me who I am today!  I have experienced a deeper sense of God's grace also than I think is available to able-bodied people.

      I have only been in one relationship to the present.  My fiance is also disabled, and I wouldn't have it any other way.  Our bond is greater because we understand each other very deeply.  Sometimes, even more than we tend to give each other credit for!

      Chris and I will probably try to have children some day.

      My legs and feet look funny to me, because I know they don't work.  They are also malformed, but their perfect to God, Momma and Chris, and that's all that matters to me!

      Chris has the same disability as I do.  One time he asked me to rub his feet and I got all weird about it.  I knew he couldn't feel it, but he said he enjoyed just knowing I was touching him.  I did it as a love gesture, but didn't really get into it like I probably should have.

      I don't worry so much about what my wheelchair looks like except color.  It's gotta be a catchy color, because then I feel like I've got it going on anyway!

      Hope this helps :-)

       


    • We use our powerful God-tools for smashing warped philosophies, tearing down barriers erected against the truth of God, fitting every loose thought, emotion and impulse into the structure of a life shaped by Christ.
      2 Corinthians 10:5
      (The Message)
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  • koalamate koalamate
    Posts: 16
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Fri, May 23 2008 2:18 AM

    • 38

      female

      mild cp

      physical-4

      self imposed-5

      social-5

      stare back (with a smile)

      children

      no

      slightly

      0

      almost always (stubbornly independant)

      yes

      non-disabled

      I'm a parent

      yes

      less

      yes


    • Christy.....
      *** Reality is just all that confusion in between the naps! ****
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  • Shannon Shannon
    Posts: 10
    • permalink Re: CAN YOU HELP ANWER THIS SURVEY

    • Posted: Sun, Jun 01 2008 6:00 PM

    • Age 37

      Gender female

      Disability cp

      Is your disability acquired? If so when? my disability is a birthday gift from god that was diagnosed at age 2 when I wasn't meeting "milestones".

      What type of barrier bothers you most?

      Lowest  1   2   3   4  5  Highest

      Physical 5

      Self imposed 1

      Social 3

       

      If you encounter someone looking at you do you...

      a. pretend you didn't notice or tell them to take a picture cuz I won't be standing there too long-- the picture lasts longer.

       

      Who do you find has a more difficult time dealing with disabled people?

      a. children-if their parents teach them to just walk away, most of the time they just want to ask questions about the chair.

      b. parents-- if they are closed minded

       

      Do you think other's expectations shape your performance in school or the workplace?

      Yes- most of the time i feel like I have to continuously prove my abilities, I spend my time breaking others preconceived notions of people with disabilities. Most often I exceed their expectations and leave them with their chins on the floor. when they pull themselves together they apologize profusely for not giving me the benefit of the doubt, and thank me for changing their attitudes about people with disabilities. So I guess that's positive and negative.

      Do you find the term handicap derogatory? YES, it's antiquated, incorrect and frankly nauseates me

      Have you ever been given money by a stranger who assumed you were asking for money

      No-- but I have had people stop their cars and ask if they could have permission to lay hands on me so they could pray for me to be healed. Then there's the all too frequent occurrance of when "good samaritans" are driving down the road and see me walking in my neighborhood and assume I'm in distress so they call police and EMS. that's happened about 4 times a year.. such a waste of civic funds

      When strangers try to help you do you find it hinders or makes you uncomfortable?

      Depends on if I need or want help, but I'm always polite. I appreciate Acts of Random Kindness 

      If your disability could disappear would you do it?

      I don't think so. Sure, there are aspects that I'd gladly give back to god, but overall, my disability is a part of me. for better or worse, I am who I am. I'm not sure I like me all the time with the CP I'm not sure I'd like me without the CP either. All I know is that it's like my skin color.. there are limits to what can be altered. I've accepted the CP as a part of me, it's not the entirity of the definition of me.

      Most of your relationships have been with disabled/non disabled partners?

      I don't limit myself to disabled or nondisabled partners.. If someone is interested in me I consider if I'm interested it him. If there's mutual interest we explore the relationship together.

      What is your opinion about having children?

      That will ultimately depend on my partner, but as I'm not able to have children due to Ovarian and Uterine Cancer, adoption is the road that I need to take.

      If you have a physical disability...

      Do you find the part(s) of your body affected by your disability less attractive?

      Not really. I think that everyone has some aspect of their body that they would hide or change if that were an option

      When dating, do you find that you focus on that physical aspect of your partner more/ less?

      What draws me into a relationship is my partner's mind and attitude and approach to life. then if I have to choose a physical trait I'm attracted to eyes.

      If you use a mobility aid do you decorate it or choose the best looking style?

      I choose neutral or dark colors, usually black/blue. I like blue and I want people to focus on me and not my chair. I want my chair to blend in as much as possible.


    • Much Love & Peace To All
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