Last post Fri, Apr 11 2008 5:37 AM by Deacon Patrick Jones. 22 replies.
Hello. My name is Josh. I had a Traumatic Brain Injury a little over 5 years ago. Can someone help me learn how to use disaboom and connect such wonderful people I see on this page? Nice blog,
take care,
Josh
Hi Josh,
Craig here. Thank you for your comment. I wrote Traumatic Brain Injury and Denial -- My Perspective as a TBI Survivor. I created a web site on February 6, 2007 called Second Chance to Live at http://secondchancetolive.wordpress.com/ where I share from my experience, strength and hope as a traumatic brain injury survivor and a master's level rehabilitation counselor. I invite you to stop by and spend some time reading through my site map that has 230 articles listed to be read. Stop by and spend some time reading some of my articles and if you like leave me a comment and I will respond.
Have a pleasant weekend my friend
Craig
Hello,
I am Bonnie. I am a miricle. I had a subarachnoid Hemorraghe ( ruptured Brain aneurysm ) I like using the technical term because most times I can spell it correctly. How did I do?
I have been fighting an up hill battle since " 04 ". I lost almost a month of my life. No coma just memory loss. I remember none of the pain etc. I lost my fiance eventually. I went through a bad depression and guilt trip.Gained weight and went on a big poor me trip. Now that I am doing better with all that stuff I face a new wall to climb over. I recently became engaged again. My new fiance didn't know me pre aneurysm. He is a very intelligent man. Says he understands alot. But most times I feel like he just doesn't get it. He thinks if I try harder I can make my brain work again. I know you can train other parts of your brain to take over for the non working parts. Unfortunatly for me I live in a small rural town in Pennsylvania where their is no such thing as a Neuro Pshyc. DR. or the rehab I would need. I have come along way in the past few yrs. I could barely walk a flight of stairs 4 yrs. ago now I can go roller skating with my grandchildren
I have been trying for 4 yrs. now to change things in my life. I still have no controll over what I can and can't remember. I spen alot of time online looking for brain games etc. I also walked alot. I am no longer suposed to walk due to Osteo arthuritis in my hip. He feels at times I use my disibility as an excuse. I don't mean too. But the way I look at it everything we do in our lives is controlled by our brains. Mine no longer works completly normal. So I do the best I can do. He feels he needs to continue pushing me to keep learning and improving.
I know i am different, I can no longer tollerate things like I used to. I can cut up with his 15 yr.old and wham like a light switch being flipped I can't stand much noise, and the comotion so I up and say stop and I want it to stop NOW! He feels I am wrong in expecting it to happen like that.My boys are slobs and I am on the neat side theese days. My balance is off, I fall easy so I like everything put away not left on the floor. I am a stickler on things being put away where they came from espically in my kitchen. I am told I am too pickey. I try to explain to them how important it is for things to be a certain wAy for me It's part of my survival technique. They know I am trying to do the best I can but think I could do better if I just try.
Sometimes I feel like screaming " My brain won't work normal no matter what I do."This is an example of a discussion on TBI. " Ok so you forget things, but then everyone forgets " OR " I lose my balance alot " everyone gets dizzy at times " . I get so frustrated at times I could scream but I just wind up crying. It's so hard for me to put things into words to explain why it's different for me.
I love the man to pieces and I know he loves me But i still think he just doesn't get it.
Thanks for letting me vent here. If any of this made sense to you and you have any words of wisdom pass them on to me.
nanny02
Hi Bonnie,
Thank you so very much for sharing your story and struggles with me. I can identify with your frustration. I have lived with an invisible disability for 40 + years. I have experienced simliar frustration with family and friends. As a traumatc brain injury survivor and a master's level rehabilitation counselor I share from my experience, strength and hope on Second Chance to Live http://secondchancetolive.wordpress.com . With in Second Chance to Live I have a site map http://secondchancetolive.wordpress.com/site-map/ with 246 current titles listed. You may find some comfort, as well as insight by reading from the titles with in my site map. Bonnie, not all of the titles have traumatic brain injury or living with a disability in the title, but all of the titles present material in such a way to help the reader to live life on life's terms. If I can be of help to you or your fiance please leave me a comment or a confidential email and I will respond to your question or concern to the best of my ability.
I hope the above has been helpful.
God bless you Bonnie.
Hi Patrick,
Just wanted to say hi and see how you are doing.
Have a simply amazing week end and God bless you.
Hello, Bonnie! Lovely to see you here. It is amazing all the wee miracles that happen everyday, aye? What you describe is very common to TBIers. THe frustration with family and friends, isolation, being easily overstimulated, etc.Balance: Have you seen an Ear, Nose, Throat specialist? Ballance issues are often inner-ear related and a good ENT can be very helpful.
Cognitive Therapy: I have home cognitive therapy ideas I've listed and you're welcome to join the email support group I moderate. My story and webpage can be found here.
Blessings,
Patrick
Hello Craig,
How am I doing? As fast as I can, as slow as I must. Grin. What's on your mind?
