Introduce yourself to the rest of the community
Posted on: Wed, Jul 9 2008 1:59 AM
Posted by: Becky Posts: 1,555
Hey Becky! Welcome to Disaboom. Sounds like you have a very interesting hobby and a great outlook on life. Good for you! You'll have to post pictures of your work. Good luck to you!
Becky
Posted on: Wed, Jul 9 2008 2:05 AM
ShimasChild: BTW, my disability is spinal, although I am beginning to think the worse part of me is the Carpal Tunnel right now. took me forever to type this with the braces on! Welcome to Disaboom. Shimas
BTW, my disability is spinal, although I am beginning to think the worse part of me is the Carpal Tunnel right now. took me forever to type this with the braces on!
Welcome to Disaboom.
Shimas
Hey Shimas! Ooh, I didn't know you had carpal tunnel. I started to get that about 10 years ago, after I had been typing for a while. I think I got it began over 20 years ago though, when I was working for an allergist/ENT physician and I had to make up vials of allergy tests. Anyway, I wore splints for years when I was sleeping. Couldn't wear them when I was typing though, cause they got in the way and I needed to type quickly. My CTS got much worse when I had to use crutches and a walker. I had the carpal tunnel release surgery two years ago and my hands are wonderful. I only get a bit of an ache once in a while. Send me a message if you have questions about the surgery. See ya!
Posted on: Wed, Jul 9 2008 9:42 AM
Posted by: ashamy Posts: 5
Hello Becky and all! This is my first post on this site and I am excited to make your aquaintence.
I have officially had MS since 1982 or before but I was not officially diagnosed until 1992. After going through 9 years of questions and doctors saying I was as healthy as a horse, I was diagnosed nand finally releived I had an answer, so to speak. Of course this opened a whole new mas of questions. I felt relatively good so I was not terribly upset yet. The only things I ever heard about MS........was nothing,so my questions were not deep yet.
I worked part time until '94 and before that I went on SSDI until present.Anyone using REBIF?
Posted on: Wed, Jul 9 2008 9:48 AM
Whoops' until after that, I went on SSDI ! my brain still doesn't want to say whay I want to say!
Posted on: Wed, Jul 9 2008 9:51 AM
Posted by: dahampton Posts: 43
ashamy: Hello Becky and all! This is my first post on this site and I am excited to make your aquaintence. I have officially had MS since 1982 or before but I was not officially diagnosed until 1992. After going through 9 years of questions and doctors saying I was as healthy as a horse, I was diagnosed nand finally releived I had an answer, so to speak. Of course this opened a whole new mas of questions. I felt relatively good so I was not terribly upset yet. The only things I ever heard about MS........was nothing,so my questions were not deep yet. I worked part time until '94 and before that I went on SSDI until present.Anyone using REBIF?
Hi lauren
i have a question for you and anyone else with MS, i have a spine disability with thoracic outlet prblems, ulnar nerve neuropathy. I have a tendancy to fall alot, this last one a couple of weeks ago creating hugh issues. My primary askedme if i had ever been testedd for ms. i know my sister in law has it but she (hate to say this but its true) is pretty much clueless about the whole thing. so i am asking you andd any else who cvan answer this question to respond, how were you diagnosed with ms, i know that is a perrsonal question. also sorry about the typos my hands are not cooperating toay
wheres to a pain free day (yeah right that will happen)[:'(]
Posted on: Wed, Jul 9 2008 11:32 AM
dahampton; I am sorry about you and your family not learning about MS and so many conditions very closely associated to MS. Most of the things you mentioned are also symptoms of MS. If at first you get no positive answer try someone else. After 9 years and several very good jobs, I changed medical and specialists often.The first Nuerologist. He said, "I did not find anything, you are healthy and I do not think we will find anything but I will put you in the hospital for a spinal tap. He came back after the tap and said I owe you an apology. I found something but I do not know what it is. This was over 16 years ago and much headway out now. Go to a good Nuerologist specializing in MS and ask questions. When I was having more problems than just an occassional stiffness or dropping things I wanted to know. The First doctor did usual tests but said there is nothing wrong with you. I immediately changed doctors. The new doctor, a woman and family prcticioner, redid tests plus and said I do not know what it is but I know it is something and referred me to a Nuerological Hospital, doing MS diagnosing and testing.
In 1992 they finally found out it was MS. Today there is so many medicines to slow the progression but that does not stop it but slowing the inevitable is a huge plus.Please feel free to contact me any time.
Amy
dahampton: ashamy: Hello Becky and all! This is my first post on this site and I am excited to make your aquaintence. I have officially had MS since 1982 or before but I was not officially diagnosed until 1992. After going through 9 years of questions and doctors saying I was as healthy as a horse, I was diagnosed nand finally releived I had an answer, so to speak. Of course this opened a whole new mas of questions. I felt relatively good so I was not terribly upset yet. The only things I ever heard about MS........was nothing,so my questions were not deep yet. I worked part time until '94 and before that I went on SSDI until present.Anyone using REBIF? Hi lauren i have a question for you and anyone else with MS, i have a spine disability with thoracic outlet prblems, ulnar nerve neuropathy. I have a tendancy to fall alot, this last one a couple of weeks ago creating hugh issues. My primary askedme if i had ever been testedd for ms. i know my sister in law has it but she (hate to say this but its true) is pretty much clueless about the whole thing. so i am asking you andd any else who cvan answer this question to respond, how were you diagnosed with ms, i know that is a perrsonal question. also sorry about the typos my hands are not cooperating toay wheres to a pain free day (yeah right that will happen)[:'(]
Posted on: Wed, Jul 9 2008 12:32 PM
Lauren
I am so sorry that you had to go through all that to be diagnosed. I am going to ask my primary if he would just go ahead and test me, that way i can deal with what comes next. i really hate tripping (my foot in the way) or falling for no reason, i also have balance problems sometimes. I drop things all the time, i am just a mess. Once you find out what it is you have a goal to set, when you dont know what it is it wears you down. I also need to have my house adapted to where i can do more sstuff, i gotta figure that one out still. Well God Bless and hope you feel better, thank you for your thoughts
deb
Posted on: Thu, Jul 10 2008 1:55 PM
Posted by: Debbie Posts: 3,878
hi lauren it is nice to meet you as well. welcome!
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