Fibromyalgia

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Re: Living with the pain of fibromyalgia

Posted on: Tue, Dec 11 2007 12:09 AM

Posted by: Debbie Posts: 3,878

hi jack and daydreamer, [love the veterans, thanks it's nice to meet you. i fell 3 yrs ago and have been trying to control my pain as well from 2 surgeries ect.. i wish everyone luck [me too lol] to hopefully find he right answer for our bodies. i'm a vegetarian, not keen on taking anything really.

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Re: Living with the pain of fibromyalgia

Posted on: Tue, Dec 11 2007 12:37 AM

Posted by: THUNDER40CAL Posts: 187

Hi again all I am pleased to see the ranks growing, we all need a place to vent and talk about our trials and tribulations it helps all of us.

In the same vein but in a different part of the body NONE of us has all the answers about Fibromyalgia As terryLynn put it we are all different. However some of the Quack treatments out there can possibly do more harm than good, So I urge you all to be careful when dealing with doctors of ANY KIND, check credentials first, talk to others who can back their claims.

I Have been going through this game of guess and guess again with so called specialists for Many years, and many of them meant well but didn't have a clue.

Please understand this is not an attempt to scare those newly diagnosed or put down anyone. This is my opinion and mine alone and these opinions have been formed from MY personal experiences.

that being said just because there is an MD or GP or PHD etc after someone's name does not make that person an expert on a particular condition. Only the sufferer can best Judge what does and doesn't work for their body, Furthermore what has not worked for me may work for you, I just pray none of you who suffer from this disease are like me, made to suffer one more needless pain just because some overly righteous DR DINGLEBERRY who is more bent on building his practice than sticking to the Hippocratic oath, fails to see the patient in front of him as a living feeling being rather than a practice dummy to try his newest guess out on.

sorry if this may upset some of you it is not meant to NOR is it meant in any way to prevent any of you from continuing to seek the best treatment you can find, BUT I would like to try to help those newly diagnosed and those of us who are desperate for relief as most of us are, Not to make the same mistakes I have paid so dearly for. They say an ounce of prevention is worth a pound of cure....... well in all our cases I believe ten minutes of investigation can prevent 10 days of pain. thank you to all who are reading this.

and may the GOOD LORD keep you free from harm and free from pain

Jack

JUDGE not the words you have read Only the heartfelt wishes for a speedy cure to all that causes us pain

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Re: Living with the pain of fibromyalgia

Posted on: Tue, Dec 11 2007 9:38 AM

Posted by: zgailgoodman Posts: 81

found something that is helping me and others and its a blessing I found it. Actually my friend Bruce who is a nutritioninst found it and emailed it to me. He no longer has painful knees and I no longer have dizzy spells and I have more energy. It seems to do different good for different conditions and bodies. I can only give you the website. There is a video explaining it. or you can reach me at zgailgoodman@yahoo.com. Sometimes I'm on the disaboom chat. I wish I could get eveyone to know about this so we can have what we need for our bodies. NOT A DRUG. www.shopgbg/317532

Gail S. Goodman age 55,upstate New York dyslexic but big problem is that do to a 2am night shift,after a year and a half I was really sick from light and sleep deprivation and developed a mood disorder and then 5 years ago was attacked and still suffer from PTSD. Developed sleep apnea and now take med ication for that to. On the outside I seem perfectly well. So my disability is hidden but it has affected me socially because I'd just as soon be alone but they warned me that is not good so I force myself out. But rarely enjoy it. My mood disorder is organic and I suffer from severe depression even when things are going well but medication and therapy have helped. When I tell them that I was attacked there seem to be some compassion but best of all I don't get question why I am on workers comp...it happened at work, I'm still struggling to get back more of me and it is slowly coming. I always need hope. I live on hope. I've been getting good results from a highly potent liquid vit/min suppliment with 65 trace elements and even more for just $19.95. Its a miracle someone told me about it. By day three I felt different. Here is the site if you want to check it out,it even has 16 pages of the physicians desk reference. If you want it DON't pay retail just order the wholesale and you even get a free website but you don't have to sell. I just tell my friends what it has done for me and another friend and they check it out. Its up to you .....no selling here just info www.shopGBG.com/gailgoodman

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Re: Living with the pain of fibromyalgia

Posted on: Tue, Dec 11 2007 2:47 PM

Posted by: LadyHeartSong Posts: 9

I have been dealing with fibro since I was 23.. I am now 34.. 160mgs of M-Eslon ( morphine) a day to help deal with the pain..the frustration levels I find tend to vary depending on how bad your pain is that day.. on a scale of 1-10.. I dont remember the last time I was under a 5..even with all the meds in my system..

I talked to my doc about Lyrica.. he said it wasnt for me and wouldnt put me on it.. btw I am canadian.. not sure how many canadians are on here.. medical is different up here..lol so I am stuck on what I can do..
not to advertise another website.. but check out the letter to normals at www.fibrohugs.com site.. I cried the first time I saw it..I felt so alone until I read that.. I have it printed out on my fridge and I read it every day.. especially when my pain is so high.. its worth reading...

figured I would throw my two cents into the pile
hugs to all my fellow fibromites

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If This Interests You.. Feel Free To Email Me Anytime For Information.

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Re: Living with the pain of fibromyalgia

Posted on: Tue, Dec 11 2007 6:24 PM

Posted by: zgailgoodman Posts: 81

I noticed you are from Canada. At this time the supplement I was going to refer you to is only avaible in the USA But I will give you the website since you may have a friend in USA who could send it to you. It will be made available worldwide in the future. Its a liquid vitamin /mineral supplement with 63 trace minerals. I have had improvement with it as has my friend Bruce. check it out for yourself. And anybody else. I'm trying to share this with others and yes I am a rep after buying and using it. Watch the video" www.shopgbg.com/317532 There is a 60 day empty bottle guarantee. So if it didn't work you just cancel and get money back...but what if it does help you. It seems to help everybody differently.

Gail S. Goodman age 55,upstate New York dyslexic but big problem is that do to a 2am night shift,after a year and a half I was really sick from light and sleep deprivation and developed a mood disorder and then 5 years ago was attacked and still suffer from PTSD. Developed sleep apnea and now take med ication for that to. On the outside I seem perfectly well. So my disability is hidden but it has affected me socially because I'd just as soon be alone but they warned me that is not good so I force myself out. But rarely enjoy it. My mood disorder is organic and I suffer from severe depression even when things are going well but medication and therapy have helped. When I tell them that I was attacked there seem to be some compassion but best of all I don't get question why I am on workers comp...it happened at work, I'm still struggling to get back more of me and it is slowly coming. I always need hope. I live on hope. I've been getting good results from a highly potent liquid vit/min suppliment with 65 trace elements and even more for just $19.95. Its a miracle someone told me about it. By day three I felt different. Here is the site if you want to check it out,it even has 16 pages of the physicians desk reference. If you want it DON't pay retail just order the wholesale and you even get a free website but you don't have to sell. I just tell my friends what it has done for me and another friend and they check it out. Its up to you .....no selling here just info www.shopGBG.com/gailgoodman

Filed under: Health, pain relief, mental health, neurological health

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Re: Living with the pain of fibromyalgia

Posted on: Wed, Dec 12 2007 5:39 AM

Posted by: terrylynn Posts: 186

Jack, Thanks for recognizing me in your post, but I hope your not referring to me or my natural supplement beliefs as QUACK. I have done a lot of research for MYSELF, and because for some reason, we with fibro seem to become very sensitive to medications. If a body is lacking something natural, why not replace it with something natural instead of the risk of serious addictions to medications or allergic reactions? There are excellent books on Fibromyalgia that you can find in any book store. It helps, for me anyway to know what is going on with my body. I have never been one to just accept what a doctor tells me and take the pill without knowing what the pill is, does, etc. It is up to us to be proactive with our own health. IT WORKS FOR ME!!!! God Bless You, Jack terrylynn "Once word are spoken, there is no going back"
No amount of kindness, no matter how small is ever wasted

Filed under: FIBROMYALGIA

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Re: Living with the pain of fibromyalgia

Posted on: Wed, Dec 12 2007 7:14 AM

Posted by: THUNDER40CAL Posts: 187

TerryLynn, to try to put your mind at ease, I wasn't pointing fingers at any one. Each of us has had a different experience with FIBROMYALGIA, it is a hideous and debilitating disease. However there are those who would try to profit by preying on our need for help with no regard for our well being. ( Again just a statement of fact ) THAT was my only point. If a treatment works for you great. But until there is a proven cure, we all need to be aware that unfortunately people like that do exist and yes even the FDA can make mistakes. Again as you said , "we are all different" I see no reason, why we all shouldn't learn from each other

thanks

Jack

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Re. Finding a natural Product to help

Posted on: Wed, Dec 12 2007 8:10 AM

Posted by: zgailgoodman Posts: 81

Here is a vitamin/mineral 10-in-one liquid multiformular that I found out about because my friend Bruce who is a nutitionis trid it and all the pain in his knees is gone. I decided to try it too. Its even got 63 tracemineral and a cardiovascular formula, a stress formula,super anti oxidant formula andan energizinf formula plus and five more formulas all in a liquid form to enter the system in three minutes. For me I took an ounce each day for two weeks and noticed all my 1 second dizzy spells were all gone. I had had that for three years and top Doctor couln't even diagnos it. Well obviosly I was lacking in something and now I nolonger was. After three weeks the leg twitching at night completley stopped. I'm only on my fourth week. on hte website is a 16 page right up on GBG in the physicians desk reference. I also happen to be a biologist so it all made sence to me(I'm also dyslexic so please over look the typos I miss) Charlotte took it and in a few days had more energy which is good because without her ritalin she is spacey. She will still get more improvment..she is just on her first week. So for me I was sold and signed up for the autoship with the 60 day empty bottle guarantee.Just to make sure. Well I've seen the proof so now I use it and let others know. once you buy it the company also gives you a free website incase you want to promote it. Yes a free site with no hosting fees.So I want you to know that I am a rep who first used it and got results and was so impressed that this multi=formular could help me and others that i now an official. Everybody who buys gets the free website and use can use it or not. But when it works in some way for you,you may want to share with others or if you don't want the business part just give them the site you used to get yours. Have I noticed anything else. Yes! I haven't had to use my asthma inhaler but I'm still on singular. So now I'll give you the site and ask you to go there an see for your self. Kids can take it too at 17 lbs per teaspoon. This very well might bring you some relief. Its worth the try and you have the 60 to test try with the moneyback guarantee. Good health to all and yes i belong to disaboom www.shopgbg.com/317532

Gail S. Goodman age 55,upstate New York dyslexic but big problem is that do to a 2am night shift,after a year and a half I was really sick from light and sleep deprivation and developed a mood disorder and then 5 years ago was attacked and still suffer from PTSD. Developed sleep apnea and now take med ication for that to. On the outside I seem perfectly well. So my disability is hidden but it has affected me socially because I'd just as soon be alone but they warned me that is not good so I force myself out. But rarely enjoy it. My mood disorder is organic and I suffer from severe depression even when things are going well but medication and therapy have helped. When I tell them that I was attacked there seem to be some compassion but best of all I don't get question why I am on workers comp...it happened at work, I'm still struggling to get back more of me and it is slowly coming. I always need hope. I live on hope. I've been getting good results from a highly potent liquid vit/min suppliment with 65 trace elements and even more for just $19.95. Its a miracle someone told me about it. By day three I felt different. Here is the site if you want to check it out,it even has 16 pages of the physicians desk reference. If you want it DON't pay retail just order the wholesale and you even get a free website but you don't have to sell. I just tell my friends what it has done for me and another friend and they check it out. Its up to you .....no selling here just info www.shopGBG.com/gailgoodman

Filed under: Health, vitamins GBG multiformula mental health aspergers fibromyalgia

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