Last post Thu, Aug 28 2008 11:33 AM by sandyfreytag. 1665 replies.
Wendy,
Thank you for your wonderful note. You brought a tear to my eye. I love reading all the letters people write and they make me feel not as alone in our world. However, I don't think any of the letters I read did that. Don't get me wrong, they all touched my heart and really helped. Thank you for a moment I I have not had in a long time. You are so sweet and thanks for giving something I did not know I needed. It is funny how alone you feel and don't know it. If I helped you at all, I'm so glad. But what you did for me, I can never thank you enough for. I don't know about being smart, maybe it is just trying to have a good sense of humor...... We may not know each other, but it is kind of like friends. I really feel a little less loney - wow what a feeling.....
Much and all my love, Rabbit Lady
Hello Betty B & those reading these letters,
Just for all your information. IMIPRAM HCL TAB 25MG was something I was on to help with my sleep and pain. It was very good; however, I developed UTI which is listed as a side affect. I did not understand what and how it happened, I know now. I normally read to death about side affects of meds. I did not find this one until a web site on line recently. But it developed into a Kidney Infection and now my blood pressure is sky high. I am going to dr soon to get a handle on this. This is something I should have been more prepared for. But did not get this info until recently. If you take, it or want to it is good. But be aware of the problems it can lead to. I know every med has issues and side affects. This kind of got bad and I will take care of it soon. Now I'm not on it due to the results, but I know it could hav been worse.
Rabbit Lady
Thanks for the hugs, Wendy, I take 'em any way I can get 'em....LOL I will let you know how things go, and thanks so much for your kind words and for caring. It means a lot and it helps to know someone's out there rooting for me!
I love your idea of the Fibro Home, Rabbitlady....can I come? LOL
Hang in there everyone and know that I am doing the same. God Bless You all!
Gentle Hugs,Maggie
WENDI , I HAVE BEEN TRYING TO FIND YOU AND RABBIT LADY FOR THE LONGEST TIME...IT IS OBVIOUS I DON'T KNOW HOW TO USE THE COMPUTER THAT WELL, OR UNDERTSTAND WHAT EVER THEY ARE TRYING TO TELL ME TO DO.... I HOPE YOU CAN FIND SOMEOF MY POST THAT I HAVE WRITTEN...I HATE IT WHEN PEOPLE START FEELING SORRY FOR THEM SELVES. I WILL DO WHAT EVER IT TAKES TO FEEL BETTER.... I HAVE ALOT OF FEARS, BUT I DON'T FEEL SORRY FOR MY SELF.... I AM 56 YEARS OLD AND STILL DREAM OF RUNNING EVERY NIGHT. I AM LUCKY I HAVE A HUSBAND THAT WILL COACH ME AROUOND THE TRACK EVERY NOW AND THEN...SOMETIMES I HURT SO BAD....HE JUST PUSHES ME ALONG. GOD BLESS HIM. GOTTA GO DINNER IS READY PLEASE LETS BE FRIENDS I AM SO LOST ON THIS PART OF THE WORLD
MARY BETH
Hey MaryBeth I am so glad you found us, I think we are a great bunch of people. We are always aclick away . L isten i just got my computer for christmas.My husband bought it for me because i am layed up a lot .So hang in there i am just learning my self.I would not touch this computer for a month i was so scared. But it really has saved my life. I have connected to some wonderful people.It sounds like you have a good husband but you need to have contact with people who completely understandyou and just listen .Believe me it has made such a differance in me,Iso look forward to getting on this site and talk to all my new friends i feel more positive and i havent felt that in a long time. So welcome MaryBeth talk to you soon , big hugs Wendy
Mary Beth,
Hello and welcome to our club. I'm going to look for those letters you posted. Isn't wonderful all the good information you get from other Fibro family members. I checked out other sites and found them to helpful as well. But this site seems to be filled with people who really care so much..... I feel I found a friend in Wendy. She has a good soul and a caring heart. I do think all others here are wonderful as well, but some people kind of stand out. Yes lets be friends. Just think you can live in our Fibro house. Don't feel well enough to do chores, take a guilt free day off. When you feel better you can do the chores. If only that was possible.
It is nice to hear you have a supported and loving husband. Some people are not so lucky and my heart goes out to them. We all have fears, but sometimes I wonder if the Fibro has something to do with it. Can't prove it but sometimes I feel that way. I'm 51 myself - Isn't being 50ies great..... NOT. Our bodies start to decay and well I'm never doing so well besides that. I do try to focus other things or others to distract me from pain or just problems. Pain has become our constant companion whether we like it or not. I was told by a dr. and always felt that you just get used to it. God - how can pain be something you'd get used to. But it is true. I'm not complaining I always count my blessings. I'm honored you were looking for us. God I hope I did not say anything bad to get your attention....... Just kidding again.
As far as computers, they should have wrote it in English. Whatever the language is to work with computers is - is not the English I know. I like computers, but they are hard to understand. I believe the designers purposely wrote programs and instructions with words and descriptions regular people cannot understand. I believe it is done to keep those who understand separate from those who don't. Those who can and those who can't - scary. Have they ever heard of layman terms? But what do I know I'm like everyone else.
Well hope this letter finds you with less painful today. Be well and always good to yourself.
Look all I want to know is where the hell is Jack? LOL Wendy
HERE I IS LOL
sorry I have been sitting back reading all the comments about how much pain ya'll have,
and basically saying got that got that uh huh yup been there done that, but seriously folks
I've been having a hell of a bad time and when I'm in the 99% PAIN BRACKET I get well umm
Grumpy to say the least homicidal to say the most.
I try to keep my emotions under control but fail miserably at times and the BAD JACK comes out to play
I'm sure all of you have had days and weeks like that well it has been 5 weeks straight for me the doctors cannot help me I am blessed that they realise it and do not cause me any more pain.
I take my meds and pain pills they do nothing for the pain and I suffer terribly NOW I BEG you to understand what I am about to tell you and try not to judge me I have been in law enforcement all my adult life and Until a month ago have never done anything remotely questionable with that being said i'll tell you my story in the hopes that it helps someone else. ( DEEP BREATH ) one night a month ago I was near death from the meds I was on trying to control the pain when my 24 year old nephew stopped by I was inconsolable the pain was at it's zenith and I couldn't take any more meds he sat with me for 6 hours while my bride was at work and then he said somthing to me that surprised the living hell out of me, he said UNK I got somthing I want you to try for me I said I can't even sit up and you want me to move? he said no no no with that he handed me A joint if I could have beaten him to death I probably would have but as it was I could hardly frown. Now I am no saint but I do not drink and other than my percriptions do not do illicit drugs of any kind.
After the blood came back into his cheeks he asked me to just try it for him he had tears in his eyes and said I want to help well we sat for a long time before I spoke again I asked for guidance. the answer I got was one that I would have never expected clear as a bell In my head I heard a voice not my own say Jack if it is of the earth it is good!!!! OK so you are all thinking JAck has gone bye bye, well just the opposite my thoughts were clear in the six hours my meds had cleared my system and the pain was grotesque.
so with my nephew by my side I lit this thing I had fought all my adult life to rid our streets of on a nightly basis
it was like smoking the worst ciggarette ever it tasted like crap I coughed my brains out and nothing happened
well I should say nothing happened Yet......
I lay there in my bed with a clear head and no noticable effects at all then I tried to move YEEEEHAAAAA
it was like my eyes had turned into a high speed 35 mm camera taking hundreds of still photos and laying them next to each other I felt.....................well good not great mind you the diliterious effect were quite unnerveing as I lay back he said to me you ok I answered I'm not sure he asked how do you feel I said I feel heavy like I weighed alot more than usual he said you are very relaxed and he was right the pain had gone from grotesque to ok I got pain but I can live with that I said to myself........ I was hungry it was then that I realised that I hadn't eaten in 10 or so hours so he went and made me a sandwich and I devoured it with gusto.
now don't get me wrong I am not an advocate of illegal drug use and have since had a long talk with my nephew about the usual do's and don'ts but for the 2 hours the effects were with me I must admit that if given the choice of suffering what I was going through or useing natures pharmacy again I would CHOOSE NATURE everytime
ME THINKST WE HAVE BEEN LIED TOO for too many years, I have since done exhaustive research on the subjuct of MARY JANE WEED POT MARIJUANA what ever you would like to call it AND MY PERSONAL conclusion based soley on My OWN BODY all the VICODIN ES on earth ani't got SHITE on mother nature.
Sorry If I have offended anyone in the group but I felt I had to pass on this bit of information.
on my meds I couldn't eat I was totally useless I felt like hell and I couldn't sleep worth a damn
4 inhalations or hits and I was hungry as a bear feeling better than I had in months my pain level was down to about 40% and later that night I slept I slept the most restful sleep I had in ages with dreams I don't care to expose to mixed company needless to say LOL
NOW ALL I NEED TO DO IS GET IT LEGALIZED hmmm maybe I'll move to CA NOT!!!
SO that is my story and I'm sticking to it
Gentle Hugs
GOD BLESS ALL WHO SUFFER
JACK
Yeah where is Jack. Have not heard/read his messages for a while. Hope he is OK. If, Jack, you are reading this messages hello formally. I'm Rabbit Lady. I have to tell you, I love when you express your opinion. I mean when you disagree or challenge someone. Don't get me wrong - I love it. It shows who you are, how strong you are and how smart you are. When you explain things I learn so much. You are smart guy who obviously does research; it shows - keep it up. But I love the debates; if we cannot debate - where else are we going to find fun. Hope you are well and write when you time.
Hi Jack,
Well as in my previous note, hello I'm Rabbit Lady. As far as maijunana is concerned, I recently read on line that it is the choice of pain treatment from some pain management Drs for Fibro. As you say it is supposed to be a wonderful help with severe pain. They use it for cancer why not this. I know how you feel about marijuana, I agree. I personally don't have anything to do with people who use illegal drugs for fun. But I'm talking about people who look to just get high and are not sick. Being sick like this not much of a life, so who is say what is right... As far pain legal medication is concerned, what are we supposed to do. We kill or nearly kill our bodies with the legal meds everyday. We don't have much choice. So, why not if you need it and it helps. And no offense to anyone, but it helps you (or anyone that needs it), nobody has the right to judge. And if they do judge yours or any person in pain reasons, tell them to try to live like us. Again the saying I hate " you got to do what you got to do". Ok I had my say. My blood pressure is so high right now; it is all coming out... Glad it works for you. Maybe you should look into Drs that prescribe it. Be well, glad to hear from you. Keep your expressive nature going, I love it.....
Hello Rabbit Lady,
it is my sincere pleasure to make your formal aquaintance, I am also glad my point came across so well
as you said in your post "why not for this also", FMS is unpredictable at best and even for those of us who do research this ailment everytime we think we got a handle on it, it throws us a curve and we are back to the begining.
So as you choose to call it a debate I would rather call it a learning experience, the word DEBATE has the connotation that there is a right and a wrong, and as we all know ( one of my favorite sayings) We Don't know what we Don't know" I myself learn somthing new each day with this ailment. and as I learned from my fellow fibromites we all suffer differently and what works for one may not help another.
As I enter into my second decade wth fibro I only wish that one day we can look back and laugh at how we used to suffer and hold our great grand children when they come to us crying with a scraped knee or elbow and with the knowledge we hold we can truely say we understand thier pain.
again great to meet you
God Bless all who suffer
Jack
Well Jack/Iguess i found you! You know the funy thing is my husband was reading about treatments for fibro a few months ago and it claimed it really helped the pain.As a matter of fact Montel Williams is trying to get it legalized for M.S.he was in connecticut a couple months ago also. Thats were im from i dont know why he was fighting to legalize it here. Well i am just glad something has helped your pain, others swear by it.Good for you .Remember we are hear to just give our own personal esperience and share thanks a bunch.Man i hope i can keep thoughs munchies under control LOL. Big hugs Wendy
Jack,
What you wrote came across perfectly clear. If it helps us and does not hurt anyone - it should be fine. Maybe one day this medication will be more easily available to people like us. I believe it will because of how public our condition has become. I'm sure it will be well monitored. That would be fine too, secure it so no abuse is made. When the so-called "wealthy" used meds likes Oxyco and die from overdose. People who abuse it in a wrong manner. That really gets me mad. Things like that make it harder to get medication; even if you need it and show no abuse. I'm not saying - just give it away. But if I have to fight for something I really need - I don't look forward to that day. What can I say. Told you my blood pressure is through the roof. Unfortunately that is what I'm afraid will happen. I'll worry about that when the time comes.......
As far as what you said, "We Don't know what we Don't know". I stand corrected. I like the way that sounds more. I was really just kidding (affectionately) when I used the word "debate". Know what you mean - but really it was joke and I stand corrected. Hope whatever you do helps. You deserve it...
Wow Jack looks like you opened a can of worms (kidding). But seriously, it is wonderful subject matter. Keep it going.....
HEY WENDY,
HOW IS IT GOING. HOPE YOU DAY WAS NOT TOO BAD. AS FOR AS SUCH TREATMENT, MY WORRY WOULD BE THE MUNCHIES TOO. I'VE ENOUGH WEIGHT AND DON'T NEED ANYMORE. FOOD - FOOD - FOOD
RABBIT LADY
