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Posted on: Mon, May 19 2008 8:48 PM
Posted by: hurtn4certn Posts: 17
Hello All!
I'm going to try to do this again. I haven't been too successful on this website lately. I enjoy all of the postings and know exactly what all of you are going through. I have had fibo for a bit over 2 years. I have had to give up my job, my hobbies, and most all social events. I did make a showing at Thanksgiving last year. I have noticed that most of you post your daily meds...so here goes...
Lyrica 100mg 3x a day (Usually with a Norco kicker)
Cymbalta 60mg once a day
OTC sleep aid...just can't sleep without one
I am fortunate enough not to suffer from hign BP...actually it's pretty low.
I awake each morning with a body I would glady trade in for a new one. Thank God for my husband. He is my rock. He has stopped asking me how I feel every morning because he knows the answer....each day is the same...some worse than others. I did have a good day on Sunday and did manage to do some housework and I am paying for it now. I like to work in my garden but that is not something I will address any time soon.
I look forward to having an actual chat line. If I can call or email someone to put in my 2 cents worth let me know. I have a degree in 2 cents worth!
Hope to chat with you all soon!
Hurtn4crtn
Posted on: Mon, May 19 2008 9:08 PM
Posted by: THUNDER40CAL Posts: 187
Hi Betty
the sense of humor is from a lack of remaining good brain cells I guess I just find the world too funny to take seriously.
if you need more of an explanation please reference the song tears of a clown .... nuf said
as far as putting your picture up
Step 1 find a picture of yourself on your hard drive and note it's location file and such
then scroll to the bottom of this email and click the blue URL link it will bring you to this post then scroll to the top of that page and to the right of your name you will see VIEW PROFILE click it then above the grey box where your picture should be you will see chance or modify your avatar click it then click the browse button re-find your picture on your hard drive and upload it bingo you are done.
ahh computer service I love it so ( ummm ma'am the thing your steping on is the mouse not a foot peddle and the thing you are resting your coffee cup on is a CD drive not a cup holder ) and yes you do need to have electric in your home in order to be able to turn the computer on HEHEHEHEHE
just kidding anyway if you need more help just let me know
God Bless all who suffer
Gentle hugs
Jack
Posted on: Mon, May 19 2008 9:25 PM
HI HURTN,
welcome to our little plot of cyberspace where the people are in pain and the pills are disappearing and everyone for 2 hours at a time has a goofy grin we are if you haven't yet noticed a wonderful group of pain filled folks who find that life is worth living even if it does appear to us to be made of slightly brighter colors, ( not to worry it has been my experience that it really is caused by our medication but shhh don't tell no one OK? ) ANY WAY now that you are totally confused
My name is Jack and I wish to welcome you feel free to add your 2 cents when the mood strikes or if you just want to ask what could be ahead for you but beware here the answers can at times be more than you are ready to know and may not in anyway pertain to the question you asked but that is our nature well at least my nature.
now alittle about FMS IT SUCKS thats about it
Gentle Hugs
Posted on: Mon, May 19 2008 9:50 PM
Posted by: wendydemora Posts: 262
Hi Hurt4crtn, Welcome tuo our family. Jack pretty much said it all. We are here for you just talking,listening and even laughing about our disease.I to became so sick a couple years ago i lost almost everything, Take ai kinds of medications pills,patches,short needles and long ones.What ever it will take to get rid of this pain. The best relief i have found is this site! I get al kinds of information , Great friends who understand, some laughs and even a good fight once in a while! Its great it makes you feel alive. so welcome. Big hugs Wendy
Posted on: Mon, May 19 2008 11:09 PM
Posted by: Betty B Posts: 124
Thank you Jack, I finally got it, good or bad, it's there. It's kind of funny that your humor on computer parts were serious issues to some people at one time and maybe still are. I'm kind of one of those people who knows how to drive a car, put air in the tires even check the oil, but the rest is a mystery to me. That's how I am with the computer. My geeky husband is out of town for the week, so I could not ask him. Thanks for filling in. :)
Welcome Hurt'n. I personally have found this chat full of very nice people for the most part. Something Jack said reminded me of a Lost in Space little saying by the robot "Crush, Kill, Destroy". I think I got it right...anyway, that is my mantra for Fibro and I'm sure it has it's own mantra for me, but I like the sound of mine so I'm keeping it.
As Jack puts it, Gentle Hugs, Betty
Posted on: Tue, May 20 2008 1:40 AM
Posted by: rabbitlady Posts: 357
Betty,
Hi, read your post. Just a quick warning. I know I told this to others before - twice maybe - so forgive my repeating about antidepressants. An antipresessant, which I took and needed, caused a nasty kidney infection. I know that par for the cause with them - but sometimes I don't worry about that. Thought it was UTI but it was kidney infection and had it a lot longer than I thought. It went into liver and looking to see if in my blood. Don't get me wrong, not worried just feel really sick. I'm a firm believer in antidepressants - just be careful and watch for warnings. It is mostly my fault it happened because I ignored the symptoms due to time of stress; also Fibro gives me enough problems. All is well and will be. I know a lot of us on them, just be aware. I'm going take them again, just not yet. I did not know the infection could get so bat - but go figure. Something else to go on my list of goodies...... I've always had a history of bladder problems and felt it could be nothing, so this time I was wrong. Anyway enough of that - good luck with all therapies. I'll keep reading. It is nice talking to you and I'll write again. Be well, a little less pain and have a wonderful day.
Maggie, I am so wanting post a picture of rabbit as a photo, just don't know to do it. So I guess I remain faceless (for now). Hope the move goes well and heart/prays are with you. Just got a feeling from above, that there is an angel watching over and sent you a red rose for love. it is a female don't know what means, it is for you figure out. You don't have to believe, most people don't.
Rabbit Lady
Posted on: Tue, May 20 2008 3:51 AM
Hey there Rabbit Lady, I appreciate your concerns. I donate my urine on a regular basis right along with my blood so I'm up on that issue.
Do you want us to call you Rabbit Lady or something a little more personal? It's up to you of course.
Jack did a wonderful job of explaining to me a few posts back about how to get a picture in that little gray box. If you have a picture of one of your bunnies on your hard drive, you too can fill that spot up. Or, just go do a google search on images of rabbits and from there I think Jacks help would be needed again, lol.
You are such a sweet lady looking out for others and of course others are looking out for you.
I have my buddy Karr to thank for getting me here and she does not have Fibro. I asked her not that long ago why she was looking in here and I was blown away by her answer. She told me that she really wanted to understand my condition and sought out to learn everything she could. How she found Jack's specific string of conversation, I do not know, but she put it in a link to me, and I've been here ever since and I have thanked her profusely.
Your message to Maggie was so sweet, but I have to tell you, I'm one of those who does believe and I will tell you to not worry about those who don't, which sounds like you don't anyway.
I hope you are sleeping by now, wish I was....goodnight to all, Betty
Posted on: Tue, May 20 2008 7:42 AM
Posted by: MaggieRay Posts: 436
Oh, Rabbitlady, what a wonderful message for me. I got all warm and tingly when I read it, as I do think I know what it means. And yes, I most certainly do believe! Wouldn't be here if I didn't....literally.
I am finally in a much calmer state and after resting all the long weekend (here in Canada), I guess I rested a little too much and was up all night.....LOL....Oh well, it'll straighten out again in a few days....I hope....LOL
That was interesting what you said, Betty, about the Amitriptyline vs Nortriptyline. I started on Amitriptyline, and did find it sedative well into the day....was sleeping til 2 or 3 in the afternoon....great, I'm up and day's gone! LOL However, I tried to switch to Nortriptyline and found that even more sedative and like I was on an acid trip or something......didn't like how I felt on it at all. So, the pharmacist suggested I try taking the Amitriptyline a little earlier in the evening, so I did that and now I take it around 8pm and can usually get to sleep by midnight or 1am....which after the last four years of being up almost all night, is a big improvement!
My girlfriend, who also has Fibro, says she can't take Amitriptyline because it makes her hungry, and she is trying to lose weight, although I didn't find that a big factor for me. Just goes to show you how different we really are, eh? I don't find the Amitriptyline helps me get to sleep, though, just helps me sleep better through the night, so I also supplement with Melatonin (a natural sleep aid) right before bed. Between the two, I am having better nights than before, although the Melatonin doesn't always work.
As I have said so many times before, you're probably all tired of listening to it by now...LOL....but the drs here give me NOTHING so far for the Fibromyalgia. Just this last year, my family dr finally relented to giving me Tylenol 3's which, although I'm grateful to have something, don't really help much. Plus, they're too hard on my stomach, so I have to eat a lot when I take them, and even then sometimes they still bother me. So much for that solution! LOL
I am hopeful that the specialist I saw in April will be faxing something else for me to try soon. He tried me on one medication that was for Parkinson's, but I couldn't tolerate it. Now that I have found him, though, I am hopeful that relief of some kind is on the way. I may be suffering from a few more delusions, but I hope not! LOL
Other than that, I take all kinds of meds all day long, but not for the Fibro.....high blood pressure (two different meds for that...Atican and Nadolol....a water pill (to go with the blood pressure pill).....two stomach pills a day from the damage that was done while trying to take anti-inflammatories......a medication to help stabilize my moods (which is actually an anti-seizure med) called Lamotrigine....an antidepressant (Remeron).....two Amitriptyline (10 mg each) at 8pm....and two Calcium plus D (for the Osteo Arthritis) and one multi-vitamin. I have had to purchase one of those "daily dose" pill packs so I can load it up for two days at a time and then go on about my business, as I was constantly looking at the clock and then wondering if I actually took the darn thing or not. So the little pill pack is helping with that part of the Fibro Fog! LOL
OK, I'll shut up now! LOL Love your posts, Jack.....keep 'em coming.....I love my daily chuckle when I read yours!
Gentle Hugs,Maggie
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