General Disability Lifestyle

Posted on: Sat, Oct 11 2008 3:42 PM

Posted by: DSB Posts: 767

 There have been many lately that speak of community and I suppose the model I find here on Disaboom that really has a strong sense of community are the people on the Living with the pain of fibromyalgia. Sometimes I just visit the thread to read how there is such a truthful exchange between members there.
It really struck me that being truthful in what you say to other members is a keystone of building a community. Being truthful is also a keystone in dealing with ones disabilities as well as abilities and how we all interact with the world around us.
In looking through that thread I see so many types of people of different income levels and living conditions unashamed and simply truthful about their lives. There is no one inventing a living condition, lifestyle or any other aspect of their lives they all are simply truthful in their interactions and responses to each other.
Being truthful and honest with other people can build trust and does lend its self to building a community but it is only one of the factors.  So give it some thought add to this idea but do something that adds to someone’s day.

Posted on: Sat, Oct 11 2008 5:14 PM

Posted by: sandyfreytag Posts: 1,416

DSB, Thank you! We are all there for each other no matter the life styles. We enjoy each others company. When someone is having a bad day we all understand that pain. We help each other how ever we can.

Thank you again for the complement of our little Fibro. Village and all the Fibromites that live there.

Take Care and Gentle Hugs, Sandy 

Posted on: Sat, Oct 11 2008 6:28 PM

Posted by: Charivari Posts: 131

Thank you for the compliment about us fibro mites. I was a lurker there for a long time before I joined. I find the support there invaluable. Whenever I hurt or have a question some always jumps in with a kind word or suggestion. Everyone on Living with the pain of fibromyalgia are not only truthful but there is absolutely no judgment. All are accepted for the one thing that has brought us together and that is the title of the thread "Living with pain" and 'Fibromyalgia" We all know how it has changed our life and we help each other cope with that. God Bless all who suffer Nancy

Posted on: Sat, Oct 11 2008 6:44 PM

Posted by: squabwithfibro Posts: 1,122

 Thanks for noticing DSB.....

We in the Village, do feel unconditional acceptance there.  It is a rare thing, truely to be treasured.  I also appreciate that you have noticed what a diverse group we are.  Fibro. is going to select, who the monster will select when it comes to suffering with pain....we are all sufferers and do our best to help one another deal with it.

Valerie

Posted on: Sat, Oct 11 2008 9:24 PM

Posted by: DSB Posts: 767

 This site owes much to the one example of what community means and how people conduct their selves. I just wanted to offer up my thanks but I am stepping away from Disaboom for a length of time. I have no sense of community here any longer.  There was a small window of hope when one person was banned because a community did start to form. But all of that is lost now the same events leading to the bans again rear their ugly heads and flame wars soon were born.
Until such time Disaboom manages unruly and disruptive members in a more effective manner I simply cannot see this place as a place I can maybe sit and relate to other people. Why post when it becomes some plot against the same member again and again and then grows into a flame war? I simply cannot watch anymore of the decline then I have witnessed in the last 7 months.
To the staff of Disaboom thank you for all your hard work and site improvements. I know there are tough choices to be made and at some point they will be made.
Be Well everyone, and sometimes when you look at the real truth and are truthful you pay a high price I know I did I watch my community its members here vanish. So you all hold onto your community I may still drop by to get inspired by your threads.

Posted on: Sat, Oct 11 2008 9:41 PM

Posted by: unrepentantpigsnatcher2 Posts: 0

DSB:

 This site owes much to the one example of what community means and how people conduct their selves. I just wanted to offer up my thanks but I am stepping away from Disaboom for a length of time. I have no sense of community here any longer.  There was a small window of hope when one person was banned because a community did start to form. But all of that is lost now the same events leading to the bans again rear their ugly heads and flame wars soon were born.
Until such time Disaboom manages unruly and disruptive members in a more effective manner I simply cannot see this place as a place I can maybe sit and relate to other people. Why post when it becomes some plot against the same member again and again and then grows into a flame war? I simply cannot watch anymore of the decline then I have witnessed in the last 7 months.
To the staff of Disaboom thank you for all your hard work and site improvements. I know there are tough choices to be made and at some point they will be made.
Be Well everyone, and sometimes when you look at the real truth and are truthful you pay a high price I know I did I watch my community its members here vanish. So you all hold onto your community I may still drop by to get inspired by your threads.

How can there be truth in a community when members refuse to communicate?  How can there be community when no matter how a person tries to temper an honest response without attacking that person is then set upon by another member's followers?  How can there be a community when a member as loving and level headed as Bonnie speaks her view and is immediately attacked?  I think you might be right DSB what was once a community is now fractured by those who must make it them against us.  I took what the staff said this week to heart and I worked very hard to honestly express what I see and feel here at Disaboom in the What Is Your Definition of Community Thread.  I struggled with my response to rainey's question there so that it was not an attack but communication of what I felt as a member of this community.  It seems that my feelings as a member of this community do not matter.  My view on community does not matter.  What I saw and felt was almost immediately that one group were telling any of us who did not agree " Its our way or the highway" yet again. 

Posted on: Sat, Oct 11 2008 9:49 PM

Posted by: Cannoli Posts: 502

DSB - You are welcome in the village at any time; it is not mandatory that anyone has to suffer with fibromyalgia in order to participate.  Without it ever being officially stated; however, there is an automatic assumption that adults will adhere to the Golden Rule.  We do have a wonderful and honest community.  I thank you for the compliments, but it is as it should be throughout all of Disaboom as far as I'm concerned.  So, take care and keep us posted at the village at least.  Ciao & Shalom, Carol

Posted on: Sat, Oct 11 2008 10:17 PM

Posted by: Cannoli Posts: 502

Unrepentantpigsnatcher,

We don't know each other, but since I have ventured out of my comfort zone lately, I have noticed your postings.  Based only on what I have read recently, I feel that you are articulate, intelligent and perhaps enjoy stirring the pot so to speak.  I personally have no problem with lively and healthy adult conversation, discussion or even debate.  My issues are with sarcasm that is easily misinterpreted, name-calling, buzz-killing, tossing out accusations, dishonesty, etc.  I accuse no one of these things; however, I feel that they do nothing to support or enhance any sense of community. 

What is a "member's follower"?  Do you mean that some people have other people's backs?  That's part of communities, it's part of friendships and it's part of the human condition.  If any one member feels that her/his views do not matter, it diminishes the entire group.  It diminishes me.  I am sorry that you and others (including myself btw) have been hurt, but it is incumbent upon us to make it better and to make it right for those who follow, whenever we are able.  Please don't abandon the cause as so many are doing just now.  When you get right down to it, everyone will give you a different definition of almost anything.  That's the beauty of being human.

Well, that's my two cents for what it's worth.  Less pain and more joy are wished for you....take care.....ciao & shalom, Carol