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Disaboom » Health » Spina Bifida » Does anyone else have a hard time eating certain foods?

Does anyone else have a hard time eating certain foods?

Last post Wed, Jun 25 2008 11:09 AM by ducky01. 24 replies.


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  • Resiak Resiak
    Posts: 4
    • permalink Does anyone else have a hard time...

    • Posted: Sun, Dec 16 2007 9:26 PM

    • I have a really hard time eating foods with certain textures. I always have.I've gotten used to eating certain foods..Like oatmeal with the fruit in it. Or certain toppings on Pizza. I still can not eat meat loaf. (I do like the flavor I just can't eat it). Cetain types of fish, I absolutely can not eat supreme pizzas.  I think its the mushrooms and oinions that get me. But I think it tastes great, it just gives me this gag reflex. Does anyone else have this problem? I was told that it is very common with Spina Bifida. It is very anoying. 


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  • dramasteph dramasteph
    Posts: 87
    • permalink Re: Does anyone else have a hard...

    • Posted: Sun, Dec 16 2007 9:45 PM

    • Haha, that's funny!!  I'll ask my mom (who has SB) about if it's a texture thing or what as to why she doesn't like certain foods.  Mom's not crazy about crab though she doesn't like strawberries (fresh or jam or whatever), though she ADORES chocolate!!  ;) 


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  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Mon, Dec 17 2007 7:52 PM

    • Resiak:

      I have a really hard time eating foods with certain textures. I always have.I've gotten used to eating certain foods..Like oatmeal with the fruit in it. Or certain toppings on Pizza. I still can not eat meat loaf. (I do like the flavor I just can't eat it). Cetain types of fish, I absolutely can not eat supreme pizzas.  I think its the mushrooms and oinions that get me. But I think it tastes great, it just gives me this gag reflex. Does anyone else have this problem? I was told that it is very common with Spina Bifida. It is very anoying. 

      I am the same way. I can barely eat the pizza itself. I have to be really in the mood for a pizza to eat it. Jello I can't even look at or I'll gag...lol. I used to be bad with fish, but not so much anymore. I can't eat onions. I can find a tiny little onion in something becaus I will start to gag. Part of it is the arnold chiari, but the other part is a texture thing.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
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  • KaraSwims KaraSwims
    Posts: 1,745
    • permalink Re: Does anyone else have a hard...

    • Posted: Mon, Dec 17 2007 8:44 PM

    • Summer24:
      arnold chiari

       

      Who or what is Arnold?! He sounds pretty tragic if he causes you to gagStick out tongue I've never heard of this so do tell!

       


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  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Mon, Dec 17 2007 8:53 PM

    • KaraSwims:

      Summer24:
      arnold chiari

       

      Who or what is Arnold?! He sounds pretty tragic if he causes you to gagStick out tongue I've never heard of this so do tell!

       

      Arnold Chiari is what most of us with spina bifida have. It is when the back of the brain pushes down onto the brain stem and causes issues such as headaches, neck pain, back pain, muscle weakness, muscle spasms, gagging issues, and other problems.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
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  • KaraSwims KaraSwims
    Posts: 1,745
    • permalink Re: Does anyone else have a hard...

    • Posted: Mon, Dec 17 2007 9:05 PM

    •  

      oh wow-thanks so much! Now I truly did learn something today:-)

      I know people with OI (and other forms of dwarfism) often have a narrowing of the top of the spinal column that can also cause headaches and neck pain. I haven't had a problem until the last couple of years and sometimes I feel like my head is too heavy for my neck-if that makes sense....and headaches. It sounds sorta similar except for yours is from the brain's direction adding pressure..either way-no fun!


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  • sharonr sharonr
    Posts: 397
    • permalink Re: Does anyone else have a hard...

    • Posted: Tue, Dec 18 2007 12:51 PM

    • Summer24:

      KaraSwims:

      Summer24:
      arnold chiari

       

      Who or what is Arnold?! He sounds pretty tragic if he causes you to gagStick out tongue I've never heard of this so do tell!

       

      Arnold Chiari is what most of us with spina bifida have. It is when the back of the brain pushes down onto the brain stem and causes issues such as headaches, neck pain, back pain, muscle weakness, muscle spasms, gagging issues, and other problems.

       

       

      wow. i never knew this, i just attributed these to worn out joints and muscles....and i tend to carry things with my teeth, and sometimes i'll gag even though it's right at the front of my mouth, not anywhere near the back of my throat. i guess that also explains my "other" gag reflex, huh? i just thought i had a strong gag reflex....

       


    • Sharon Neely, Realtor

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  • sharonr sharonr
    Posts: 397
    • permalink Re: Does anyone else have a hard...

    • Posted: Tue, Dec 18 2007 12:54 PM

    • oh, yeah, and i have a real hard time with food textures, too. certain kinds of sushi, like shrimp, can't stand the way that feels in my mouth....sometimes even cooked shrimp gets me....certain kinds of candy....i'm real big on texture, like, physically, i have to touch everything i pass in a store, and i tend to rub things on my upper lip. 


    • Sharon Neely, Realtor

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  • Windrider687 Windrider687
    Posts: 72
    • permalink Re: Does anyone else have a hard...

    • Posted: Tue, Dec 18 2007 1:17 PM

    • Hmm - this is real interesting to me, because again I'm like the 'SB Outcast' it seems.

       I don't seem to have a problem with the foods mentioned, in fact some of them are favourites of mine. I LOVE Sushi in nearly all its forms, I love fish, shrimp and other kinds of seafood as well. I mean, I don't like a few things - things usually that chew like rubber aren't my sort of food, but I love pizza as well - and don't mind most of the fixin's on 'em (mushrooms and onions included). I have some trouble with some other foods as well, but it is because of certain conditions I have that aren't related to Spina Bifida. Generally I account my food choices due to heredity - I typically eat an Asian-esque diet, with could be attributed to my Japanese heritage (I drink like my Irish heritage too :p).

       I wonder what the science behind 'food texture preference' is. Interesting topic!

       I will add though, that if there is a problem, I do tend to have a strong 'gag reaction' as well - though I don't have the Arnold Chiari formation.


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  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Sun, Dec 23 2007 1:17 PM

    • Windrider687:

      Hmm - this is real interesting to me, because again I'm like the 'SB Outcast' it seems.

       I don't seem to have a problem with the foods mentioned, in fact some of them are favourites of mine. I LOVE Sushi in nearly all its forms, I love fish, shrimp and other kinds of seafood as well. I mean, I don't like a few things - things usually that chew like rubber aren't my sort of food, but I love pizza as well - and don't mind most of the fixin's on 'em (mushrooms and onions included). I have some trouble with some other foods as well, but it is because of certain conditions I have that aren't related to Spina Bifida. Generally I account my food choices due to heredity - I typically eat an Asian-esque diet, with could be attributed to my Japanese heritage (I drink like my Irish heritage too :p).

       I wonder what the science behind 'food texture preference' is. Interesting topic!

       I will add though, that if there is a problem, I do tend to have a strong 'gag reaction' as well - though I don't have the Arnold Chiari formation.

      Just to add...some people have arnold chiari and have no clue they have it. Most doctors will not mention it unless you start having problems that resemble symptoms of it. Or they have absolutely no clue it even exsists.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
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  • cardgirl cardgirl
    Posts: 11
    • permalink Re: Does anyone else have a hard...

    • Posted: Wed, Feb 06 2008 11:06 AM

    • I have some aversions to texture like banana's anything slimy. I just can't eat it. I tend to eat certain foods because of the texture. I can't eat hamburger in any form except maybe in sauce but I can't eat anything tomato because the tanginess hurts my mouth. I am sure it is because of the Chiari because I have always had these issues/


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  • Cudachaser Cudachaser
    Posts: 1,345
    • permalink Re: Does anyone else have a hard...

    • Posted: Wed, Feb 06 2008 11:25 AM

    • I don't slimy stuff...Okra, calamarim, oysters 

       

      Joe 


    • Joe
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  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Wed, Feb 06 2008 4:11 PM

    • cardgirl:

      I have some aversions to texture like banana's anything slimy. I just can't eat it. I tend to eat certain foods because of the texture. I can't eat hamburger in any form except maybe in sauce but I can't eat anything tomato because the tanginess hurts my mouth. I am sure it is because of the Chiari because I have always had these issues/

       

      When you say tomato hurts your mouth what do you mean? Like it itches, or just burns? Do you have a latex allergy? If yes, then you more then likely are allergic to tomatoes. I have a severe anaphalatic latex allergy and just recently after my first anaphalatic episode I have become allergic to tomatoes. I can eat ketchup and tomato sauce, but if it has too much of real tomatoes then forget it. I start to cough and my mouth burns and itches. So, you might want to look into that.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
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  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Wed, Feb 06 2008 4:11 PM

    • cardgirl:

      I have some aversions to texture like banana's anything slimy. I just can't eat it. I tend to eat certain foods because of the texture. I can't eat hamburger in any form except maybe in sauce but I can't eat anything tomato because the tanginess hurts my mouth. I am sure it is because of the Chiari because I have always had these issues/

       

      When you say tomato hurts your mouth what do you mean? Like it itches, or just burns? Do you have a latex allergy? If yes, then you more then likely are allergic to tomatoes. I have a severe anaphalatic latex allergy and just recently after my first anaphalatic episode I have become allergic to tomatoes. I can eat ketchup and tomato sauce, but if it has too much of real tomatoes then forget it. I start to cough and my mouth burns and itches. So, you might want to look into that.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
    • Reply Contact
  • Summer24 Summer24
    Posts: 82
    • permalink Re: Does anyone else have a hard...

    • Posted: Wed, Feb 06 2008 4:11 PM

    • cardgirl:

      I have some aversions to texture like banana's anything slimy. I just can't eat it. I tend to eat certain foods because of the texture. I can't eat hamburger in any form except maybe in sauce but I can't eat anything tomato because the tanginess hurts my mouth. I am sure it is because of the Chiari because I have always had these issues/

       

      When you say tomato hurts your mouth what do you mean? Like it itches, or just burns? Do you have a latex allergy? If yes, then you more then likely are allergic to tomatoes. I have a severe anaphalatic latex allergy and just recently after my first anaphalatic episode I have become allergic to tomatoes. I can eat ketchup and tomato sauce, but if it has too much of real tomatoes then forget it. I start to cough and my mouth burns and itches. So, you might want to look into that.


    • ~*Summer*~
      www.myspace.com/lightninggrl2121
    • Reply Contact
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