Last post Mon, May 12 2008 10:13 PM by jassak. 19 replies.
flowergirl45623:You seem to have alot of what I am suffering with. You have so much going on. How do you do it all? I'm so sick, tired, the pain sometimes is inbearable, and I can't sleep.
Flowergirl,
Please know you are not butting in. We are here for each other and you are always welcome to join any converstation!
The answer to the question of how do you do it all, is i don't. I have to learn to do all things in moderation and ask for help. Hopefuly I will get to a point where i don't have to remind myself multiple times per day, but as i try to move towards acceptance it gets easier. But the setbacks are hard to deal with. I mean this is one heck of a disease. You are healthy as a horse and on top of everything then BAM you get fibro and your world spins. I have had the bittersweet blessing of having a few friends with this disease. It's sweet as i can learn from them and know i can trust them, but it is bitter as i would not wish fibro on anyone!
What is working for me is being more selfish with myself and putting myself before others needs. It is hard but I am getting better at it. Heck I'm happy that now my setbacks are only one day as opposed to the 2+ days they used to be. Hang in there we will learn to control it togther!
Brenda
Thanks for the input. I think I'm going to order that supplement. It sounds like a mircle drug. Getting on this site has been a real blessing. I don't know anyone that has what I have. My friends go on with there lives. I haven't been able to be a really good friend for a while. I'm just to tired and in pain all the time and I'm no fun to be around. Losing weight would be a big plus just trying your diet. The Lyrica has put 16lbs on me in three months. Thanks for truthfulness and wish you a great day. Talk to you soon.
Flowegirl
mysfamu
Having such a great response from everyone is just wonderful. I'm glad that you have figured out a way to make most of your days better. My hope is all of our future to be pain free. I glad to here you say that this is a disease because a lot of people think all you need to do is just suck it up. Fibromyalgia to me is much more than depression. Not being able for my husband to touch me like he use too. You know my muscles hurt so much that he has to watch how he touches me. I can't even take a shower without being in pain. My skin even hurts. My family doesn't understand. It's crazy. I'm glad that you have a good support system. My husband is my best friend I have no one but him to count on. But I guess I have my new friends at Disaboom. Hope your day is a good one. God Bless and thanks for taking the time to write me.
Flowergirl
Laura,
I'm defiantly going wheat free. I can't do dairy at all. I sometimes get such severe digestive problems that I am in the hospital for days. Last time I was in there with a tube down my throat. I can't do B vitamins. I have a disease called Lupus and B vitamins up my immune system. I take Plaquinel for Lupus to shut down my immune system in order to keep it in check. So, my doctor says I'm damned if I do and damned if I don't. Crazy life huh. I'm so depressed over all of this. I will keep you all posted and thanks for being there when I think I have nothing.
Best of luck in your healing also,
Hi! This is my first time here as I didn't even know there was such a place! I have Celiac Disease & Fibromyalgia. For me I know that when I am compliant with a gluten free diet my FMS is much, much better. Sometimes it is very difficult and when I am not so compliant my pain is greatly influenced. I also have found my stress levels impact my FMS more than anything else (except the weather!). What meds are you on? My doctor started me out on multiple meds but I have reduced them significantly due to the elimination of gluten....but it did take time. I do still have bad days but not as many as I had previously. I work full time and am a busy mom and grandmom as well. In the beginning I was so depressed due to the high level of pain and the drastic change in my life. As time went on I was able to put determination and minor life style changes into place which gave me more "normalcy" than I had for a while. It is still hard to cope with some days. I so understand ~
