Last post Fri, May 16 2008 11:36 AM by Michele McHenry. 39 replies.
hi i am a mother of daughter who has ms and it has been a very diffcult. she has lost part of her sight and abuilty to walk, she uses a walker. she is 23years old and also has a 2year old daughter. I am helping her with as much as i can, or let me say as much as she will let me she is angry depressed, and sometimes down righ mean. My family; my husband and other 2 daughter dont know what els to do for her I have even suggested she ge some outside help with the emotions she's going throug but nothing helps. what do you do for someone who you love wont let you in and how do i help her with out going crazy myself.
gwen
Hi, I'm brand new to this site. I was diagnosed with MS in 1993 due to vision problems. I had many other things in the years leading up to that, but it was vision issues that finally got me to a neurologist and an MRI. I have had those tests you are talking about and have a wonderful neuro-opthamologist. None of trhe tests i have had done on my eyes was painful. I usually spend all day at her clinic and have many different tests done so she can determine changes/progression of the optic involvement and she then sends her results and opinions to my neurologist (who is a specialist in MS). Don't be worried about the tests. Diabetes can certainly be the culprit. I have done a lot of reading on the issue and you can find a lot out about it on the internet.
Thank you so much for your reply. That makes me fill alot better. I just hope it is nothing serious. I am sorry it took me so long to respond but I have been out of town since saturday. Sorry to hear about your diagnosis. Thank you once again. gorolltide123
I MYSELF WAS ON AVANEX SHOTS ENDED UP IN THE HOSPITAL FROM BEING SO SICK NEXT TIME I DID LESS EVEN THOUGH DOCTOR TOLD ME NOT 2 .I COULDNT HELP BUT 2 PUT LESS AND IT WORKED DID HALF WORKED MY WAY UP 2 A FULL SHOT STILL GET SICK BUT NOT LIKE B4.THAT WAS 3 YEARS AGO THERES THIS NEW MEDICATION OUT IT REVERSES SOME OF THE MS SYMPTOMS ALOT OF BACK PAIN THE FIRST SHOT IS THE BEST FELT LIKE I NEVER HAD MS BEST FEELING I HAVE EVER HAD .ONLY PROB IS HARD 2 GET VERY ITS CALLED IMMUNOSYN CORP THATS THE COMPANY STOCK SYMBOL IF U WANT 2 LOOK UP WHATS GOING ON WITH THE COMPANY IMYN ITS BEEN IN STUDY 4 13 YEARS NOW AND NO SIDE EFECTS
Even LPs (lumbar puncture/spinal tap) are not 100% accurate. Symptoms can come on well before a positive test.
Hi All. I have not posted or visited lately due to many symptoms and having three back teeth pulled recently. Ouch. I'm wondering if anyone here has had their facial cheeks harden up? Wierd I know, believe me Other than that, I'm on Rebif now for almost a month and it's not so bad.. No results yet but I'm patient. I'm also on Baclofen to help the twitching and tremors. My head bobs sometimes and says yes or other times it will say no. Great when you are having a conversation with someone. Eventually someone's going to punch me over it but it's ok........they will break their hands on my hard little cheeks. Blessings! Betz
Maybe this is just a flare up or it could be new symptom. Monitor its changes, and see when it is better/worse. Maybe keep a journal if you deem it a good idea and definitely tell your doctor about it.
fretlessman71: There's at least one person here who has complained of MS related "shocks" going down their arms. It's not the first time I've heard of it. If I were you, or your mom, I would get a 2nd opinion. Do not pass GO, Do not collect $200, go STRAIGHT to the phone book and set up a separate appointment. Better yet, see if you can find the MS Society near you and find a doctor that people have had good luck with. Keep us posted on your progress!
There's at least one person here who has complained of MS related "shocks" going down their arms. It's not the first time I've heard of it. If I were you, or your mom, I would get a 2nd opinion. Do not pass GO, Do not collect $200, go STRAIGHT to the phone book and set up a separate appointment. Better yet, see if you can find the MS Society near you and find a doctor that people have had good luck with. Keep us posted on your progress!
I experience this phenomena a lot. It is like someone puts a cord in my arm that runs from my neck to my middle finger and someone presses a button....zzzzzaaaaap! Then I also get it going down the back when I bend forward.
Sometimes my arm will be in pain along with ONLY my middle finger....wierd. But this whole disease is wierd and after the first couple of years before being diagnosed and being called "crazy, depressed, drug seeker...etc, etc" I thought I actually was.
A doctor said to me once early on, well good news! It is NOT MS! Isn't that great! Well...what is it I asked? Well I don't know, but, you can be happy to know it is not MS. How the hell can a person who is suffereing so bad, be happy about not knowing what is wrong? Tell me it is MS, heck, tell me it is cancer, but, don't tell me to be happy it is NOTHING and I am dreaming this stuff up. I look like an idiot feel like I was hit by a truck and I should be happy to know I have nothing wrong with me.
Being diagnosed, was the most difficult, embarrassing, excruciating experience of my life. And the drugs they gave me, almost killed me.
If anyone is going through the process of finding out what is wrong and having doctors say you are crazy, or be happy we did not find anything....hang in there. Life is worth living and you will find the truth soon. It just takes a while and the right test at the right time. Keep up the strength, and keep going to the right docs. Even Dr. Smith will tell you how difficult and how much time it takes to diagnose MS.
Good luck, and let us know.
gymstyie2
She has nothing to look forward to in her life except doom and dependance.
I think if she were able to have a purpose in her life, she would regain her spirit and soul and love for life.
It took me a while..but, I found things I can do and want to do, so now I don't feel so worthless to myself and everyone around me.
Good luck, I hope she can reach out and get the help she needs to find herself and what makes her spirit whole again.
