Last post Sun, May 11 2008 5:36 PM by mitskev. 20 replies.
I know I had a MRI of my head. And my Speech Therapist said they could tell I was going to have speech problems from where I had my stroke. My right side and speech came back mostly. I still can't control my voice - forget about Kariokie, American Idol or Yodeling. Certain words are still hard to pronounce. My balance issues are still there - stairs frighten me - I always picture me taking a header down them. I use a cane. Funny they didn't tell me about the balance thing or whether it would return. I am mostly steady. I will say speech therapy was a joke and found my therapist annoying in person and personality. I still have swallowing issues also. Can't say whether or not your balance will come back either after all this time. Be patient and see
Hi.......Guess I feel pretty lucky. My balance only bothers when I'm tired....well, I shouldn't say only, but bothers me more when I'm tired. Speech, the same way. Some days are fine with only certian words, like cookie or things with c's or k's or.....a lot of other things. Swallowing has gotten better. When I say better....if it's real good I can have carbonation, otherwise I stay with juices, Gatorade, that kind of stuff. I ended up with I.E.E.D., & when I was with my therapist she had me read something, & I started laughing & couldn't stop for the whole half hour. She gave up. Strenght & endurance is another BIG one for me. Hang in there. It will get better....Mike
I too suffer from FDGB syndrome ( Fall Down Go Boom ) and I walk with an AFO and quad cane. I also have Ostiopyleitis ( when your optic nerve & rectal nerve get crossed and you develope a sh**ty attitude ) I don't think the Drs can do anything for me or you. I have had 5 strokes ( the last one July 07) and have had to re-learn how to walk twice. my right side is weak and some days I have a ringing in my ears. An ENT said there is nothing he can do( A BIG waste of time,$$$ and effort) Good luck to you and hang in there!
brucec3: I too suffer from FDGB syndrome ( Fall Down Go Boom ) and I walk with an AFO and quad cane. Good luck to you and hang in there!
I too suffer from FDGB syndrome ( Fall Down Go Boom ) and I walk with an AFO and quad cane. Good luck to you and hang in there!
However, your balance may well improve on its own. Mine did, and I had two strokes, the first one so massive that it was deemed "unsurvivable."
I've progressed from a hemi-walker to a quad cane, and gave up my gait belt long ago.
Nowdays the only time I'm in danger of falling is when something suddenly and unexpectedly causes me to lose my balance, such as when my tub rail abruptly "let go" once.That kind of thing would be dangerous for someone who hadn't had a stroke, though.
I echo the good wishes!
Carla N.
fishndad: Hi.......Guess I feel pretty lucky. My balance only bothers when I'm tired....well, I shouldn't say only, but bothers me more when I'm tired. Speech, the same way. Some days are fine with only certian words, like cookie or things with c's or k's or.....a lot of other things. Swallowing has gotten better. When I say better....if it's real good I can have carbonation, otherwise I stay with juices, Gatorade, that kind of stuff. Hang in there. It will get better....Mike
Hi.......Guess I feel pretty lucky. My balance only bothers when I'm tired....well, I shouldn't say only, but bothers me more when I'm tired. Speech, the same way. Some days are fine with only certian words, like cookie or things with c's or k's or.....a lot of other things. Swallowing has gotten better. When I say better....if it's real good I can have carbonation, otherwise I stay with juices, Gatorade, that kind of stuff. Hang in there. It will get better....Mike
I knew I was on the way back to normal when I heard myself complaining,"My cola's flat!"You're right, Mike, things do get better.
It took all day in the ER for me to get a room and by that time the speech therapists who check your ability to swallow or not had gone for the day. I was stuck for over a day eating pureed foods. At dinner they served a scoop of green vegetables and I couldn't tell you if it was peas, green beans or broccoli. Thats my funny story about swallowing.
Your loss of balance is not new to me. It been over a year and mine has not returned to its former state. I have hopes of being able to walk without my cane and play tennis again. I remain hopeful and have lots of time to devote on just walking first. Never ever lose hope. I know yours and mine will return in time - we just have to be patient. Your mind and body (brain to body connections) won't happen as fast as we'd like them to. I can attest to it and am living proof of it.
