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Posted on: Fri, Jan 18 2008 6:44 AM

Posted by: tealwolf Posts: 33

I am glad I could help, with there was more to be done, I didn't know that neurontin was a anti inflamitory, it is suposed to be a anti sezure medication, I used it for my nerve damage,burning pain and twitching. the Cymbalta is a anti-depressant I guess I should read up on the meds a wee bit more.

Hopfully you will get the pain help you need, no one should suffer. Tyonol 3 wouldn't do much for    me ether,  

Posted on: Fri, Jan 18 2008 8:14 AM

Posted by: mcjane Posts: 589

I'm taking calcium in capsules and wish I could get injections of it. Xrays have shown that pills do not dissolve well.  I read that calcium was used before morphine.  Someone here told me that Mayo Clinic is using B vitamins for neuropathy.  Does anyone know of any studies of vitamin/minerals/enzymes being used as alternative to drugs?

Posted on: Thu, Feb 7 2008 6:01 PM

Posted by: LadyBrenda Posts: 3

 Hi Tealwolf, I'm Brenda. I have a daughter 22 and a husband 54 who have EDS type 3. What type do you have if you don't mind me asking?  My daughter started having a lot of problems when she was 17(2 hip surgeries and shoulder surgery) but my husband didn't start having a lot of trouble till he was 49 and actually got diagnosed after she did. Our 2 sons don't have it.  My daughter is now 19 weeks pregnant and has had a rough pregnancy so far. she was on a lot of pain meds before pregnancy but has weaned off them but always in a lot of pain. She can't take NSAIDS either because of stomach pain. I hope to be able to correspond with you @ times.  Thanks  Brenda.

Posted on: Sat, Feb 9 2008 9:56 PM

Posted by: MaggieRay Posts: 427

Hey Melissa! 

I'm back! LOL  Had computer problems, just as I was about to reply to this one, it shut right down on me.  Darn things!  Anyhow, you do not need to read up on your meds, you are quite right, it is me who was wrong.  We haven't tried Cymbalta because it took me years to find an antidepressant that would work for me without causing migraines...so my dr thinks it might be a mistake to try and switch it since I am on Remeron, which is not as SSRI, and seems to be doing the trick.  I am going along with that one simply because it did take me so long to find it.

I haven't tried Neurontin, but have heard of others with Fibro who found some relief with that.  I will ask my dr about it next time I see her.  It is so frustrating to try and find something that isn't addictive or that doesn't counter-act with the blood pressure meds I am on. 

But thanks for your suggestions, and I will keep trying!  Not much else to do! LOL

Gentle Hugs,

Maggie

Posted on: Sat, Feb 9 2008 10:46 PM

Posted by: Evangelist Dave Harper Posts: 129

Maggie, ask your Dr. if he would let you try time released Opana along with the quick release for break through pain. You can start on a relatively low dose and slowly increase it until you find the right dosage. I have been in chronic pain for over 11 years and use just about everything and recently have found some relief with this and it has not bothered my stomach.

Posted on: Sun, Feb 10 2008 11:46 PM

Posted by: MaggieRay Posts: 427

Thanks Dave for that suggestion.  I will ask my doctor about that one, for sure.

God Bless you and your support.

Gentle Hugs,

Maggie

Posted on: Fri, Feb 15 2008 1:02 AM

Posted by: TerryLou Posts: 106

Due to back troubles and a very bad tummy   I now take Tramadol or Ultram and my stomach handles it very well.  I don't think it is a anti-flammatory because when my arthritis in my spine acts up the Tramadol is useless.

Posted on: Sun, Feb 17 2008 7:05 AM

Posted by: maryannlee Posts: 1

Hi, I hear and truly understand the frustration and anger .  I sincerely believe without "physical appearance of illness" many fail to believe, thus treat pain patients'.  I have spent greater than 8 years going through the process of pain treatment and realized how little is known.  I would look at various pain management programs.  NO THEY ARE NOT THE SAME!.  The section within this web site concerning pain is true for me, the narcotics knocked me out, however, to overcome the pain I lost so much more.  All under a doctors care!  Even sleeping I would moan and groan and cry out in pain, wondering why I could not remember any of this but knowing how exhausted my days were and pain escalated.  The process identified from creams, anti-inflamatory, anti-seizure, sedatives, narcotics, nerve blocks, tens units to a realization one day.  Enough, I was losing my liver function gradually, unable to participate in my life and behavior modifications, feedback etc. time fillers.  Yet for the moments of no pain or like you just to do normal exercise or some function and life activities.  I even went to China to visit someone and investigated all their treatments, not my best idea.  I Beautiful country, but my husbanad lacked the support and time to help in this process, he got burned out I guess since no "cure" could be found for me also I do not know Chinese!

The chronic pain and intensity resulted in crisis diabetic situations, I went with the neuroimplants stimulator.   It does not cure and at times not work at all, but I have some control over trying to overcome my pain to a small degree, versus being the victim.  Please hang in there, it is slow and tedious and not sure how canadian health care allows consultations to pain specialists.  Please read the treatment process on the main site here for pain medications and restricitions.  I have RSD and degenerative cervical damage, many more aare worse off I know, but when the physical pain drains you constantly, your patience dwindes. I am a health care professional and educator and felt the betrayal you are projecting at my professional network.  I hope I helped, Good luck, but some manufactures of pain devices have excellent web pages to help explore options.   Also many of the medications that are given out as my primary physician said" accidential overdose, due to mental impairment and amnesia effect s of some can lead to incorrect dosaging without really total awareness by me, really made me look to other options". 

not be judgemental, just would hope you could look at some other solutions maybe... instead of illegal stuff.... or hording so much anger it is only consuming your energy.  Be there with so much anger none left for relief.  

I too still work for a moment of relief.... remember your never alone...... sending  support and caring.  Not trying to be judgemental so sorry if it came out that way.  I just wasn't one whose body could accept the treatment as others.