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Posted on: Thu, Apr 3 2008 12:03 PM
Posted by: Jennifer71 Posts: 5
Hey there, my name is Jennifer71 and was diagnosed in Aug. 2007 with ALS. Needless to say I am devastated. I am only 36 and a single mom with 2 small children. This has been very tragic for myself and my children as well as friends and family. I would love to talk. I have not wanted to accept the diagnosis, but am realizing it is true and trying to deal with it as bestas one can. I would love to talk to other individuals with the same diagnosis. Please feel free to talk anytime. We all need to pull together in such a sad time.
Posted on: Thu, Apr 3 2008 12:33 PM
Hi Katrina, my name is Jennifer and I too have been diagnosed with ALS. I am 36 with 2 children. I would ove to talk and listen to another individual going through the same as me. My email is seeblueeyes1108@yahoo.com. Would love to talk to you.
Posted on: Thu, Apr 3 2008 12:35 PM
Hey Katrina, I have been better. How are you? How long have you been living with ALS?
Posted on: Thu, Apr 3 2008 3:26 PM
Posted by: liszler Posts: 1
Hi Vinci5,
My sister was diagnosed in Jan 07. You are not alone. I would like to talk to you if you would like.
I don't know how much I can help but I can listen.
liszler
Posted on: Tue, Apr 15 2008 10:35 AM
Posted by: mcquade Posts: 1
I can't imagine what you are going through right now. All the best to you.
I recently saw a big gathering of people with ALS on a site called PatientsLikeMe. Many are tracking their disease progression on charts. It may be helpful to you, who knows.
Posted on: Tue, Apr 15 2008 10:36 AM
Posted by: bradasimpson Posts: 16
We just started a mucsular dystrophy group. ALS is part of the MDA'S research and service programs. There are not too many members yet, but you can probably get some questions answered.
Brad
Posted on: Tue, Apr 15 2008 1:07 PM
Posted by: Pammyp Posts: 1
Hi, my name is Pammy and in Jan 08 my mom passed from ALS...I was her primary caregiver for 6 years...I would be happy to talk about it and share any info I can, as the experience has taught me quite a bit about the disease and resources...
Posted on: Tue, Apr 15 2008 6:09 PM
Posted by: Daniel502 Posts: 431
There are several newcomers in here, welcome to Disaboom everybody.
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