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ALS I have just been diagnosed

Last post Thu, Jun 19 2008 7:05 PM by Saydrah. 21 replies.

• Daniel502

  Posts: 423

  • Re: ALS I have just been diagnosed
  • Posted: Tue, Apr 15 2008 6:09 PM

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  •  There are several newcomers in here, welcome to Disaboom everybody.

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• jwray

  Posts: 3

  • Re: ALS I have just been diagnosed
  • Posted: Sun, May 11 2008 10:42 PM

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  • How do you make the font larger I cant read this its to small. man I was just diagnosed in March. How are you effected so far My worst is the speech, but I am seeing a difference in my ability to do things sometimes my legs hurt hope you are fine.

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• Debbie

  Posts: 3,341

  • Re: ALS I have just been diagnosed
  • Posted: Mon, May 12 2008 5:04 PM

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  • hello, like daniel said, welcome to all the newcomers! :)

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  • xoxo love debbie
    
    
    
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• allieamos

  Posts: 1

  • Re: ALS I have just been diagnosed
  • Posted: Wed, Jun 18 2008 1:36 PM

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  • Hi,

    I'm sure that receiving that diagnosis was not easy.  I don't know your history, and don't know your symptoms, but it may be worth while to see be tested for Lyme by a Lyme Literate Doctor. Some people have found that their symptoms dimish by being treated aggressively for Lyme. Infections in the nervous system can look like ALS. Check out the ALSLYME list as well as some of the Lyme lists. There are new ways to heal that traditional doctors are not using. I say this because someone I know was diagnosed with ALS over a year ago, but has been slowly getting better by using some of the new methods of healing.  

    Allie 

     

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• jwray

  Posts: 3

  • Re: ALS I have just been diagnosed
  • Posted: Thu, Jun 19 2008 4:33 PM

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  • Hi Allie, I was tested for Lyme but I don't know what the results were. What are the new Methods of healing it might now hurt to try it. I have been tested for Mecurey and I had high levels of that so I had all the metal taken out of my teeth and I am trying to detox myself now.

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• Debbie

  Posts: 3,341

  • Re: ALS I have just been diagnosed
  • Posted: Thu, Jun 19 2008 4:37 PM

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  • hi allie and jwray, it is nice to meet you both and welcome.

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  • xoxo love debbie
    
    
    
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• Saydrah

  Posts: 177

  • Re: ALS I have just been diagnosed
  • Posted: Thu, Jun 19 2008 7:05 PM

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  • Welcome to all the newcomers in this thread!

     

    Today is Lou Gehrig's birthday, by the way. He would be 105! For his birthday I listed some bloggers with ALS in my own disaboom blog. Some of you might relate to their experiences:

     

    als-bloggers.aspx">http://www.disaboom.com/Blogs/saydrah/archive/2008/06/19/lou-gehrig-s-birthday-spotlight-on-als-bloggers.aspx

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  • "Congress acknowledged that society's accumulated myths and fears about disability and disease are as handicapping as are the physical limitations that flow from actual impairment." --William J. Brennan, Jr.
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