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Disaboom » Health » Spina Bifida » spina bifida

spina bifida

Last post Mon, Mar 10 2008 9:07 PM by Kahli. 148 replies.


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  • sharonr sharonr
    Posts: 397

    • permalink spina bifida

    • Posted: Thu, Nov 08 2007 10:03 AM

    •         i went to the section that has all the great info on spina bifida, and it is great info, but it doesn't give any info past, basically, adolescence. i would love to talk to some adult sb's and share experiences, medical histories/problems, etc.
       

    • Sharon Neely, Realtor

    • Reply Contact
  • hpblair hpblair
    Posts: 7

    • permalink Re: spina bifida

    • Posted: Wed, Nov 14 2007 1:14 PM

    • I own a yahoo group for adults with spina bifida

    • Kathryn N. Blair
    • Reply Contact
  • sharonr sharonr
    Posts: 397

    • permalink Re: spina bifida

    • Posted: Wed, Nov 14 2007 1:55 PM

    • hpblair:

      I own a yahoo group for adults with spina bifida

       

       

      but you're keeping it a secret all to yourself? Big Smile 

    • Sharon Neely, Realtor

    • Reply Contact
  • Lily265 Lily265
    Posts: 297

    • permalink Re: spina bifida

    • Posted: Wed, Nov 14 2007 4:16 PM

    • Disaboom will be adding a discussion forum for Spina Bifida this week so keep your eyes open!

      FYI -- the reason this member did not mention the name of his Yahoo! Group is because she's wisely following the policy of our site regarding spam content.  The definition of SPAM is as follows:

       

      What is Considered Spam?

      • Blogs, Chat and Discussion Board posts that exist solely to direct people away from Disaboom.com. If your post is made up predominantly of links or has a link and very little content it is a good chance that is falls under this category.

       

    • Filed under: Customer Service, Discussion Forum, Spina Bifida
    • Reply Contact
  • Debbie Debbie
    Posts: 3,341

    • permalink Re: spina bifida

    • Posted: Wed, Nov 14 2007 5:51 PM

    • hello hpblair, it's nice to meet you.Cool

    • xoxo love debbie


    • Reply Contact
  • hpblair hpblair
    Posts: 7

    • permalink Re: spina bifida

    • Posted: Wed, Nov 14 2007 7:01 PM

    • hi

    • Kathryn N. Blair
    • Reply Contact
  • sharonr sharonr
    Posts: 397

    • permalink Re: spina bifida

    • Posted: Thu, Nov 15 2007 11:58 AM

    •  i'll be really interested in that group, you just don't find info on adults with spina bifida

    • Sharon Neely, Realtor

    • Reply Contact
  • dramasteph dramasteph
    Posts: 87

    • permalink Re: spina bifida

    • Posted: Sun, Nov 25 2007 7:01 PM
    • Yeaaaaa a group for people touched by SB!!! This will make many happy and I hope that others realize this, too!
    • Reply Contact
  • disneycruz disneycruz
    Posts: 9

    • permalink Re: spina bifida

    • Posted: Sun, Nov 25 2007 8:01 PM

    • Does anyone know any young adults or teens with SB?Smile

    • Reply Contact
  • sharonr sharonr
    Posts: 397

    • permalink Re: spina bifida

    • Posted: Mon, Nov 26 2007 9:46 AM

    •  i'm not exactly young anymore, but i'm an adult! lol, i'm 30 years old. sometimes feel older, usually feel younger

       

    • Sharon Neely, Realtor

    • Reply Contact
  • slimditty slimditty
    Posts: 2

    • permalink Re: spina bifida

    • Posted: Mon, Nov 26 2007 11:54 AM

    • i am trying to find someone to give away some catheters to. my son has 14 french that he does not need. is there anyway you can find out if someone needs these or maybe post a bulletin ? i am new to this group, so i just wanted to drop a line. i don't want to throw them away. I am in Houston, Texas. my name is Ida. 713-204-6000 thanks.

    • Reply Contact
  • Summer24 Summer24
    Posts: 74

    • permalink Re: spina bifida

    • Posted: Sun, Dec 02 2007 1:18 PM

    • disneycruz:

      Does anyone know any young adults or teens with SB?Smile

      I am 24 with sb. Not sure if that is young adult enough...lol.

    • ~*Summer*~
      www.myspace.com/lightninggrl2121
    • Reply Contact
  • Nickie02 Nickie02
    Posts: 15

    • permalink Re: spina bifida

    • Posted: Mon, Dec 03 2007 4:16 PM

    • Hi all I am a 28 yr old single mother of a 2 yr old son, and I have Spina Bifida. If you would like to talk or have any questions, please contact me. I am also a member of the Spina Bifida Assoc of New Orleans, and I know of some great website with good info for those who want to learn more.

       

      Hope to talk to you soon

       

    • Nicole E. Williams
      visit www.sbaa.org or www.sbagno.org
      to learn more about Spina Bifida
      and
      you can reach me at www. myspace.com/msscorpio2
      or
      www.myspace.com/spinabifidaworld
    • Reply Contact
  • disneycruz disneycruz
    Posts: 9

    • permalink Re: spina bifida

    • Posted: Tue, Dec 04 2007 6:06 AM

    • yes it is Summer thanks how can i reach u to get to know u?

    • Reply Contact
  • Debbie Debbie
    Posts: 3,341

    • permalink Re: spina bifida

    • Posted: Tue, Dec 04 2007 8:56 AM

    • hi nickie, it's nice to meet you. i love that age, toddlers are the cutest! welcome and wishing everyone on here  a great day! Cool

    • xoxo love debbie


    • Reply Contact
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