Welcome to Discussions

I very cool woman I know told me about this site, she also has MS and lives in Cheyenne. It was also in our Rocky Mt. news letter, so I thought I'd check it out. Now I can blog my journal, empty my thoughts and share as I do in everyday life about Christ there and not feel so out of place in my wheelchair. It's nice to know there are others who have limits that share a lot of the same issues, dreams, hopes and prayers.

~

What about You all ?? Why did you join Disaboom ??

A friend of a friend in the disability community sent me the link back in the beta phase.  I've been active online in multiple disability and chronic illness related groups for years, and enjoyed sharing practical advice and encouraging each other's advocacy against discrimination.   Spreading disability awareness and working on our rights is very importnat to me and I enjoy working with others who have similar goals.   I also enjoy being in a place where it is common to discuss mobility devices, pain management techniques, working with a disability.  I spend my days out in the real world where very few peers have disabilites, and it's a relief to come to a place where I'm not "the other" and people get what it's like being a PWD in the non-disabled world.

 

And I was especially drawn to the fact that the founder is another physician with a disability - I'd recently started a website to try to bring doctors with disabilities together with medical and premedical students for mentoring and the sharing of information and suggestions. 

 

 

 

 

you know that advertisement that has the lady with the child in her arms and shes got both legs missing and shes on her prosthetics and it says something about having my second child changed my life so did my accident.i saw that it was for people like me and people with other things so i joined 

I joined Disaboom in search for someone else with ectrodactyly. While I personally don't consider my level of function to be that of someone with a disability, I do recognize I have a birth defect, and know some with my condition have a much more severe case. I came here looking for others with it because I have never personally met anyone else with ectrodactyly. While I'm sad to say I'm yet to find another person with it, I have made many great friends along the way here. So, whatever word you use to describe me, disabled, having a birth defect, or just different, I have found a home here at Disaboom. When I first came here some didn't welcome me with open arms because I was on this personal search to find a category I fit in. Since then, I have formed many friendships and realized I don't need that category to identify myself by like I did so many months ago. So whether yall like it or not, I'm here to stay lol and you aren't getting rid of me even if you wanted to

GREAT QUESTION SISTER , I FRIST HEARD ABOUT POST POLIO SYNDROME READING THE NEW YORK TIMES. BOY DID IT SCARE ME AND I FELT SO ALONE . SO I JOINED HERE TO MEET OTHER WHO HAVE POLIO AND TO FIND OUT MORE ABOUT PPS . I HAVE LEARNED MORE FROM THE PEOPLE HERE THEN I COULD FROM READING ANY BOOK ! I ASLO MADE WONDERFUL NEW FRIENDS . IF I HAD TO SUM IT UP IN ONE WORD I THINK IT WOULD BE THE ' SUPPORT '                  BLESS YOU   RAINEY XO  

It is a great question, Sister.......I wish I could remember how I even heard of disaboom.......my memory stinks.....I'll have to ask few family members to " refresh " my memory.........they have to do alot of that !....In any case......I couldn't be more glad......to have found......a home really......a safe......cozy......relaxing and at times.......challenging place to be. I thank God for it every day.........peace and love......Norma

thanks you for your question Lisa Catherine

i have been wandering through polio and post polio sites since I got told a decade ago that I had the condition. There may be some personal sites for PPS and Polio but I found mostly medical information sites. There was not a one to one connection. I found Disaboom while surfing and although at first I did not find any thing about Polio listed in the groups.....I was assured by the powers that be there was such.  

I stuck around lurking on the threads and in the chat rooms and found a warmth and caring for one another that was new to me . I had, for most of my life, try to hide my disability and certainly didn't feel comfortable talking truthfully of my day to day struggles with my condition. As I allowed myself to say hi to the community and add my two cents to several threads i came to realize that here its OK to be different. Its accepted to be disabled. The friendships I have created here have helped me see there is more to my life than PPS. Yes it is a factor, but it doesn't have to be the major struggle in my life.

I appreciate the fact that I can be myself here. I don't have to be the goody two shoes I was as a young person because I thought that how I had to act so people would like me. the site has become a daily activity for me and a God send as my condition changes my life from active and independent to passive and dependent.

Blessings

Becky W