About Me

I have a neuromuscular autoimmune disease called Myasthenia Gravis. I am on oxygen and most of my complications have been respiratory, extreme fatigue and weakness. Recently I have improved and can walk with a walker or cain. On my weak days I have to use my electronic wheel-chair to get around. I have several other diseases that have come from treatments or other things related to my disease so like many others, I am on way to many medications that cost way too much. I am single and in May of 2005 I had to take disability teachers retirement because of my Myasthenia Gravis.... I was 44. Recently, I have made great strides with my physical therapy and have added Tai Chi into the mix. God willing, I will be able to work again soon. I have tried to find "real" work at home jobs but haven't had any sucess. My loves have always been my children and music. Now my children are grown and I haven't been able to perform or teach music. I never realized how much my idenity revovled around both of them. I think one of my greatest struggles has been denial. You would think after loosing my home, my mobility and my job I would have gotten a handle on it before now but I guess everyone has their own timing. I am ready to begin living again, after I take a nap :) I know it won't be like it was but I still have a lot to live for... the new me that I need to get to know, and my precious grandson!!!