About Me

I am a stay-at-home mom, I have 5kids, 2step-kids(yes, they all live with me). Anyway, I am here because my baby has a diability. He has Loeys-Dietz Syndrome. He has had 2surgeries. A nissen then the next day he had e.r. surgery for the same thing. He has unilateral hearing loss, a developmental delay, he will soon need cleft palate repair. He also has a complex congenital heart defect. He is fed with a g-tube and needs to be followed by the craniofacial team at the local children's hospital. So, I am just here for support and to hopefully support people in the same situation.